Older Persons’ and Their Caregivers’ Perspectives and Experiences of Research Participation With Impaired Decision-Making Capacity: A Scoping Review

Article

Hosie, Annmarie, Kochovska, Slavica, Ries, Nola, Gilmore, Imelda, Parker, Deborah, Sinclair, Craig, Sheehan, Caitlin, Collier, Aileen, Caplan, Gideon A., Visser, Mandy, Xu, Xiaoyue, Lobb, Elizabeth, Sheahan, Linda, Brown, Linda, Lee, Wei, Sanderson, Christine R., Amgarth-Duff, Ingrid, Green, Anna, Edwards, Layla and Agar, Meera R.. 2022. "Older Persons’ and Their Caregivers’ Perspectives and Experiences of Research Participation With Impaired Decision-Making Capacity: A Scoping Review." The Gerontologist. 62 (2), pp. e112-e122. https://doi.org/10.1093/geront/gnaa118
Article Title

Older Persons’ and Their Caregivers’ Perspectives and Experiences of Research Participation With Impaired Decision-Making Capacity: A Scoping Review

ERA Journal ID16157
Article CategoryArticle
AuthorsHosie, Annmarie (Author), Kochovska, Slavica (Author), Ries, Nola (Author), Gilmore, Imelda (Author), Parker, Deborah (Author), Sinclair, Craig (Author), Sheehan, Caitlin (Author), Collier, Aileen (Author), Caplan, Gideon A. (Author), Visser, Mandy (Author), Xu, Xiaoyue (Author), Lobb, Elizabeth (Author), Sheahan, Linda (Author), Brown, Linda (Author), Lee, Wei (Author), Sanderson, Christine R. (Author), Amgarth-Duff, Ingrid (Author), Green, Anna (Author), Edwards, Layla (Author) and Agar, Meera R. (Author)
Journal TitleThe Gerontologist
Gerontologist
Journal Citation62 (2), pp. e112-e122
Number of Pages11
Year2022
Place of PublicationUnited States
ISSN0016-9013
1758-5341
Digital Object Identifier (DOI)https://doi.org/10.1093/geront/gnaa118
Web Address (URL)https://academic.oup.com/gerontologist/article/62/2/e112/5899769
Abstract

Background and Objectives: Human research ethics statements support the equitable inclusion of diverse groups. Yet older people are underrepresented in clinical research, especially those with impaired decision-making capacity. The aim of this study was to identify the perspectives and experiences of older persons and their caregivers of research participation with impaired decision-making capacity. Research Design and Methods: Scoping review of the literature and online sources in January-February 2019 (updated June 2020) according to Joanna Briggs Institute methodology and PRISMA Extension for Scoping Reviews. English-language peer-reviewed research articles and Australian online narratives were included. Data were tabulated and narratively synthesized. Results: From 4,171 database records and 93 online resources, 22 articles (2000-2019, 82% United States, 16 first authors) and one YouTube webinar (2018) were initially included; updated searches yielded an additional article (2020) and YouTube webinar (2020). Studies were heterogeneous in terminology, methods, and foci, with hypothetical scenarios, quantitative analyses, and examination of proxy consent predominating. Participants (N = 7,331) were older persons (71%), caregivers of older persons with dementia/cognitive impairment (23%), and older persons with dementia/cognitive impairment (6%). Synthesis identified 2 themes: willingness to participate and decision-making approaches. Discussion and Implications: Research participation by older persons with dementia may be optimized through reducing risks and burdens and increasing benefits for participants, greater consumer input into study development, and shared and supported decision-making. Older persons' and caregivers' perspectives and experiences of research participation with impaired decision-making capacity require investigation in a greater range of countries and conditions other than dementia, and dissemination through more varied media.

KeywordsAnalysis; Decision making; Dementia; Ethics (research, practice, policy, individual choices)
ANZSRC Field of Research 2020420502. Aged care nursing
Public Notes

Files associated with this item cannot be displayed due to copyright restrictions.

Byline AffiliationsUniversity of Notre Dame Australia
University of Technology Sydney
University of New South Wales
Calvary Health Care Kogarah, Australia
University of Auckland, New Zealand
South Eastern Sydney Local Health District, Australia
Institution of OriginUniversity of Southern Queensland
Permalink -

https://research.usq.edu.au/item/q77xy/older-persons-and-their-caregivers-perspectives-and-experiences-of-research-participation-with-impaired-decision-making-capacity-a-scoping-review

Log in to edit

Download files

Accepted Version
Hosie A et al 2020.pdf
File access level: Anyone

  • 66
    total views
  • 37
    total downloads
  • 1
    views this month
  • 2
    downloads this month

Export as

Related outputs

“They feel shame sometime, but that is why we need to talk to them…we need to tell them how important it is not to feel shame”: Hepatitis B related shame and improving hepatitis B care in Aboriginal and Torres Strait Islander communities in the Top End of the Northern Territory, according to the Aboriginal health workforce
Sullivan, Richard P., Bukulatjpi, Sarah Mariyalawuy, Binks, Paula, Hosking, Kelly, Nundhirribala, Patricia, Vintour-Cesar, Emily, McKinnon, Melita, Gurruwiwi, George, Green, Anna, Davis, Joshua S. and Davies, Jane. 2024. "“They feel shame sometime, but that is why we need to talk to them…we need to tell them how important it is not to feel shame”: Hepatitis B related shame and improving hepatitis B care in Aboriginal and Torres Strait Islander communities in the Top End of the Northern Territory, according to the Aboriginal health workforce." Archives of Public Health. 82 (1). https://doi.org/10.1186/s13690-024-01389-z
Effectiveness of educational and psychological survivorship interventions to improve health-related quality of life outcomes for men with prostate cancer on androgen deprivation therapy: A systematic review
Sara, Sally AM, Heneka, Nicole, Green, Anna, Chambers, Suzanne K, Dunn, Jeff and Terry, Victoria R. 2024. "Effectiveness of educational and psychological survivorship interventions to improve health-related quality of life outcomes for men with prostate cancer on androgen deprivation therapy: A systematic review." BMJ Open. 14 (5). https://doi.org/10.1136/bmjopen-2023-080310
Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol for a randomised controlled trial of a tele-based nurse-led survivorship care intervention (PCEssentials Hormone Therapy Study)
Green, Anna, Newton, Robert U, Smith, David P, Tuffaha, Haitham, Galvao, Daniel A, Heathcote, Peter, Patel, Manish I, Christie, David, Egger, Sam, Sara, Sally AM, Heneka, Nicole, Chambers, Suzanne K and Dunn, Jeff. 2024. "Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol for a randomised controlled trial of a tele-based nurse-led survivorship care intervention (PCEssentials Hormone Therapy Study)." BMJ Open. 14 (3). https://doi.org/10.1136/bmjopen-2024-084412
Supportive interventions for carers of men with prostate cancer: systematic review and narrative synthesis
Winter, Natalie, Jongebloed, Hannah, Green, Anna, Ugalde, Anna and Livingston, Patricia M. 2024. "Supportive interventions for carers of men with prostate cancer: systematic review and narrative synthesis." BMJ Supportive and Palliative Care. 14 (1), pp. e173-e182. https://doi.org/10.1136/spcare-2022-004034
Attitudes and Perceptions on Advance Care Planning Among Chinese-Speaking Older Australians
Yeoh, Ling H., Tan, Benjamin, Rhee, Joel and Sinclair, Craig. 2024. "Attitudes and Perceptions on Advance Care Planning Among Chinese-Speaking Older Australians." American Journal of Hospice and Palliative Care. 41 (7), pp. 814-823. https://doi.org/10.1177/10499091231200366
Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol of an effectiveness-implementation hybrid (Type 1) randomised trial of a tele-based nurse-led survivorship care intervention (PCEssentials)
Green, Anna, Newton, Robert U, Chambers, Suzanne K, Smith, David P, Tuffaha, Haitham, Galvao, Daniel A, Heathcote, Peter, Patel, Manish I, Christie, David, Egger, Sam, Sara, Sally, Heneka, Nicole and Dunn, Jeff. 2023. "Prostate Cancer Survivorship Essentials for men with prostate cancer on androgen deprivation therapy: protocol of an effectiveness-implementation hybrid (Type 1) randomised trial of a tele-based nurse-led survivorship care intervention (PCEssentials)." ANZUP Annual Scientific Meeting. Melbourne, Australia 09 - 11 Jul 2023
Understanding the gendered experiences of female partners of prostate cancer survivors to inform psychosocial support: a systematic review and thematic synthesis
Green, Anna, Winter, Natalie, DiGiacomo, Michelle, Oliffe, John L., Ralph, Nicholas, Dunn, Jeff and Chambers, Suzanne K.. 2022. "Understanding the gendered experiences of female partners of prostate cancer survivors to inform psychosocial support: a systematic review and thematic synthesis." 2022 IPOS World Congress. Toronto, Canada 29 Aug - 01 Sep 2022 United States.
Experiences of female partners of prostate cancer survivors: A systematic review and thematic synthesis
Green, Anna, Winter, Natalie, DiGiacomo, Michelle, Oliffe, John L., Ralph, Nicholas, Dunn, Jeff and Chambers, Suzanne K.. 2022. "Experiences of female partners of prostate cancer survivors: A systematic review and thematic synthesis." Health and Social Care in the Community. 30 (4), pp. 1213-1232. https://doi.org/10.1111/hsc.13644
Designing Supportive e-Interventions for Partners of Men With Prostate Cancer Using Female Partners’ Experiences: Qualitative Exploration Study
Winter, Natalie, Green, Anna, Jongebloed, Hannah, Ralph, Nicholas, Chambers, Suzanne and Livingston, Patricia. 2022. "Designing Supportive e-Interventions for Partners of Men With Prostate Cancer Using Female Partners’ Experiences: Qualitative Exploration Study." JMIR Cancer. 8 (1), pp. 1-12. https://doi.org/10.2196/31218
Data Caching Optimization in the Edge Computing Environment
Liu, Ying, He, Qiang, Zheng, Dequan, Xia, Xiaoyu, Chen, Feifei and Zhang, Bin. 2022. "Data Caching Optimization in the Edge Computing Environment." IEEE Transactions on Services Computing. 15 (4), pp. 2074-2085. https://doi.org/10.1109/TSC.2020.3032724
Spatial-Temporal Edge User Allocation: An Expectation Confirmation Perspective Approach
Zou, Guobing, Xu, Zhiwei, Xia, Xiaoyu, Liu, Ya, Gan, Yanglan, Zhang, Bofeng, Zhou, Min and He, Qiang. 2022. "Spatial-Temporal Edge User Allocation: An Expectation Confirmation Perspective Approach." IEEE Transactions on Network and Service Management. 19 (4), pp. 4918-4931. https://doi.org/10.1109/TNSM.2022.3193088
Auction-Promoted Trading for Multiple Federated Learning Services in UAV-Aided Networks
Cheng, Zhipeng, Liwang, Minghui, Xia, Xiaoyu, Min, Minghui, Wang, Xianbin and Du, Xiaojiang. 2022. "Auction-Promoted Trading for Multiple Federated Learning Services in UAV-Aided Networks." IEEE Transactions on Vehicular Technology. 71 (10), pp. 10960 - 10974. https://doi.org/10.1109/TVT.2022.3184026
Cost-Effective Edge Server Network Design in Mobile Edge Computing Environment
Luo, Ruikun, Jin, Hai, He, Qiang, Wu, Song and Xia, Xiaoyu. 2022. "Cost-Effective Edge Server Network Design in Mobile Edge Computing Environment." IEEE Transactions on Sustainable Computing. 7 (4), pp. 839-850. https://doi.org/10.1109/TSUSC.2022.3178661
Cost-Effective Data Placement in Edge Storage Systems with Erasure Code
Jin, Hai, Luo, Ruikun, He, Qiang, Wu, Song, Zeng, Zilai and Xia, Xiaoyu. 2022. "Cost-Effective Data Placement in Edge Storage Systems with Erasure Code." IEEE Transactions on Services Computing. 16 (2), pp. 1039-1050. https://doi.org/10.1109/TSC.2022.3152849
Data Caching Optimization With Fairness in Mobile Edge Computing
Zhou, Jingwen, Chen, Feifei, He, Qiang, Xia, Xiaoyu, Wang, Rui and Xiang, Yong. 2023. "Data Caching Optimization With Fairness in Mobile Edge Computing." IEEE Transactions on Services Computing. 16 (3), pp. 1750 - 1762. https://doi.org/10.1109/TSC.2022.3197881
Interference-Aware SaaS User Allocation Game for Edge Computing
Cui, Guangming, He, Qiang, Xia, Xiaoyu, Lai, Phu, Chen, Feifei, Gu, Tao and Yang, Yun. 2022. "Interference-Aware SaaS User Allocation Game for Edge Computing." IEEE Transactions on Cloud Computing. 10 (3), pp. 1888-1899. https://doi.org/10.1109/TCC.2020.3008448
READ: Robustness-Oriented Edge Application Deployment in Edge Computing Environment
Li, Bo, He, Qiang, Cui, Guangming, Xia, Xiaoyu, Chen, Feifei, Jin, Hai and Yang, Yun. 2022. "READ: Robustness-Oriented Edge Application Deployment in Edge Computing Environment." IEEE Transactions on Services Computing. 15 (3), pp. 1746-1759. https://doi.org/10.1109/TSC.2020.3015316
Data, User and Power Allocations for Caching in Multi-Access Edge Computing
Xia, Xiaoyu, Chen, Feifei, He, Qiang, Cui, Guangming, Grundy, John C., Abdelrazek, Mohamed, Xu, Xiaolong and Jin, Hai. 2022. "Data, User and Power Allocations for Caching in Multi-Access Edge Computing." IEEE Transactions on Parallel and Distributed Systems. 33 (5), pp. 1144-1155. https://doi.org/10.1109/TPDS.2021.3104241
Formulating Cost-Effective Data Distribution Strategies Online for Edge Cache Systems
Xia, Xiaoyu, Chen, Feifei, He, Qiang, Grundy, John, Abdelrazek, Mohamed, Shen, Jun, Bouguettaya, Athman and Jin, Hai. 2022. "Formulating Cost-Effective Data Distribution Strategies Online for Edge Cache Systems." IEEE Transactions on Parallel and Distributed Systems. 33 (12), pp. 4270-4281. https://doi.org/10.1109/TPDS.2022.3185250
Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review and theory-based synthesis
Green, Anna, DiGiacomo, Michelle, Luckett, Tim, Abbott, Penelope, Davidson, Patricia Mary, Delaney, Joanne and Delaney, Patricia. 2014. "Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review and theory-based synthesis." International Journal for Equity in Health. 13, pp. 1-16. https://doi.org/10.1186/s12939-014-0126-y
Australian Survey of Current Practice and Guideline Use in Adult Cancer Pain Assessment and Management: Perspectives of Palliative Care Physicians
Lovell, Melanie, Agar, Meera, Luckett, Tim, Davidson, Patricia M., Green, Anna and Clayton, Josephine. 2013. "Australian Survey of Current Practice and Guideline Use in Adult Cancer Pain Assessment and Management: Perspectives of Palliative Care Physicians." Journal of Palliative Medicine. 16 (11), pp. 1403-1409. https://doi.org/10.1089/jpm.2013.0245
Australian survey of current practice and guideline use in adult cancer pain assessment and management: Perspectives of oncologists
Luckett, Tim, Davidson, Patricia Mary, Boyle, Frances, Liauw, Winston, Agar, Meera, Green, Anna and Lovell, Melanie. 2014. "Australian survey of current practice and guideline use in adult cancer pain assessment and management: Perspectives of oncologists." Asia Pacific Journal of Clinical Oncology. 10 (2), pp. e99-e107. https://doi.org/10.1111/ajco.12040
Assessment and Management of Adult Cancer Pain: A Systematic Review and Synthesis of Recent Qualitative Studies Aimed at Developing Insights for Managing Barriers and Optimizing Facilitators Within a Comprehensive Framework of Patient Care
Luckett, Tim, Davidson, Patricia M., Green, Anna, Boyle, Frances, Stubbs, John and Lovell, Melanie. 2013. "Assessment and Management of Adult Cancer Pain: A Systematic Review and Synthesis of Recent Qualitative Studies Aimed at Developing Insights for Managing Barriers and Optimizing Facilitators Within a Comprehensive Framework of Patient Care." Journal of Pain and Symptom Management. 46 (2), pp. 229-253. https://doi.org/10.1016/j.jpainsymman.2012.07.021
Experience of Advanced Chronic Obstructive Pulmonary Disease: Metasynthesis of Qualitative Research
Disler, Rebecca T., Green, Anna, Luckett, Tim, Newton, Phillip J., Inglis, Sally, Currow, David C. and Davidson, Patricia M.. 2014. "Experience of Advanced Chronic Obstructive Pulmonary Disease: Metasynthesis of Qualitative Research." Journal of Pain and Symptom Management. 48 (6), pp. 1182-1199. https://doi.org/10.1016/j.jpainsymman.2014.03.009
Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach
Virdun, Claudia, Brown, Nicola, Phillips, Jane, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia M.. 2015. "Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (4), pp. 421-431. https://doi.org/10.1016/j.colegn.2014.07.001
Elements of effective palliative care models: a rapid review
Luckett, Tim, Phillips, Jane, Agar, Meera, Virdun, Claudia, Green, Anna and Davidson, Patricia M.. 2014. "Elements of effective palliative care models: a rapid review." BMC Health Services Research. 14, pp. 1-22. https://doi.org/10.1186/1472-6963-14-136
Developing a gender-based approach to chronic conditions and women’s health: a qualitative investigation of community-dwelling women and service provider perspectives
DiGiacomo, Michelle, Green, Anna, Rodrigues, Emma, Mulligan, Kathryn and Davidson, Patricia M.. 2015. "Developing a gender-based approach to chronic conditions and women’s health: a qualitative investigation of community-dwelling women and service provider perspectives." BMC Women's Health. 15, pp. 1-11. https://doi.org/10.1186/s12905-015-0264-4
Spiritual and religious interventions in health care: An integrative review
Hosseini, Mohammadali Hosseini, Davidson, Patricia Mary, Khoshknab, Masoud Fallahi and Green, Anna. 2013. "Spiritual and religious interventions in health care: An integrative review." Iranian Rehabilitation Journal. 11 (2), pp. 87-93.
Navigating the journey of Aboriginal childhood disability: a qualitative study of carers' interface with services
Green, Anna, Abbott, Penelope, Delaney, Patricia, Patradoon-Ho, Patrick, Delaney, John, Davidson, Patricia Mary and DiGiacomo, Michelle. 2016. "Navigating the journey of Aboriginal childhood disability: a qualitative study of carers' interface with services." BMC Health Services Research. 16 (1), pp. 1-11. https://doi.org/10.1186/s12913-016-1926-0
A Multicomponent Nonpharmacological Intervention to Prevent Delirium for Hospitalized People with Advanced Cancer: A Phase II Cluster Randomized Waitlist Controlled Trial (The PRESERVE Pilot Study)
Hosie, Annmarie, Phillips, Jane, Lam, Lawrence, Kochovska, Slavica, Noble, Beverly, Brassil, Meg, Kurrle, Susan, Cumming, Anne, Caplan, Gideon A., Chye, Richard, Ely, Eugene Wesley, Lawlor, Peter G., Bush, Shirley H., Davis, Jan Maree, Lovell, Melanie, Parr, Cynthia, Williams, Sally, Hauser, Katherine, McArdle, Susan, ..., Agar, Meera. 2020. "A Multicomponent Nonpharmacological Intervention to Prevent Delirium for Hospitalized People with Advanced Cancer: A Phase II Cluster Randomized Waitlist Controlled Trial (The PRESERVE Pilot Study)." Journal of Palliative Medicine. 23 (10), pp. 1314-1322. https://doi.org/10.1089/jpm.2019.0632
Interacting With Providers: An Intersectional Exploration of the Experiences of Carers of Aboriginal Children With a Disability
Green, Anna, Abbott, Penelope, Davidson, Patricia Mary, Delaney, Patricia, Delaney, John, Patradoon-Ho, Patrick and DiGiacomo, Michelle. 2018. "Interacting With Providers: An Intersectional Exploration of the Experiences of Carers of Aboriginal Children With a Disability." Qualitative Health Research. 28 (12), pp. 1923-1932. https://doi.org/10.1177/1049732318793416
Health and Socio-Cultural Experiences of Refugee Women: An Integrative Review
Shishehgar, Sara, Gholizadeh, Leila, DiGiacomo, Michelle, Green, Anna and Davidson, Patricia M.. 2017. "Health and Socio-Cultural Experiences of Refugee Women: An Integrative Review." Journal of Immigrant and Minority Health. 19 (4), pp. 959-973. https://doi.org/10.1007/s10903-016-0379-1
A framework for an asset-informed approach to service mapping
Green, Anna, Luckett, Tim, Abbott, Penelope, DiGiacomo, Michelle, Delaney, John, Delaney, Patricia and Davidson, Patricia Mary. 2017. "A framework for an asset-informed approach to service mapping." Nurse Researcher. 25 (3), pp. 19-25. https://doi.org/10.7748/nr.2017.e1479
Experiences and needs of carers of Aboriginal children with a disability: a qualitative study
DiGiacomo, Michelle, Green, Anna, Delaney, Patricia, Delaney, John, Patradoon-Ho, Patrick, Davidson, Patricia Mary and Abbott, Penelope. 2017. "Experiences and needs of carers of Aboriginal children with a disability: a qualitative study." BMC Family Practice. 18 (1), pp. 1-11. https://doi.org/10.1186/s12875-017-0668-3
Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care
Luckett, Tim, Davidson, Patricia M., Green, Anna, Marie, Natalie, Birch, Mary-Rose, Stubbs, John, Phillips, Jane, Agar, Meera, Boyle, Frances and Lovell, Melanie. 2019. "Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care." Palliative and Supportive Care. 17 (4), pp. 472-478. https://doi.org/10.1017/S1478951518000792
‘Death is difficult in any language’: A qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds
Green, Anna, Jerzmanowska, Natalia, Green, Marguerite and Lobb, Elizabeth A.. 2018. "‘Death is difficult in any language’: A qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds." Palliative Medicine. 32 (8), pp. 1419-1427. https://doi.org/10.1177/0269216318776850
Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life
Green, Anna, Jerzmanowska, Natalie, Thristiawati, Safrina, Green, Marguerite and Lobb, Elizabeth A.. 2019. "Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life." Palliative and Supportive Care. 17 (2), pp. 227-233. https://doi.org/10.1017/S1478951518000147
Prostate cancer survivorship essentials framework: guidelines for practitioners
Dunn, Jeff, Green, Anna, Ralph, Nicholas, Newton, Robert U., Kneebone, Andrew, Frydenberg, Mark and Chambers, Suzanne K.. 2021. "Prostate cancer survivorship essentials framework: guidelines for practitioners." BJU International. 128 (S3), pp. 18-29. https://doi.org/10.1111/bju.15159
Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families: a qualitative study of provider perspectives
Green, Anna, Abbott, Penelope, Luckett, Tim, Davidson, Patricia Mary, Delaney, John, Delaney, Patricia, Gunasekera, Hasantha and DiGiacomo, Michelle. 2020. "Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families: a qualitative study of provider perspectives." Journal of Interprofessional Care. 34 (3), pp. 388-399. https://doi.org/10.1080/13561820.2019.1692798
Unmet Needs in Chronic Obstructive Pulmonary Disease: A Metasynthesis Protocol
Disler, Rebecca T., Green, Anna, Luckett, Tim, Newton, Phillip J., Inglis, Sally C., Currow, David C. and Davidson, Patricia M.. 2012. "Unmet Needs in Chronic Obstructive Pulmonary Disease: A Metasynthesis Protocol." International Journal of Research in Nursing. 3 (1), pp. 15-20. https://doi.org/10.3844/ijrnsp.2012.15.20
'It’s quite a complex trail for families now'– Provider understanding of access to services for Aboriginal children with a disability
Green, Anna, Abbott, Penelope, Luckett, Tim, Davidson, Patricia Mary, Delaney, John, Delaney, Patricia, Gunasekera, Hasantha and DiGiacomo, Michelle. 2021. "'It’s quite a complex trail for families now'– Provider understanding of access to services for Aboriginal children with a disability." Journal of Child Health Care. 25 (2), pp. 194-211. https://doi.org/10.1177/1367493520919305
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis
Disalvo, Domenica, Agar, Meera, Caplan, Gideon, Murtagh, Fliss EM, Luckett, Tim, Heneka, Nicole, Hickman, Louise, Kinchin, Irina, Trethewie, Susan, Sheehan, Caitlin, Urban, Kat, Cohen, Joshua, Harlum, Janeane, Long, Brian, Parker, Tricia, Schaefer, Isabelle and Phillips, Jane. 2021. "Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis." Palliative Medicine. 35 (8), pp. 1385-1406. https://doi.org/10.1177/02692163211024451
Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan
Schaefer, Isabelle, Heneka, Nicole, Luckett, Tim, Agar, Meera R., Chambers, Suzanne K., Currow, David C., Halkett, Georgia, Disalvo, Domenica, Amgarth-Duff, Ingrid, Anderiesz, Cleola and Phillips, Jane L.. 2021. "Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan." BMC Palliative Care. 20 (1), pp. 1-11. https://doi.org/10.1186/s12904-021-00715-4
Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices
Dunn, Jeff, Ralph, Nicholas, Green, Anna, Frydenberg, Mark and Chambers, Suzanne. 2020. "Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 29 (3), pp. 557-563. https://doi.org/10.1002/pon.5306
Prostate cancer survivorship priorities for men and their partners: Delphi consensus from a nurse specialist cohort
Ralph, Nicholas, Green, Anna, Sara, Sally, McDonald, Suzanne, Norris, Philip, Terry, Victoria, Dunn, Jeffrey C. and Chambers, Suzanne K.. 2020. "Prostate cancer survivorship priorities for men and their partners: Delphi consensus from a nurse specialist cohort." Journal of Clinical Nursing. 29 (1-2), pp. 265-273. https://doi.org/10.1111/jocn.15096
A psychosocial care model for men with prostate cancer
Chambers, Suzanne K., Galvao, Daniel A., Green, Anna, Lazenby, Mark, Newton, Robert U., Oliffe, John L., Phillips, Jane L., Phillips, Rachel, Ralph, Nicholas, Sara, Sally, Heathcote, Peter and Dunn, Jeff. 2019. A psychosocial care model for men with prostate cancer. Sydney, Australia. Prostate Cancer Foundation of Australia.
Translating training in the NYU caregiver intervention in Australia: maintaining fidelity and meeting graduate standards in an online continuing professional education setting
Scott, Theresa, Mittelman, Mary, Beattie, Elizabeth, Parker, Deborah and Neville, Christine. 2015. "Translating training in the NYU caregiver intervention in Australia: maintaining fidelity and meeting graduate standards in an online continuing professional education setting." Educational Gerontology: an international journal. 41 (10), pp. 710-722. https://doi.org/10.1080/03601277.2015.1048171
Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service
Phillips, Jane L., Lobb, Elizabeth, Mohacsi, Paula, Heneka, Nicole and Currow, David. 2018. "Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 25 (1), pp. 39-43. https://doi.org/10.1016/j.colegn.2017.03.004
Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective
Phillips, Jane L., Lovell, Melanie, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia. 2015. "Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (1), pp. 33-41. https://doi.org/10.1016/j.colegn.2013.11.002
I love nursing, but.. - qualitative findings from Australian aged-care nurses about their intrinsic, extrinsic and social work values
Tuckett, Anthony, Parker, Deborah, Eley, Robert and Hegney, Desley. 2009. "I love nursing, but.. - qualitative findings from Australian aged-care nurses about their intrinsic, extrinsic and social work values." International Journal of Older People Nursing. 4 (4), pp. 307-317. https://doi.org/10.1111/j.1748-3743.2009.00184.x
Regional differences among employed nurses: a Queensland study
Henwood, Tim, Eley, Robert, Parker, Deborah, Tuckett, Anthony and Hegney, Desley. 2009. "Regional differences among employed nurses: a Queensland study." Australian Journal of Rural Health. 17 (4), pp. 201-207. https://doi.org/10.1111/j.1440-1584.2009.01072.x
The top eight issues Queensland Australia's aged-care nurses and assistants-in-nursing worried about outside their workplace: a qualitative snapshot
Tuckett, Anthony, Hegney, Desley, Parker, Deborah, Eley, Robert M. and Dickie, Robyn. 2011. "The top eight issues Queensland Australia's aged-care nurses and assistants-in-nursing worried about outside their workplace: a qualitative snapshot." International Journal of Nursing Practice. 17 (5), pp. 444-454. https://doi.org/10.1111/j.1440-172X.2011.01966.x
Construct validity and reliability of the practice environment scale of the nursing work index for Queensland nurses
Parker, Deborah, Tuckett, Anthony, Eley, Robert and Hegney, Desley. 2010. "Construct validity and reliability of the practice environment scale of the nursing work index for Queensland nurses." International Journal of Nursing Practice. 16 (4), pp. 352-358. https://doi.org/10.1111/j.1440-172X.2010.01851.x
Workplace violence: differences in perceptions of nursing work between those exposed and those not exposed: a cross-sector analysis
Hegney, Desley, Tuckett, Anthony, Parker, Deborah and Eley, Robert. 2010. "Workplace violence: differences in perceptions of nursing work between those exposed and those not exposed: a cross-sector analysis ." International Journal of Nursing Practice. 16 (2), pp. 188-202. https://doi.org/10.1111/j.1440-172X.2010.01829.x
Access to and support for continuing professional education amongst Queensland nurses: 2004 and 2007
Hegney, Desley, Tuckett, Anthony, Parker, Deborah and Eley, Robert. 2010. "Access to and support for continuing professional education amongst Queensland nurses: 2004 and 2007." Nurse Education Today. 30 (2), pp. 142-149. https://doi.org/10.1016/j.nedt.2009.06.015
Career breaks and intentions for retirement by Queensland's nurses - a sign of the times?
Eley, Robert, Parker, Deborah, Tuckett, Anthony and Hegney, Desley. 2010. "Career breaks and intentions for retirement by Queensland's nurses - a sign of the times? " Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 17 (1), pp. 38-42. https://doi.org/10.1016/j.colegn.2009.10.004