Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan

Article

Schaefer, Isabelle, Heneka, Nicole, Luckett, Tim, Agar, Meera R., Chambers, Suzanne K., Currow, David C., Halkett, Georgia, Disalvo, Domenica, Amgarth-Duff, Ingrid, Anderiesz, Cleola and Phillips, Jane L.. 2021. "Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan." BMC Palliative Care. 20 (1), pp. 1-11. https://doi.org/10.1186/s12904-021-00715-4
Article Title

Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan

ERA Journal ID40848
Article CategoryArticle
AuthorsSchaefer, Isabelle, Heneka, Nicole, Luckett, Tim, Agar, Meera R., Chambers, Suzanne K., Currow, David C., Halkett, Georgia, Disalvo, Domenica, Amgarth-Duff, Ingrid, Anderiesz, Cleola and Phillips, Jane L.
Journal TitleBMC Palliative Care
Journal Citation20 (1), pp. 1-11
Article Number22
Number of Pages11
Year23 Jan 2021
PublisherBioMed Central Ltd.
Place of PublicationUnited Kingdom
ISSN1472-684X
Digital Object Identifier (DOI)https://doi.org/10.1186/s12904-021-00715-4
Web Address (URL)https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-021-00715-4
Abstract

Background: A primary brain cancer diagnosis is a distressing, life changing event. It adversely affects the quality of life for the person living with brain cancer and their families (‘carers’). Timely access to evidence-based information is critical to enabling people living with brain cancer, and their carers, to self-manage the devastating impacts of this disease.

Method: A systematic environmental scan of web-based resources. A depersonalised search for online English-language resources published from 2009 to December 2019 and designed for adults (> 25 years of age), living with primary brain cancer, was undertaken using the Google search engine. The online information was classified according to: 1) the step on the cancer care continuum; 2) self-management domains (PRISMS taxonomy); 3) basic information disclosure (Silberg criteria); 4) independent quality verification (HonCode); 5) reliability of disease and treatment information (DISCERN Sections 1 and 2); and readability (Flesch-Kincaid reading grade).

Results: A total of 119 online resources were identified, most originating in England (n = 49); Australia (n = 27); or the USA (n = 27). The majority of resources related to active treatment (n = 76), without addressing recurrence (n = 3), survivorship (n = 1) or palliative care needs (n = 13). Few online resources directly provided self-management advice for adults living with brain cancer or their carers. Just over a fifth (n = 26, 22%) were underpinned by verifiable evidence. Only one quarter of organisations producing resources were HonCode certified (n = 9, 24%). The median resource reliability as measured by Section 1, DISCERN tool, was 56%. A median of 8.8 years of education was required to understand these online resources.

Conclusions: More targeted online information is needed to provide people affected by brain cancer with practical self-management advice. Resources need to better address patient and carer needs related to: rehabilitation, managing behavioural changes, survivorship and living with uncertainty; recurrence; and transition to palliative care. Developing online resources that don’t require a high level of literacy and/or cognition are also required.

KeywordsBrain neoplasms; Consumer health information; Self-management; Cancer; Online
ANZSRC Field of Research 2020321199. Oncology and carcinogenesis not elsewhere classified
Byline AffiliationsUniversity of Technology Sydney
Curtin University
Cancer Australia
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Advanced prostate cancer experimental radioactive treatment—clinical trial decision making: patient experiences
Viljoen, Bianca, Hofman, Michael S., Chambers, Suzanne K., Dunn, Jeff, Dhillon, Haryana, Davis, Ian D. and Ralph, Nicholas. 2021. "Advanced prostate cancer experimental radioactive treatment—clinical trial decision making: patient experiences." BMJ Supportive and Palliative Care. https://doi.org/10.1136/bmjspcare-2021-002994
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis
Disalvo, Domenica, Agar, Meera, Caplan, Gideon, Murtagh, Fliss EM, Luckett, Tim, Heneka, Nicole, Hickman, Louise, Kinchin, Irina, Trethewie, Susan, Sheehan, Caitlin, Urban, Kat, Cohen, Joshua, Harlum, Janeane, Long, Brian, Parker, Tricia, Schaefer, Isabelle and Phillips, Jane. 2021. "Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis." Palliative Medicine. 35 (8), pp. 1385-1406. https://doi.org/10.1177/02692163211024451
Are National Cancer Control Indicators for patient experiences being met in regional and remote Australia? A cross-sectional study of cancer survivors who travelled for treatment
Dunn, Jeff, Goodwin, Belinda, Aitken, Joanne F., March, Sonja, Crawford-Williams, Fiona, Ireland, Michael, Ralph, Nicholas, Zajdlewicz, Leah, Rowe, Arlen and Chambers, Suzanne. 2021. "Are National Cancer Control Indicators for patient experiences being met in regional and remote Australia? A cross-sectional study of cancer survivors who travelled for treatment." BMJ Open. 11 (2), pp. 1-10. https://doi.org/10.1136/bmjopen-2020-042507
Cancer-related help seeking in cancer survivors living in regional and remote Australia
Goodwin, Belinda C., Chambers, Suzanne, Aitken, Joanne, Ralph, Nicholas, March, Sonja, Ireland, Michael, Rowe, Arlen, Crawford-Williams, Fiona, Zajdlewicz, Leah and Dunn, Jeff. 2021. "Cancer-related help seeking in cancer survivors living in regional and remote Australia." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 30 (7), pp. 1068-1076. https://doi.org/10.1002/pon.5643
Deciding to enrol in a cancer trial: a systematic review of qualitative studies
Viljoen, Bianca, Chambers, Suzanne, Dunn, Jeff, Ralph, Nicholas and March, Sonja. 2020. "Deciding to enrol in a cancer trial: a systematic review of qualitative studies." Journal of Multidisciplinary Healthcare. 13, pp. 1257-1281. https://doi.org/10.2147/JMDH.S266281
A scoping review of the characteristics and benefits of online prostate cancer communities
Pyle, Denise, Perry, Amanda, Lamont-Mills, Andrea, Tehan, Gerry and Chambers, Suzanne K.. 2021. "A scoping review of the characteristics and benefits of online prostate cancer communities." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 30 (5), pp. 659-668. https://doi.org/10.1002/pon.5618
The Health Professionals Guide to Delivering Psychological Care for Men with Prostate Cancer
Chambers, Suzanne K, Heneka, Nicole and Dunn, Jeff. 2021. The Health Professionals Guide to Delivering Psychological Care for Men with Prostate Cancer. Australia. Australian Academic Press.
Prostate cancer survivorship care: if not now, when?
Dunn Jeffrey, Heathcote, Peter and Chambers, Suzanne K.. 2021. "Prostate cancer survivorship care: if not now, when?" BJU International. 127 (S1), pp. 30-31. https://doi.org/10.1111/bju.15358
Nurse-led supportive care intervention for men with advanced prostate cancer: healthcare professionals' perspectives
Ralph, Nicholas, Chambers, Suzanne, Laurie, Kirstyn, Oliffe, John, Lazenby, Mark and Dunn, Jeffrey. 2020. "Nurse-led supportive care intervention for men with advanced prostate cancer: healthcare professionals' perspectives." Oncology Nursing Forum. 47 (1), pp. 33-43. https://doi.org/10.1188/20.ONF.33-43
Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices
Dunn, Jeff, Ralph, Nicholas, Green, Anna, Frydenberg, Mark and Chambers, Suzanne. 2020. "Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 29 (3), pp. 557-563. https://doi.org/10.1002/pon.5306
Geographical Disparities in Screening and Cancer-Related Health Behaviour
Goodwin, Belinda C., Rowe, Arlen K., Crawford-Williams, Fiona, Baade, Peter, Chambers, Suzanne K., Ralph, Nicholas and Aitken, Joanne F.. 2020. "Geographical Disparities in Screening and Cancer-Related Health Behaviour." International Journal of Environmental Research and Public Health. 17 (4), pp. 1-12. https://doi.org/10.3390/ijerph17041246
Mitigating opioid errors in inpatient palliative care: A qualitative study
Heneka, Nicole, Bhattarai, Priyanka, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2020. "Mitigating opioid errors in inpatient palliative care: A qualitative study." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 27 (3), pp. 304-312. https://doi.org/10.1016/j.colegn.2019.09.005
Prostate cancer survivorship priorities for men and their partners: Delphi consensus from a nurse specialist cohort
Ralph, Nicholas, Green, Anna, Sara, Sally, McDonald, Suzanne, Norris, Philip, Terry, Victoria, Dunn, Jeffrey C. and Chambers, Suzanne K.. 2020. "Prostate cancer survivorship priorities for men and their partners: Delphi consensus from a nurse specialist cohort." Journal of Clinical Nursing. 29 (1-2), pp. 265-273. https://doi.org/10.1111/jocn.15096
A psychosocial care model for men with prostate cancer
Chambers, Suzanne K., Galvao, Daniel A., Green, Anna, Lazenby, Mark, Newton, Robert U., Oliffe, John L., Phillips, Jane L., Phillips, Rachel, Ralph, Nicholas, Sara, Sally, Heathcote, Peter and Dunn, Jeff. 2019. A psychosocial care model for men with prostate cancer. Sydney, Australia. Prostate Cancer Foundation of Australia.
Risk of opioid misuse in people with cancer and pain and related clinical considerations: a qualitative study of the perspectives of Australian general practitioners
Luckett, Tim, Newton-John, Toby, Phillips, Jane, Holliday, Simon, Giannitrapani, Karleen, Powell-Davies, Gawaine, Lovell, Melanie, Liauw, Winston, Rowett, Debra, Pearson, Sallie-Anne, Raymond, Bronwyn, Heneka, Nicole and Lorenz, Karl. 2020. "Risk of opioid misuse in people with cancer and pain and related clinical considerations: a qualitative study of the perspectives of Australian general practitioners." BMJ Open. 10 (2), pp. 1-11. https://doi.org/10.1136/bmjopen-2019-034363
Geographic variations in stage at diagnosis and survival for colorectal cancer in Australia: a systematic review
Crawford-Williams, Fiona, March, Sonja, Goodwin, Belinda C., Ireland, Michael J., Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2019. "Geographic variations in stage at diagnosis and survival for colorectal cancer in Australia: a systematic review." European Journal of Cancer Care. 28 (3), pp. 1-16. https://doi.org/10.1111/ecc.13072
Ten-year quality of life outcomes in men with prostate cancer
Ralph, Nicholas, Ng, Shu Kay, Zajdlewicz, Leah, Lepore, Stephen J., Heathcote, Peter, Kneebone, Andrew, Dunn, Jeffrey C. and Chambers, Suzanne K.. 2020. "Ten-year quality of life outcomes in men with prostate cancer." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 29 (2), pp. 444-449. https://doi.org/10.1002/pon.5255
The role of masculinities in psychological and emotional help seeking by men with prostate cancer
Goodwin, Belinda C., Ralph, Nicholas, Ireland, Michael J., Hyde, Melissa K., Oliffe, John L., Dunn, Jeff and Chambers, Suzanne. 2020. "The role of masculinities in psychological and emotional help seeking by men with prostate cancer." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 29 (2), pp. 356-363. https://doi.org/10.1002/pon.5264
Strategies for increasing participation in mail-out colorectal cancer screening programs: a systematic review and meta-analysis
Goodwin, Belinda C., Ireland, Michael J., March, Sonja, Myers, Larry, Crawford-Williams, Fiona, Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2019. "Strategies for increasing participation in mail-out colorectal cancer screening programs: a systematic review and meta-analysis." Systematic Reviews. 8 (1), pp. 1-11. https://doi.org/10.1186/s13643-019-1170-x
Five‐year outcomes from a randomised controlled trial of a couples‐based intervention for men with localised prostate cancer
Chambers, Suzanne K., Occhipinti, Stefano, Stiller, Anna, Zajdlewicz, Leah, Nielsen, Lisa, Wittman, Daniela, Oliffe, John L., Ralph, Nicholas and Dunn, Jeff. 2019. "Five‐year outcomes from a randomised controlled trial of a couples‐based intervention for men with localised prostate cancer." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 28 (4), pp. 775-783. https://doi.org/10.1002/pon.5019
'I’m not doing that.' An in-depth examination of nonparticipation in mail-out bowel cancer screening programs
Goodwin, Belinda C., March, Sonja, Crawford-Williams, Fiona, Chambers, Suzanne K. and Dunn, Jeff. 2020. "'I’m not doing that.' An in-depth examination of nonparticipation in mail-out bowel cancer screening programs." Translational Behavioral Medicine. 10 (6), pp. 1515-1524. https://doi.org/10.1093/tbm/ibz096
Effectiveness of the spaced education pedagogy for clinicians’ continuing professional development: a systematic review
Phillips, Jane L, Heneka, Nicole, Bhattarai, Priyanka, Fraser, Claire and Shaw, Tim. 2019. "Effectiveness of the spaced education pedagogy for clinicians’ continuing professional development: a systematic review." Medical Education. 53 (9), pp. 886-902. https://doi.org/10.1111/medu.13895
Geographical variations in prostate cancer outcomes: a systematic review of international evidence
Dasgupta, Paramita, Baade, Peter, Aitken, Joanne, Ralph, Nicholas, Chambers, Suzanne Kathleen and Dunn, Jeff. 2019. "Geographical variations in prostate cancer outcomes: a systematic review of international evidence." Frontiers in Oncology. 9 (238), pp. 1-35. https://doi.org/10.3389/fonc.2019.00238
Nurse-led supportive care intervention for men with advanced prostate cancer
Ralph, Nicholas, Chambers, Suzanne, Pomery, Amanda, Oliffe, John and Dunn, Jeff. 2019. "Nurse-led supportive care intervention for men with advanced prostate cancer." Oncology Nursing Forum. 46 (1), pp. 92-103. https://doi.org/10.1188/19.ONF.92-103
Clinicians’ perceptions of opioid error–contributing factors in inpatient palliative care services: A qualitative study
Heneka, Nicole, Bhattarai, Priyanka, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2019. "Clinicians’ perceptions of opioid error–contributing factors in inpatient palliative care services: A qualitative study." Palliative Medicine. 33 (4), pp. 430-444. https://doi.org/10.1177/0269216319832799
Geographic disparities in previously diagnosed health conditions in colorectal cancer patients are largely explained by age and area level disadvantage
Goodwin, Belinda C., March, Sonja, Ireland, Michael J., Crawford-Williams, Fiona, Ng, Shu-Kay, Baade, Peter D., Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2018. "Geographic disparities in previously diagnosed health conditions in colorectal cancer patients are largely explained by age and area level disadvantage." Frontiers in Oncology. 8, pp. 1-10. https://doi.org/10.3389/fonc.2018.00372
A phase III wait-listed randomised controlled trial of novel targeted interprofessional clinical education intervention to improve cancer patients’ reported pain outcomes (The Cancer Pain Assessment (CPAS) Trial): study protocol
Phillips, Jane L., Heneka, Nicole, Lovell, Melanie, Lam, Lawrence, Davidson, Patricia, Boyle, Frances, McCaffrey, Nikki, Fielding, Sally and Shaw, Tim. 2019. "A phase III wait-listed randomised controlled trial of novel targeted interprofessional clinical education intervention to improve cancer patients’ reported pain outcomes (The Cancer Pain Assessment (CPAS) Trial): study protocol." Trials. 20. https://doi.org/10.1186/s13063-018-3152-z
Health literacy and the health status of men with prostate cancer
Goodwin, Belinda C., March, Sonja, Zajdlewicz, Leah, Osborne, Richard H., Dunn, Jeff and Chambers, Suzanne K.. 2018. "Health literacy and the health status of men with prostate cancer." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 27 (10), pp. 2374-2381. https://doi.org/10.1002/pon.4834
Interventions for prostate cancer survivorship: a systematic review of reviews
Crawford-Williams, Fiona, March, Sonja, Goodwin, Belinda C., Ralph, Nicholas, Galvao, Daniel A., Newton, Robert U., Chambers, Suzanne K. and Dunn, Jeff. 2018. "Interventions for prostate cancer survivorship: a systematic review of reviews." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 27 (10), pp. 2339-2348. https://doi.org/10.1002/pon.4888
Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise and Lam, Lawrence. 2018. "Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study." Pain Management Nursing. 19 (6), pp. 619-626. https://doi.org/10.1016/j.pmn.2018.07.008
Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report
Heneka, N., Shaw, T., Azzi, C. and Phillips, J. L.. 2018. "Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report." Supportive Care in Cancer. 26 (10), pp. 3315-3318. https://doi.org/10.1007/s00520-018-4231-0
Geographical Variations in the Clinical Management of Colorectal Cancer in Australia: A Systematic Review
Crawford-Williams, Fiona, March, Sonja, Ireland, Michael J., Rowe, Arlen, Goodwin, Belinda, Hyde, Melissa K., Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2018. "Geographical Variations in the Clinical Management of Colorectal Cancer in Australia: A Systematic Review." Frontiers in Oncology. 8, pp. 1-10. https://doi.org/10.3389/fonc.2018.00116
Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis." Journal of Palliative Medicine. 21 (6), pp. 825-835. https://doi.org/10.1089/jpm.2017.0578
Opioid errors in inpatient palliative care services: a retrospective review
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Opioid errors in inpatient palliative care services: a retrospective review." BMJ Supportive and Palliative Care. 8 (2), pp. 175-179. https://doi.org/10.1136/bmjspcare-2017-001417
Cancer care in regional Australia from the health professional's perspective
Crawford-Williams, Fiona, Goodwin, Belinda, March, Sonja, Ireland, Michael J., Hyde, Melissa K., Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2018. "Cancer care in regional Australia from the health professional's perspective." Supportive Care in Cancer. 26 (10), pp. 3507-3515. https://doi.org/10.1007/s00520-018-4218-x
Needy or resilient? how women with breast cancer think about peer support
Legg, Melissa, Occhipinti, Stefano, Youl, Philippa, Dunn, Jeff and Chambers, Suzanne K.. 2017. "Needy or resilient? how women with breast cancer think about peer support." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 26 (12), pp. 2307-2310. https://doi.org/10.1002/pon.4401
Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service
Phillips, Jane L., Lobb, Elizabeth, Mohacsi, Paula, Heneka, Nicole and Currow, David. 2018. "Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 25 (1), pp. 39-43. https://doi.org/10.1016/j.colegn.2017.03.004
Socio-demographic factors drive regional differences in participation in the National Bowel Cancer Screening Program – An ecological analysis
Sun, Jiandong, March, Sonja, Ireland, Michael J., Crawford-Williams, Fiona, Goodwin, Belinda, Hyde, Melissa K., Chambers, Suzanne K., Aitken, Joanne F. and Dunn, Jeff. 2018. "Socio-demographic factors drive regional differences in participation in the National Bowel Cancer Screening Program – An ecological analysis." Australian and New Zealand Journal of Public Health. 42 (1), pp. 92-97. https://doi.org/10.1111/1753-6405.12722
A systematic review of geographical differences in management and outcomes for colorectal cancer in Australia
Ireland, Michael J., March, Sonja, Crawford-Williams, Fiona, Cassimatis, Mandy, Aitken, Joanne F., Hyde, Melissa K., Chambers, Suzanne K., Sun, Jiandong and Dunn, Jeff. 2017. "A systematic review of geographical differences in management and outcomes for colorectal cancer in Australia." BMC Cancer. 17 (1). https://doi.org/10.1186/s12885-017-3067-1
Web-delivered cognitive behavioral therapy for distressed cancer patients: Randomized controlled trial
Chambers, Suzanne K, Ritterband, Lee M, Thorndike, Frances, Nielsen, Lisa, Aitken, Joanne F, Clutton, Samantha, Scuffham, Paul A, Youl, Philippa, Moreton, Bronwyn, Baade, Peter D and Dunn Jeff. 2018. "Web-delivered cognitive behavioral therapy for distressed cancer patients: Randomized controlled trial." Journal of Medical Internet Research. 20 (1). https://doi.org/10.2196/jmir.8850
When peer support may be most beneficial: the relationship between upward comparison and perceived threat
Legg, Melissa, Occhipinti, S., Ferguson, M., Dunn, J. and Chambers, S. K.. 2011. "When peer support may be most beneficial: the relationship between upward comparison and perceived threat." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 20 (12), pp. 1358-1362. https://doi.org/10.1002/pon.1862
Survivor identity after colorectal cancer: Antecedents, prevalence and outcomes
Chambers, Suzanne K., Baade, Peter, Meng, Xingqiong, Youl, Pip, Aitken, Joanne and Dunn, Jeff. 2012. "Survivor identity after colorectal cancer: Antecedents, prevalence and outcomes." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 21 (9), pp. 962-969. https://doi.org/10.1002/pon.1991
ProsCan for couples: a feasibility study for evaluating peer support within a controlled research design
Chambers, Suzanne K., Schover, Leslie, Halford, Kim, Ferguson, Megan, Gardiner, R. A., Occhipinti, Stefano and Dunn, Jeff. 2011. "ProsCan for couples: a feasibility study for evaluating peer support within a controlled research design." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 22 (2), pp. 475-479. https://doi.org/10.1002/pon.2110
Trajectories of psychological distress after colorectal cancer
Dunn, Jeff, Ng, Shu Kay, Holland, Jimmie, Aitken, Joanne, Youl, Pip, Baade, Peter D. and Chambers, Suzanne K.. 2013. "Trajectories of psychological distress after colorectal cancer." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 22 (8), pp. 1759-1765. https://doi.org/10.1002/pon.3210
A randomized trial comparing two low-intensity psychological interventions for distressed patients with cancer and their caregivers
Chambers, Suzanne Kathleen, Girgis, Araf, Occhipinti, Stefano, Hutchison, Sandy, Turner, Jane, McDowell, Michelle, Mihalopoulos, Cathrine, Carter, Robert and Dunn, Jeffrey Charles. 2014. "A randomized trial comparing two low-intensity psychological interventions for distressed patients with cancer and their caregivers." Oncology Nursing Forum. 41 (4), pp. E256-E266. https://doi.org/10.1188/14.ONF.E256-E266
The validity of the distress thermometer in prostate cancer populations
Chambers, Suzanne K., Zajdlewicz, Leah, Youlden, Danny R., Holland, Jimmie C. and Dunn, Jeff. 2014. "The validity of the distress thermometer in prostate cancer populations." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 23 (2), pp. 195-203. https://doi.org/10.1002/pon.3391
A randomised controlled trial of a couples-based sexuality intervention for men with localised prostate cancer and their female partners
Chambers, Suzanne K., Occhipinti, Stefano, Schover, Leslie, Nielsen, Lisa, Zajdlewicz, Leah, Clutton, Samantha, Halford, Kim, Gardiner, Robert A. and Dunn, Jeff. 2015. "A randomised controlled trial of a couples-based sexuality intervention for men with localised prostate cancer and their female partners." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 24 (7), pp. 748-756. https://doi.org/10.1002/pon.3726
Psychological distress and quality of life in lung cancer: The role of health-related stigma, illness appraisals and social constraints
Chambers, Suzanne K., Baade, Peter, Youl, Philippa, Aitken, Joanne, Occhipinti, Stefano, Vinod, Shalini, Valery, Patricia C., Garvey, Gail, Fong, Kwun M., Ball, David, Zorbas, Helen, Dunn, Jeff and O'Connell, Dianne L.. 2015. "Psychological distress and quality of life in lung cancer: The role of health-related stigma, illness appraisals and social constraints." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 24 (11), pp. 1569-1577. https://doi.org/10.1002/pon.3829
Economic evaluation of a psychological intervention for high distress cancer patients and carers: costs and quality-adjusted life years
Chatterton, Mary Lou, Chambers, Suzanne, Occhipinti, Stefano, Girgis, Afaf, Dunn, Jeffrey, Carter, Rob, Shih, Sophy and Mihalopoulos, Cathrine. 2016. "Economic evaluation of a psychological intervention for high distress cancer patients and carers: costs and quality-adjusted life years." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 25 (7), pp. 857-864. https://doi.org/10.1002/pon.4020
Barriers to lung cancer care: health professionals’ perspectives
Dunn, J., Garvey, G., Valery, P. C., Ball, D., Fong, K. M., Vinod, S., O’Connell, D. L. and Chambers, S. K.. 2017. "Barriers to lung cancer care: health professionals’ perspectives." Supportive Care in Cancer. 25 (2), pp. 497-504. https://doi.org/10.1007/s00520-016-3428-3
Geographic disparities in prostate cancer outcomes - review of international patterns
Baade, Peter D., Yu, Xue Qin, Smith, David P., Dunn, Jeff and Chambers, Suzanne K.. 2015. "Geographic disparities in prostate cancer outcomes - review of international patterns." Asian Pacific Journal of Cancer Prevention (APJCP). 16 (3), pp. 1259-1275. https://doi.org/10.7314/APJCP.2015.16.3.1259
The impact of rurality and disadvantage on the diagnostic interval for breast cancer in a large population-based study of 3202 women in Queensland, Australia
Youl, Philippa H., Aitken, Joanne F., Turrell, Gavin, Chambers, Suzanne K., Dunn, Jeffrey, Pyke, Christopher and Baade, Peter D.. 2016. "The impact of rurality and disadvantage on the diagnostic interval for breast cancer in a large population-based study of 3202 women in Queensland, Australia." International Journal of Environmental Research and Public Health. 13 (11). https://doi.org/10.3390/ijerph13111156
Survivor identity and post-traumatic growth after participating in challenge-based peer-support programmes
Morris, Bronwyn A., Campbell, Meredith, Dwyer, Megan, Dunn, Jeffrey and Chambers, Suzanne K.. 2011. "Survivor identity and post-traumatic growth after participating in challenge-based peer-support programmes." British Journal of Health Psychology. 16 (3), pp. 660-674. https://doi.org/10.1348/2044-8287.002004
Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines
Chambers, S. K., Girgis, A., Occhipinti, S., Hutchison, S., Turner, J., Morris, B. and Dunn, J.. 2012. "Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer helplines." European Journal of Cancer Care. 21 (2), pp. 213-223. https://doi.org/10.1111/j.1365-2354.2011.01288.x
Health-related quality of life and life satisfaction in colorectal cancer survivors: trajectories of adjustment
Dunn, Jeff, Ng, Shu Kay, Breitbart, William, Aitken, Joanne, Youl, Pip, Baade, Peter D. and Chambers, Suzanne K.. 2013. "Health-related quality of life and life satisfaction in colorectal cancer survivors: trajectories of adjustment." Health and Quality of Life Outcomes. 11 (1). https://doi.org/10.1186/1477-7525-11-46
A systematic review of psycho-oncology research in Chinese populations: emerging trends
Chambers, S. K., Hyde, M. K., Au, A. M. L., Ip, D., Shum, D. and Dunn, J.. 2013. "A systematic review of psycho-oncology research in Chinese populations: emerging trends." European Journal of Cancer Care. 22 (6), pp. 824-831. https://doi.org/10.1111/ecc.12087
Advancing prostate cancer survivorship research in Australia
Chambers, Suzanne K., Scuffham, Paul A., Baade, Peter D., Lowe, Anthony P., Dunn, Jeff, Galvao, Daniel A., Gordon, Louisa, Smith, David P., Sandoe, David F., Wootten, Addie C., Spry, Nigel A., Gardiner, Robert A., Davis, Ian D. and Newton, Robert U.. 2015. "Advancing prostate cancer survivorship research in Australia." Cancer Forum. 39 (3), pp. 204-209.
A systematic review of the impact of stigma and nihilism on lung cancer outcomes
Chambers, Suzanne K., Dunn, Jeffrey, Occhipinti, Stefano, Hughes, Suzanne, Baade, Peter, Sinclair, Sue, Aitken, Joanne, Youl, Pip and O'Connell, Dianne L.. 2012. "A systematic review of the impact of stigma and nihilism on lung cancer outcomes." BMC Cancer. 12 (184). https://doi.org/10.1186/1471-2407-12-184
Couple distress after localised prostate cancer
Chambers, Suzanne K., Schover, Leslie, Nielsen, Lisa, Halford, Kim, Clutton, Samantha, Gardiner, Robert A., Dunn, Jeff and Occhipinti, Stefano. 2013. "Couple distress after localised prostate cancer." Supportive Care in Cancer. 21 (11), pp. 2967-2976. https://doi.org/10.1007/s00520-013-1868-6
Sleep disturbance in cancer patients and caregivers who contact telephone-based help services
Morris, Bronwyn A., Thorndike, Frances P., Ritterband, Lee M., Glozier, Nick, Dunn, Jeff and Chambers, Suzanne K.. 2015. "Sleep disturbance in cancer patients and caregivers who contact telephone-based help services." Supportive Care in Cancer. 23 (4), pp. 1113-1120. https://doi.org/10.1007/s00520-014-2458-y
Satisfaction, organizational commitment and future action in charity sport event volunteers
Hyde, Melissa K., Dunn, Jeff, Wust, Natalie, Bax, Caitlin and Chambers, Suzanne K.. 2016. "Satisfaction, organizational commitment and future action in charity sport event volunteers." International Journal of Nonprofit and Voluntary Sector Marketing. 21 (3), pp. 148-167. https://doi.org/10.1002/nvsm.1552
Benefit finding after cancer: the role of optimism, intrusive thinking and social environment
Dunn, Jeff, Occhipinti, Stefano, Campbell, Alistair, Ferguson, Megan and Chambers, Suzanne K.. 2011. "Benefit finding after cancer: the role of optimism, intrusive thinking and social environment." Journal of Health Psychology. 16 (1), pp. 169-177. https://doi.org/10.1177/1359105310371555
The impact of body mass index and physical activity on mortality among patients with colorectal cancer in Queensland, Australia
Baade, Peter D., Meng, Xingqiong, Youl, Philippa H., Aitken, Joanne F., Dunn, Jeff and Chambers, Suzanne K.. 2011. "The impact of body mass index and physical activity on mortality among patients with colorectal cancer in Queensland, Australia." Cancer Epidemiology, Biomarkers and Prevention. 20 (7), pp. 1410-1420. https://doi.org/10.1158/1055-9965.EPI-11-0079
A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer
Youl, Philippa H., Baade, Peter D., Aitken, Joanne F., Chambers, Suzanne K., Turrell, Gavin, Pyke, Christopher and Dunn, Jeffrey. 2011. "A multilevel investigation of inequalities in clinical and psychosocial outcomes for women after breast cancer." BMC Cancer. 11. https://doi.org/10.1186/1471-2407-11-415
Motorcycles and breast cancer: the influence of peer support and challenge on distress and posttraumatic growth
Morris, B. A., Chambers, S. K., Campbell, M., Dwyer, M. and Dunn, J.. 2012. "Motorcycles and breast cancer: the influence of peer support and challenge on distress and posttraumatic growth." Supportive Care in Cancer. 20 (8), pp. 1849-1858. https://doi.org/10.1007/s00520-011-1287-5
Engaging NGOs in national cancer-control efforts
Dunn, Jeff, Herron, Lisa, Adams, Cary and Chambers, Suzanne. 2013. "Engaging NGOs in national cancer-control efforts." The Lancet Oncology. 14 (11), pp. 1044-1046. https://doi.org/10.1016/S1470-2045(13)70390-5
Defining young in the context of prostate cancer
Chambers, Suzanne K., Lowe, Anthony, Hyde, Melissa K., Zajdlewicz, Leah, Gardiner, Robert A., Sandoe, David and Dunn, Jeff. 2015. "Defining young in the context of prostate cancer." American Journal of Men's Health. 9 (2), pp. 103-114. https://doi.org/10.1177/1557988314529991
Integrating psychosocial care into neuro-oncology: challenges and strategies
Chambers, Suzanne K., Grassi, Luigi, Hyde, Melissa K., Holland, Jimmie and Dunn, Jeff. 2015. "Integrating psychosocial care into neuro-oncology: challenges and strategies." Frontiers in Oncology. 5 (February). https://doi.org/10.3389/fonc.2015.00041
Systematic review of motives for episodic volunteering
Dunn, Jeff, Chambers, Suzanne K. and Hyde, Melissa K.. 2016. "Systematic review of motives for episodic volunteering." Voluntas: International Journal of Voluntary and Nonprofit Organizations. 27 (1), pp. 425-464. https://doi.org/10.1007/s11266-015-9548-4
Medical help-seeking for sexual concerns in prostate cancer survivors
Hyde, Melissa K., Zajdlewicz, Leah, Wootten, Addie C., Nelson, Christian J., Lowe, Anthony, Dunn, Jeff and Chambers, Suzanne K.. 2016. "Medical help-seeking for sexual concerns in prostate cancer survivors." Sexual Medicine. 4 (1), pp. e7-e17. https://doi.org/10.1016/j.esxm.2015.12.004
Episodic volunteering and retention: an integrated theoretical approach
Hyde, Melissa K., Dunn, Jeff, Bax, Caitlin and Chambers, Suzanne K.. 2016. "Episodic volunteering and retention: an integrated theoretical approach." Nonprofit and Voluntary Sector Quarterly. 45 (1), pp. 45-63. https://doi.org/10.1177/0899764014558934
Adopting a survivor identity after cancer in a peer support context
Morris, Bronwyn A., Lepore, Stephen J., Wilson, Bridget, Lieberman, Morton A., Dunn, Jeff and Chambers, Suzanne K.. 2014. "Adopting a survivor identity after cancer in a peer support context." Journal of Cancer Survivorship. 8 (3), pp. 427-436. https://doi.org/10.1007/s11764-014-0355-5
The influence of high-intensity compared with moderate-intensity exercise training on cardiorespiratory fitness and body composition in colorectal cancer survivors: a randomised controlled trial
Devin, James L., Sax, Andrew T., Hughes, Gareth I., Jenkins, David G., Aitken, Joanne F., Chambers, Suzanne K., Dunn, Jeffrey C., Bolam, Kate A. and Skinner, Tina L.. 2016. "The influence of high-intensity compared with moderate-intensity exercise training on cardiorespiratory fitness and body composition in colorectal cancer survivors: a randomised controlled trial." Journal of Cancer Survivorship. 10 (3), pp. 467-479. https://doi.org/10.1007/s11764-015-0490-7
A five-year prospective study of quality of life after colorectal cancer
Chambers, Suzanne K., Meng, Xingqiong, Youl, Pip, Aitken, Joanne, Dunn, Jeff and Baade, Peter. 2012. "A five-year prospective study of quality of life after colorectal cancer." Quality of Life Research. 21 (9), pp. 1551-1564. https://doi.org/10.1007/s11136-011-0067-5
Systematic review of research into the psychological aspects of prostate cancer in Asia: what do we know?
Chambers, Suzanne Kathleen, Hyde, Melissa Karen, Ip, David Fu-Keung, Dunn, Jeffrey Charles and Gardiner, Robert Alexander. 2013. "Systematic review of research into the psychological aspects of prostate cancer in Asia: what do we know?" Asian Pacific Journal of Cancer Prevention (APJCP). 14 (4), pp. 2621-2626. https://doi.org/10.7314/APJCP.2013.14.4.2621
Measuring masculinity in the context of chronic disease
Chambers, Suzanne K., Hyde, Melissa K., Oliffe, John L., Zajdlewicz, Leah, Lowe, Anthony, Wootten, Addie C. and Dunn, Jeff. 2016. "Measuring masculinity in the context of chronic disease." Psychology of Men and Masculinity. 17 (3), pp. 228-242. https://doi.org/10.1037/men0000018
Psycho-oncology assessment in Chinese populations: a systematic review of quality of life and psychosocial measures
Hyde, M. K., Chambers, S. K., Shum, D., Ip, D. and Dunn, J.. 2016. "Psycho-oncology assessment in Chinese populations: a systematic review of quality of life and psychosocial measures." European Journal of Cancer Care. 25 (5), pp. 691-718. https://doi.org/10.1111/ecc.12367
'ScreenIT': computerised screening of swallowing nutrition and distress in head and neck cancer patients during (chemo)radiotherapy
Wall, Laurelie R., Cartmill, Bena, Ward, Elizabeth C., Hill, Anne J., Isenring, Elizabeth, Byrnes, Joshua, Chambers, Suzanne, Dunn, Jeff, Nixon, Jodie, Whelan, Jane and Porceddu, Sandro V.. 2016. "'ScreenIT': computerised screening of swallowing nutrition and distress in head and neck cancer patients during (chemo)radiotherapy." Oral Oncology. 54, pp. 47-53. https://doi.org/10.1016/j.oraloncology.2016.01.004
Psychological wellness and health-related stigma: a pilot study of an acceptance-focused cognitive behavioural intervention for people with lung cancer
Chambers, S. K., Morris, B. A., Clutton, S., Foley, E., Giles, L., Schofield, P., O'Connell, D. and Dunn, J.. 2015. "Psychological wellness and health-related stigma: a pilot study of an acceptance-focused cognitive behavioural intervention for people with lung cancer." European Journal of Cancer Care. 24 (1), pp. 60-70. https://doi.org/10.1111/ecc.12221
A longitudinal study of post-traumatic growth and psychological distress in colorectal cancer survivors
Occhipinti, Stefano, Chambers, Suzanne K., Lepore, Stephen, Aitken, Joanne and Dunn, Jeff. 2015. "A longitudinal study of post-traumatic growth and psychological distress in colorectal cancer survivors." PLoS One. 10 (9). https://doi.org/10.1371/journal.pone.0139119
Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2017. "Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study." Pain Management Nursing. 18 (2), pp. 75-89. https://doi.org/10.1016/j.pmn.2017.01.003
New Challenges in Psycho-Oncology Research III: A systematic review of psychological interventions for prostate cancer survivors and their partners: clinical and research implications
Chambers, Suzanne K., Hyde, Melissa K., Smith, David P., Hughes, Suzanne, Yuill, Susan, Egger, Sam, O'Connell, Dianne L., Stein, Kevin, Frydenberg, Mark, Wittert, Gary and Dunn, Jeff. 2017. "New Challenges in Psycho-Oncology Research III: A systematic review of psychological interventions for prostate cancer survivors and their partners: clinical and research implications." Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 26 (7), pp. 873-913. https://doi.org/10.1002/pon.4431
Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review
Heneka, Nicole, Shaw, Tim, Rowett, Debra and Phillips, Jane L.. 2016. "Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review." Palliative Medicine. 30 (6), pp. 520-532. https://doi.org/10.1177/0269216315615002
Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review
Heneka, Nicole, Phillips, Jane L., Rowett, D. and Shaw, Tim. 2015. "Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review." 42nd COSA Annual Scientific Meeting. Hobart, Australia 17 - 19 Nov 2015 United Kingdom.
Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective
Phillips, Jane L., Lovell, Melanie, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia. 2015. "Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (1), pp. 33-41. https://doi.org/10.1016/j.colegn.2013.11.002
Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices." Asia Pacific Journal of Clinical Oncology. 10, pp. 206-206.
A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study." Asia Pacific Journal of Clinical Oncology. 10, pp. 136-136.
Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2014. "Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study." Palliative Medicine. 28 (6), pp. 521-529. https://doi.org/10.1177/0269216314527780
Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.
Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.
Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study
Phillips, Jane, Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2013. "Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia.