Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life

Article


Green, Anna, Jerzmanowska, Natalie, Thristiawati, Safrina, Green, Marguerite and Lobb, Elizabeth A.. 2019. "Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life." Palliative and Supportive Care. 17 (2), pp. 227-233. https://doi.org/10.1017/S1478951518000147
Article Title

Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life

ERA Journal ID40896
Article CategoryArticle
AuthorsGreen, Anna (Author), Jerzmanowska, Natalie (Author), Thristiawati, Safrina (Author), Green, Marguerite (Author) and Lobb, Elizabeth A. (Author)
Journal TitlePalliative and Supportive Care
Journal Citation17 (2), pp. 227-233
Number of Pages7
Year2019
Place of PublicationUnited Kingdom
ISSN1478-9515
1478-9523
Digital Object Identifier (DOI)https://doi.org/10.1017/S1478951518000147
Web Address (URL)https://www.cambridge.org/core/journals/palliative-and-supportive-care/article/culturally-and-linguistically-diverse-palliative-care-patients-journeys-at-the-endoflife/60415C71C81032A3F81F419B8FF515DF
Abstract

Objective. To understand the clinical and psychosocial journey of culturally and linguistically diverse (CALD) palliative care patients. Method. This study was conducted at a subacute hospital with a specialist palliative care unit and a community palliative care service in a metropolitan region of New South Wales, Australia. Medical records of 100 deceased patients from CALD backgrounds over a 12-month period from 2014 to 2015 were recorded on a data mining tool. The cohort had transitioned to either community or inpatient palliative care services with a life-limiting illness. We used descriptive statistical analyses to identify the patients' end-of-life journeys in the physical, psychological, spiritual, and social palliative care domains. Staff case notes were used to enrich the quantitative data. Result. The most common symptoms burdening the patients were decreased mobility (82%), pain (76%), and poor appetite (60%). The majority of patients (87%)were diagnosed with cancer. Language was a major barrier to the assessment and management of symptoms. The vast majority of patients were born in Europe and Asia. Twenty-nine percent of the patients preferred to use English. However, among patients who required an interpreter on admission, only 9% used professional interpreters. Family distress around patients' lack of food consumption was prominent, along with provider concern when this led to families 'force feeding' patients. Only 5% of files documented patients', and 21% of files documented families', cultural wishes or needs. Care of the body after death was only documented in 20% of files. Significance of results. The increasing cohort of older people from CALD backgrounds will have significant implications for the planning and delivery of palliative care services. There is an emerging need to address the physical, psychological, spiritual, and social palliative care domains in the end-of-life journeys of patients from CALD backgrounds to ensure the provision of quality care.

KeywordsCALD; Culturally and linguistically diverse; palliative care
ANZSRC Field of Research 2020420316. Palliative care
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Byline AffiliationsUniversity of Technology Sydney
Calvary Health Care Kogarah, Australia
Institution of OriginUniversity of Southern Queensland
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