Dysphagia and feeding difficulties post-pediatric ingestion injury: Perspectives of the primary caregiver

Article


Follent, Anna M., Rumbach, Anna F., Ward, Elizabeth C., Marshall, Jeanne, Dodrill, Pamela and Lewindonc, Peter. 2017. "Dysphagia and feeding difficulties post-pediatric ingestion injury: Perspectives of the primary caregiver." International Journal of Pediatric Otorhinolaryngology. 103, pp. 20-28. https://doi.org/10.1016/j.ijporl.2017.09.013
Article Title

Dysphagia and feeding difficulties post-pediatric ingestion injury: Perspectives of the primary caregiver

ERA Journal ID16267
Article CategoryArticle
AuthorsFollent, Anna M., Rumbach, Anna F., Ward, Elizabeth C., Marshall, Jeanne, Dodrill, Pamela and Lewindonc, Peter
Journal TitleInternational Journal of Pediatric Otorhinolaryngology
Journal Citation103, pp. 20-28
Number of Pages9
Year2017
PublisherElsevier
Place of PublicationUnited Kingdom
ISSN0165-5876
1872-8464
Digital Object Identifier (DOI)https://doi.org/10.1016/j.ijporl.2017.09.013
Web Address (URL)https://www.sciencedirect.com/science/article/pii/S0165587617304445
Abstract

Purpose
To explore the experiences of children with dysphagia and/or feeding difficulties post-chemical or button battery ingestion injury from the perspective of the primary caregiver.

Method
Five primary caregivers of children with a history of dysphagia and/or feeding difficulties post-ingestion injury (4 chemical, 1 button battery) completed the Children's Picky Eating Questionnaire (CPEQ), and participated in a semi-structured interview. Interviews explored experiences of caring for a child with dysphagia and/or feeding difficulties, impressions of services and supports, and additional impacts to the child and family. Content analysis was used to identify key themes.

Result
Primary caregiver report and CPEQ results confirmed all children had some degree of persisting dysphagia and/or feeding difficulties at time of interview (mean 4.13 years' post-injury). Interviews identified five key themes: 1) The initial trauma of the injury, 2) The experience of associated and ongoing medical issues, 3) Managing altered oral intake, 4) Experiences of services and support, and 5) Impacts on the child, primary caregiver, and wider family unit. All caregivers reported significant challenges and concerns, and potential areas of service improvement were highlighted.

Conclusion
The current data highlights specific issues experienced by primary caregivers, and poses areas for improving primary caregiver and family supports. Family-centered models of care are needed to support the whole family unit in caring for a child with dysphagia and/or feeding difficulties post-ingestion injury.

KeywordsCaregiver; Trauma; Dysphagia; Button battery; Ingestion
ANZSRC Field of Research 2020420110. Speech pathology
420303. Family care
Public NotesFile reproduced in accordance with the copyright policy of the publisher/author.
Byline AffiliationsUniversity of Queensland
Centre for Functioning and Health Research, Australia
Lady Cilento Children's Hospital, Australia
Boston Children's Hospital, United States
Permalink -

https://research.usq.edu.au/item/yy424/dysphagia-and-feeding-difficulties-post-pediatric-ingestion-injury-perspectives-of-the-primary-caregiver

Download files


Accepted Version
UQ691322_OA_.pdf
File access level: Anyone

  • 27
    total views
  • 29
    total downloads
  • 3
    views this month
  • 1
    downloads this month

Export as

Related outputs

‘You can be as vigilant as you can, yet they make their way in’: A descriptive study of parent and caregiver perspectives towards keeping children safe from button batteries
Girardi, Anna M., Long, David N. and Austin, Gavin. 2024. "‘You can be as vigilant as you can, yet they make their way in’: A descriptive study of parent and caregiver perspectives towards keeping children safe from button batteries." Journal of Pediatric Gastroenterology and Nutrition. https://doi.org/10.1002/jpr3.12096
Artificial Intelligence in the Interpretation of Videofluoroscopic Swallow Studies: Implications and Advances for Speech–Language Pathologists
Girardi, Anna M., Cardell, Elizabeth A. and Bird, Stephen P.. 2023. "Artificial Intelligence in the Interpretation of Videofluoroscopic Swallow Studies: Implications and Advances for Speech–Language Pathologists ." Big Data and Cognitive Computing. 7 (4). https://doi.org/10.3390/bdcc7040178
'ScreenIT': computerised screening of swallowing nutrition and distress in head and neck cancer patients during (chemo)radiotherapy
Wall, Laurelie R., Cartmill, Bena, Ward, Elizabeth C., Hill, Anne J., Isenring, Elizabeth, Byrnes, Joshua, Chambers, Suzanne, Dunn, Jeff, Nixon, Jodie, Whelan, Jane and Porceddu, Sandro V.. 2016. "'ScreenIT': computerised screening of swallowing nutrition and distress in head and neck cancer patients during (chemo)radiotherapy." Oral Oncology. 54, pp. 47-53. https://doi.org/10.1016/j.oraloncology.2016.01.004
Dysphagia progression and feeding skills following pediatric alkali ingestion injury: two case reports
Follent, Anna M., Rumbach, Anna F., Ward, Elizabeth C., Marshall, Jeanne, Dodrill, Pamela and Lewindonc, Peter. 2017. "Dysphagia progression and feeding skills following pediatric alkali ingestion injury: two case reports." Disability and Rehabilitation. 39 (23), pp. 2452-2459. https://doi.org/10.1080/09638288.2016.1231848
Speech-language Pathology in Acute Pediatric Chemical or Button Battery Ingestion Injury
Follent, Anna M., Rumbach, Anna F., Ward, Elizabeth C., Dodrill, Pamela and Lewindonc, Peter. 2017. "Speech-language Pathology in Acute Pediatric Chemical or Button Battery Ingestion Injury ." Journal of Pediatric Gastroenterology and Nutrition. 64 (1), pp. 42-46. https://doi.org/10.1097/MPG.0000000000001256
Speech-language pathology services in Australian and New Zealand pediatric burn units and chemical ingestion injury
Follent, Anna M., Rumbach, Anna F., Ward, Elizabeth C., Dodrill, Pamela and Clayton, Nicola A.. 2015. "Speech-language pathology services in Australian and New Zealand pediatric burn units and chemical ingestion injury." Speech, Language and Hearing. 18 (2), pp. 116-124. https://doi.org/10.1179/2050572814Y.0000000057
Voice movement therapy: evaluation of a group-based expressive arts therapy for nonsuicidal self-injury in young adults
Martin, Sophie, Martin, Graham, Lequertier, Belinda, Swannell, Sarah, Follent, Anna and Choe, Florence. 2013. "Voice movement therapy: evaluation of a group-based expressive arts therapy for nonsuicidal self-injury in young adults." Music and Medicine. 5, pp. 31-38. https://doi.org/10.1177/1943862112467649
Disinhibition and reward sensitivity in relation to alcohol consumption by university undergraduates
Lyvers, Michael, Czerczyk, Cameron, Follent, Anna and Lodge, Phoebe. 2009. "Disinhibition and reward sensitivity in relation to alcohol consumption by university undergraduates." Addiction Research and Theory. 17 (6), pp. 668-677. https://doi.org/10.3109/16066350802404158