Parental perceptions of information needs and service provision for children with developmental disabilities in rural Australia

Article


Hussain, Rafat and Tait, Kathleen. 2015. "Parental perceptions of information needs and service provision for children with developmental disabilities in rural Australia." Disability and Rehabilitation. 37 (18), pp. 1609-1616. https://doi.org/10.3109/09638288.2014.972586
Article Title

Parental perceptions of information needs and service provision for children with developmental disabilities in rural Australia

ERA Journal ID16035
Article CategoryArticle
AuthorsHussain, Rafat (Author) and Tait, Kathleen (Author)
Journal TitleDisability and Rehabilitation
Journal Citation37 (18), pp. 1609-1616
Number of Pages8
Year2015
PublisherTaylor & Francis
Place of PublicationLondon, United Kingdom
ISSN0963-8288
1464-5165
Digital Object Identifier (DOI)https://doi.org/10.3109/09638288.2014.972586
Web Address (URL)http://www.tandfonline.com/doi/full/10.3109/09638288.2014.972586?scroll=top&needAccess=true
Abstract

Purpose: Rural Australians comprise a third of the population. However, there are relatively few research studies that have focused on issues for children with developmental disabilities in rural regions. In particular, there is very limited research that gives voice to parents regarding challenges faced by them due to their location in rural regions.
Methods: This article is based on the qualitative component of a mixed-methods study undertaken in rural settings. In-depth, face-to-face interviews were conducted with 17 parents yielding 30 h of information rich taped data. Thematic analysis techniques were used to identify major issues.
Results: Three core themes emerged from analysis of the qualitative data regarding information and support needs: an ongoing lack of timely and relevant information about disabilities and support services; inadequacies in interactions with service providers particularly doctors and allied health staff; and considerable challenges and barriers to access and use of health services.
Conclusions: Within the constraints of limited rural service provision, there are still opportunities for considerable improvements, through focussed in-service training to narrow the information gap, improve provider-client interaction around attitudinal issues and uptake of tele-health to minimise the long waiting times and the need to regularly travel long distances to access services and setting up online support groups.
Implications for Rehabilitation
• There is limited information on challenges faced by parents of children with developmental disabilities in rural Australia.

• The challenges around lack of information about support systems available add to parental stress as does limited experience, frequent staff turnover and poor attitude of many service providers.

• There is a need to improve rural service provision. Feasible options within resource constraints include focussed in-service training to narrow the information gap, improve provider-client interaction around attitudinal issues, and uptake of tele-health services.

• Setting up of parent-professional support groups as well peer support groups using digital technologies will help reduce the sense of isolation for rural carers and minimise impediments related to travelling long distances.

KeywordsAustralia; developmental disabilities; information needs; rural; support services
ANZSRC Field of Research 2020441006. Sociological methodology and research methods
441003. Rural sociology
390411. Special education and disability
461010. Social and community informatics
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Byline AffiliationsUniversity of New England
School of Linguistics, Adult and Specialist Education
Institution of OriginUniversity of Southern Queensland
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