Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service

Article


Phillips, Jane L., Lobb, Elizabeth, Mohacsi, Paula, Heneka, Nicole and Currow, David. 2018. "Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 25 (1), pp. 39-43. https://doi.org/10.1016/j.colegn.2017.03.004
Article Title

Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service

ERA Journal ID14073
Article CategoryArticle
AuthorsPhillips, Jane L., Lobb, Elizabeth, Mohacsi, Paula, Heneka, Nicole and Currow, David
Journal TitleCollegian: The Australian Journal of Nursing Practice, Scholarship and Research
Journal Citation25 (1), pp. 39-43
Number of Pages5
YearFeb 2018
PublisherElsevier
Place of PublicationNetherlands
ISSN1322-7696
1876-7575
Digital Object Identifier (DOI)https://doi.org/10.1016/j.colegn.2017.03.004
Web Address (URL)https://www.collegianjournal.com/article/S1322-7696(16)30154-8/fulltext
Abstract

Background: Bereavement follow up is an integral element of palliative care. However, little is known about the systems that link bereavement services with bereaved carers.

Aim: To map how effectively a specialist palliative care service linked bereavement service to bereaved carers.

Methodology: A retrospective medical audit, using process mapping was undertaken within one Australian specialist palliative care service to identify the systems that linked bereavement services to a consecutive cohort of palliative care decedents (n=60) next of kin.

Results: Bereavement records were located for 80% of decedents. Nearly all (98%) had a nominated next of kin, with just over half (54%) of those nominated contacted by bereavement services. Incomplete or missing contact details was the main reason (75%) that the bereavement service was unable to contact the decedents’ next of kin.

Conclusion: Having access to a designated bereavement service can ensure that bereaved next of kin are contract routinely and in a timely way. However the effectiveness of this type of service is dependent upon the bereavement service having access to all relevant contact information. There are numerous opportunities to refine and strengthen the recording of palliative care next of kin details to optimize follow up.

KeywordsPalliative care; Bereavement; Referral; Caregivers; Process mapping; Audit
ANZSRC Field of Research 2020420316. Palliative care
Public Notes

File reproduced in accordance with the copyright policy of the publisher/author.

Byline AffiliationsUniversity of Technology Sydney
University of Notre Dame Australia
University of Tasmania
Permalink -

https://research.usq.edu.au/item/y5771/identifying-systems-barriers-that-may-prevent-bereavement-service-access-to-bereaved-carers-a-report-from-an-australian-specialist-palliative-care-service

Download files

  • 23
    total views
  • 23
    total downloads
  • 2
    views this month
  • 2
    downloads this month

Export as

Related outputs

Acceptability of a virtual prostate cancer survivorship care model in regional Australia: A qualitative exploratory study
Heneka,, Chambers, Suzanne K., Schaefer, Isabelle and Dunn, Jeff. 2023. "Acceptability of a virtual prostate cancer survivorship care model in regional Australia: A qualitative exploratory study ." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 32 (4), pp. 569-580. https://doi.org/10.1002/pon.6101
Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol of an effectiveness-implementation hybrid (Type 1) randomised trial of a tele-based nurse-led survivorship care intervention (PCEssentials)
Green, Anna, Newton, Robert U, Chambers, Suzanne K, Smith, David P, Tuffaha, Haitham, Galvao, Daniel A, Heathcote, Peter, Patel, Manish I, Christie, David, Egger, Sam, Sara, Sally, Heneka, Nicole and Dunn, Jeff. 2023. "Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol of an effectiveness-implementation hybrid (Type 1) randomised trial of a tele-based nurse-led survivorship care intervention (PCEssentials)." ANZUP Annual Scientific Meeting. Melbourne, Australia 09 - 11 Jul 2023
The importance of developing palliative care quality indicators for the prison setting: why now, and next steps
Schaefer, Isabelle, Heneka, Nicole, DiGiacomo, Michelle, Panozzo, Stacey and Phillips, Jane L.. 2023. "The importance of developing palliative care quality indicators for the prison setting: why now, and next steps." BMC Palliative Care. 22 (1). https://doi.org/10.1186/s12904-023-01150-3
Correction: The importance of developing palliative care quality indicators for the prison setting: why now, and next steps
Schaefer, Isabelle, Heneka, Nicole, DiGiacomo, Michelle, Panozzo, Stacey and Phillips, Jane L.. 2023. "Correction: The importance of developing palliative care quality indicators for the prison setting: why now, and next steps ." BMC Palliative Care. 22 (1). https://doi.org/10.1186/s12904-023-01210-8
A Vanguard Approach to the Design and Delivery of Nurse-Led Survivorship Care
Sara, Sally A. M., Chambers, Suzanne K., Briggs, Russell, Heneka, Nicole and Dunn, Jeff. 2023. "A Vanguard Approach to the Design and Delivery of Nurse-Led Survivorship Care." Seminars in Oncology Nursing. 39 (1). https://doi.org/10.1016/j.soncn.2022.151366
Translating the Prostate Cancer Survivorship Essentials Framework into clinical practice: A participatory research process analysis
Heneka, Nicole, Crowe, Helen, Chambers, Suzanne K., Costello, Anthony, Crowe, Jane, Dundee, Phil, Heerey, Rachel, Stijnen, Elles, Bolger, Chris, Schaefer, Isabelle and Dunn, Jeff. 2023. Translating the Prostate Cancer Survivorship Essentials Framework into clinical practice: A participatory research process analysis.
Designing Organisational Management Frameworks to Empower Episodic Volunteering
Dunn, Jeff, Scuffham, Paul, Hyde, Melissa K., Stein, Kevin, Zajdlewicz, Leah, Savage, Anne, Heneka, Nicole, Ng, Shu-Kay and Chambers, Suzanne K.. 2022. "Designing Organisational Management Frameworks to Empower Episodic Volunteering." Voluntas: International Journal of Voluntary and Nonprofit Organizations. 33 (2), pp. 217-228. https://doi.org/10.1007/s11266-020-00226-5
Older Persons’ and Their Caregivers’ Perspectives and Experiences of Research Participation With Impaired Decision-Making Capacity: A Scoping Review
Hosie, Annmarie, Kochovska, Slavica, Ries, Nola, Gilmore, Imelda, Parker, Deborah, Sinclair, Craig, Sheehan, Caitlin, Collier, Aileen, Caplan, Gideon A., Visser, Mandy, Xu, Xiaoyue, Lobb, Elizabeth, Sheahan, Linda, Brown, Linda, Lee, Wei, Sanderson, Christine R., Amgarth-Duff, Ingrid, Green, Anna, Edwards, Layla and Agar, Meera R.. 2022. "Older Persons’ and Their Caregivers’ Perspectives and Experiences of Research Participation With Impaired Decision-Making Capacity: A Scoping Review." The Gerontologist. 62 (2), pp. e112-e122. https://doi.org/10.1093/geront/gnaa118
Experience of Advanced Chronic Obstructive Pulmonary Disease: Metasynthesis of Qualitative Research
Disler, Rebecca T., Green, Anna, Luckett, Tim, Newton, Phillip J., Inglis, Sally, Currow, David C. and Davidson, Patricia M.. 2014. "Experience of Advanced Chronic Obstructive Pulmonary Disease: Metasynthesis of Qualitative Research." Journal of Pain and Symptom Management. 48 (6), pp. 1182-1199. https://doi.org/10.1016/j.jpainsymman.2014.03.009
Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach
Virdun, Claudia, Brown, Nicola, Phillips, Jane, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia M.. 2015. "Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (4), pp. 421-431. https://doi.org/10.1016/j.colegn.2014.07.001
Elements of effective palliative care models: a rapid review
Luckett, Tim, Phillips, Jane, Agar, Meera, Virdun, Claudia, Green, Anna and Davidson, Patricia M.. 2014. "Elements of effective palliative care models: a rapid review." BMC Health Services Research. 14, pp. 1-22. https://doi.org/10.1186/1472-6963-14-136
A Multicomponent Nonpharmacological Intervention to Prevent Delirium for Hospitalized People with Advanced Cancer: A Phase II Cluster Randomized Waitlist Controlled Trial (The PRESERVE Pilot Study)
Hosie, Annmarie, Phillips, Jane, Lam, Lawrence, Kochovska, Slavica, Noble, Beverly, Brassil, Meg, Kurrle, Susan, Cumming, Anne, Caplan, Gideon A., Chye, Richard, Ely, Eugene Wesley, Lawlor, Peter G., Bush, Shirley H., Davis, Jan Maree, Lovell, Melanie, Parr, Cynthia, Williams, Sally, Hauser, Katherine, McArdle, Susan, ..., Agar, Meera. 2020. "A Multicomponent Nonpharmacological Intervention to Prevent Delirium for Hospitalized People with Advanced Cancer: A Phase II Cluster Randomized Waitlist Controlled Trial (The PRESERVE Pilot Study)." Journal of Palliative Medicine. 23 (10), pp. 1314-1322. https://doi.org/10.1089/jpm.2019.0632
Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care
Luckett, Tim, Davidson, Patricia M., Green, Anna, Marie, Natalie, Birch, Mary-Rose, Stubbs, John, Phillips, Jane, Agar, Meera, Boyle, Frances and Lovell, Melanie. 2019. "Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care." Palliative and Supportive Care. 17 (4), pp. 472-478. https://doi.org/10.1017/S1478951518000792
‘Death is difficult in any language’: A qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds
Green, Anna, Jerzmanowska, Natalia, Green, Marguerite and Lobb, Elizabeth A.. 2018. "‘Death is difficult in any language’: A qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds." Palliative Medicine. 32 (8), pp. 1419-1427. https://doi.org/10.1177/0269216318776850
Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life
Green, Anna, Jerzmanowska, Natalie, Thristiawati, Safrina, Green, Marguerite and Lobb, Elizabeth A.. 2019. "Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life." Palliative and Supportive Care. 17 (2), pp. 227-233. https://doi.org/10.1017/S1478951518000147
Unmet Needs in Chronic Obstructive Pulmonary Disease: A Metasynthesis Protocol
Disler, Rebecca T., Green, Anna, Luckett, Tim, Newton, Phillip J., Inglis, Sally C., Currow, David C. and Davidson, Patricia M.. 2012. "Unmet Needs in Chronic Obstructive Pulmonary Disease: A Metasynthesis Protocol." International Journal of Research in Nursing. 3 (1), pp. 15-20. https://doi.org/10.3844/ijrnsp.2012.15.20
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis
Disalvo, Domenica, Agar, Meera, Caplan, Gideon, Murtagh, Fliss EM, Luckett, Tim, Heneka, Nicole, Hickman, Louise, Kinchin, Irina, Trethewie, Susan, Sheehan, Caitlin, Urban, Kat, Cohen, Joshua, Harlum, Janeane, Long, Brian, Parker, Tricia, Schaefer, Isabelle and Phillips, Jane. 2021. "Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis." Palliative Medicine. 35 (8), pp. 1385-1406. https://doi.org/10.1177/02692163211024451
Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan
Schaefer, Isabelle, Heneka, Nicole, Luckett, Tim, Agar, Meera R., Chambers, Suzanne K., Currow, David C., Halkett, Georgia, Disalvo, Domenica, Amgarth-Duff, Ingrid, Anderiesz, Cleola and Phillips, Jane L.. 2021. "Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan." BMC Palliative Care. 20 (1), pp. 1-11. https://doi.org/10.1186/s12904-021-00715-4
The Health Professionals Guide to Delivering Psychological Care for Men with Prostate Cancer
Chambers, Suzanne K, Heneka, Nicole and Dunn, Jeff. 2021. The Health Professionals Guide to Delivering Psychological Care for Men with Prostate Cancer. Australia. Australian Academic Press.
Mitigating opioid errors in inpatient palliative care: A qualitative study
Heneka, Nicole, Bhattarai, Priyanka, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2020. "Mitigating opioid errors in inpatient palliative care: A qualitative study." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 27 (3), pp. 304-312. https://doi.org/10.1016/j.colegn.2019.09.005
A psychosocial care model for men with prostate cancer
Chambers, Suzanne K., Galvao, Daniel A., Green, Anna, Lazenby, Mark, Newton, Robert U., Oliffe, John L., Phillips, Jane L., Phillips, Rachel, Ralph, Nicholas, Sara, Sally, Heathcote, Peter and Dunn, Jeff. 2019. A psychosocial care model for men with prostate cancer. Sydney, Australia. Prostate Cancer Foundation of Australia.
Risk of opioid misuse in people with cancer and pain and related clinical considerations: a qualitative study of the perspectives of Australian general practitioners
Luckett, Tim, Newton-John, Toby, Phillips, Jane, Holliday, Simon, Giannitrapani, Karleen, Powell-Davies, Gawaine, Lovell, Melanie, Liauw, Winston, Rowett, Debra, Pearson, Sallie-Anne, Raymond, Bronwyn, Heneka, Nicole and Lorenz, Karl. 2020. "Risk of opioid misuse in people with cancer and pain and related clinical considerations: a qualitative study of the perspectives of Australian general practitioners." BMJ Open. 10 (2), pp. 1-11. https://doi.org/10.1136/bmjopen-2019-034363
Effectiveness of the spaced education pedagogy for clinicians’ continuing professional development: a systematic review
Phillips, Jane L, Heneka, Nicole, Bhattarai, Priyanka, Fraser, Claire and Shaw, Tim. 2019. "Effectiveness of the spaced education pedagogy for clinicians’ continuing professional development: a systematic review." Medical Education. 53 (9), pp. 886-902. https://doi.org/10.1111/medu.13895
Clinicians’ perceptions of opioid error–contributing factors in inpatient palliative care services: A qualitative study
Heneka, Nicole, Bhattarai, Priyanka, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2019. "Clinicians’ perceptions of opioid error–contributing factors in inpatient palliative care services: A qualitative study." Palliative Medicine. 33 (4), pp. 430-444. https://doi.org/10.1177/0269216319832799
A phase III wait-listed randomised controlled trial of novel targeted interprofessional clinical education intervention to improve cancer patients’ reported pain outcomes (The Cancer Pain Assessment (CPAS) Trial): study protocol
Phillips, Jane L., Heneka, Nicole, Lovell, Melanie, Lam, Lawrence, Davidson, Patricia, Boyle, Frances, McCaffrey, Nikki, Fielding, Sally and Shaw, Tim. 2019. "A phase III wait-listed randomised controlled trial of novel targeted interprofessional clinical education intervention to improve cancer patients’ reported pain outcomes (The Cancer Pain Assessment (CPAS) Trial): study protocol." Trials. 20. https://doi.org/10.1186/s13063-018-3152-z
Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise and Lam, Lawrence. 2018. "Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study." Pain Management Nursing. 19 (6), pp. 619-626. https://doi.org/10.1016/j.pmn.2018.07.008
Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report
Heneka, N., Shaw, T., Azzi, C. and Phillips, J. L.. 2018. "Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report." Supportive Care in Cancer. 26 (10), pp. 3315-3318. https://doi.org/10.1007/s00520-018-4231-0
Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis." Journal of Palliative Medicine. 21 (6), pp. 825-835. https://doi.org/10.1089/jpm.2017.0578
Opioid errors in inpatient palliative care services: a retrospective review
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Opioid errors in inpatient palliative care services: a retrospective review." BMJ Supportive and Palliative Care. 8 (2), pp. 175-179. https://doi.org/10.1136/bmjspcare-2017-001417
Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2017. "Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study." Pain Management Nursing. 18 (2), pp. 75-89. https://doi.org/10.1016/j.pmn.2017.01.003
Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review
Heneka, Nicole, Shaw, Tim, Rowett, Debra and Phillips, Jane L.. 2016. "Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review." Palliative Medicine. 30 (6), pp. 520-532. https://doi.org/10.1177/0269216315615002
Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review
Heneka, Nicole, Phillips, Jane L., Rowett, D. and Shaw, Tim. 2015. "Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review." 42nd COSA Annual Scientific Meeting. Hobart, Australia 17 - 19 Nov 2015 United Kingdom.
Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective
Phillips, Jane L., Lovell, Melanie, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia. 2015. "Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (1), pp. 33-41. https://doi.org/10.1016/j.colegn.2013.11.002
Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices." Asia Pacific Journal of Clinical Oncology. 10, pp. 206-206.
A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study." Asia Pacific Journal of Clinical Oncology. 10, pp. 136-136.
Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2014. "Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study." Palliative Medicine. 28 (6), pp. 521-529. https://doi.org/10.1177/0269216314527780
Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.
Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.
Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study
Phillips, Jane, Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2013. "Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.