Perceptions and experiences of clinicians and correctional officers facilitating palliative care for people in prison: A systematic review and meta-synthesis

Article

Schaefer, Isabelle, Panozzo, Stacey, DiGiacomo, Michelle, Heneka, Nicole and Phillips, Jane L.. 2024. "Perceptions and experiences of clinicians and correctional officers facilitating palliative care for people in prison: A systematic review and meta-synthesis." Palliative Medicine. 38 (9), pp. 951-967. https://doi.org/10.1177/02692163241262614
Article Title

Perceptions and experiences of clinicians and correctional officers facilitating palliative care for people in prison: A systematic review and meta-synthesis

ERA Journal ID13744
Article CategoryArticle
AuthorsSchaefer, Isabelle, Panozzo, Stacey, DiGiacomo, Michelle, Heneka, Nicole and Phillips, Jane L.
Journal TitlePalliative Medicine
Journal Citation38 (9), pp. 951-967
Number of Pages17
Year2024
PublisherSAGE Publications Ltd
Place of PublicationUnited Kingdom
ISSN0269-2163
1477-030X
Digital Object Identifier (DOI)https://doi.org/10.1177/02692163241262614
Web Address (URL)https://journals.sagepub.com/doi/10.1177/02692163241262614
Abstract

Background:
As the number of people ageing in prison with complex healthcare needs continues to increase, so does the need for palliative care in the restrictive prison context. Palliative care for people in prison is facilitated by correctional officers, and prison- and hospital-based clinicians. A collective analysis of existing research to identify common experiences of these stakeholders globally has not been completed.
Aim:
To explore the perceptions and experiences of correctional officers and prison- and hospital-based clinicians who facilitate palliative care for people in prison.
Design:
A systematic review and meta-synthesis.
Data sources:
Keywords and subject headings related to palliative care and prisons were used to search seven databases with no time limitations. Peer-reviewed research in English, containing qualitative data from stakeholders facilitating palliative care for people in prison were included, and appraised using the CASP tool.
Results:
Two analytical themes emerged: (i) a prison lens on a palliative approach and (ii) coping complexities. Palliative care is ‘translated’ into the prison setting according to security and environmental constraints. Stakeholders experienced ethical, personal and professional difficulties, because prison-based palliative care did not align with community norms. Ambiguous policy and expectations regarding prioritising care needs and balancing custodial rules led to role stress.
Conclusions:
Providing palliative care for people in prison is complex and impacts stakeholders and people in prison with palliative care needs. Supporting person-centred care through a multi-service approach, stakeholder education and standards will improve the quality and accessibility of care.

Keywordsend-of-life; Prison; palliative care; quality of care; health equity
Contains Sensitive ContentDoes not contain sensitive content
ANZSRC Field of Research 2020321199. Oncology and carcinogenesis not elsewhere classified
Byline AffiliationsUniversity of Technology Sydney
St Vincent’s Health Australia, Melbourne, Australia
University of Melbourne
University of Southern Queensland
Queensland University of Technology
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Phillips, Jane, Hosie, A., Lam, L., Kochovska, S., Brassil, M., Noble, B., Kurrle, S., Cumming, A., Caplan, G., Chye, R., Lee, B., Ely, E., Lawlor, P., Bush, S., Lovell, M., Cheah, S., Brown, L., Fazekas, B., Edwards, L., ..., Agar, M.. 2019. "Phase II cluster randomised waitlist controlled trial of a multicomponent non-pharmacological intervention to prevent delirium for inpatients with advanced cancer (ACTRN126170 01070325p)." Cancer Nurses Society of Australia 22nd Annual Congress. Melbourne, Australia 20 - 22 Jun 2019
The PRESERVE Pilot Study: A Phase 2 Cluster Randomised Waitlist Controlled Trial of a Multi-component Non-pharmacological Intervention to Prevent Delirium in Patients with Advanced Cancer
Hosie, A., Phillips, J., Lam, L., Kochovska, S., Brassil, M., Noble, B., Kurrle, S., Cumming, A., Caplan, G., Chye, R., Lee, B., Ely, E., Lawlor, P., Bush, S., Davis, J.M., Lovell, M., Brown, L., Fazekas, B., Cheah, S., ..., Agar, M.. 2019. "The PRESERVE Pilot Study: A Phase 2 Cluster Randomised Waitlist Controlled Trial of a Multi-component Non-pharmacological Intervention to Prevent Delirium in Patients with Advanced Cancer." 16th World Congress of the European Association for Palliative Care (EAPC 2019). Berlin, Germany 23 - 25 May 2019 United Kingdom. SAGE Publications India.
Phase II cluster randomised waitlist controlled trial of a multicomponent non-pharmacological intervention to prevent delirium for inpatients with advanced cancer (ACTRN12617001070325p)
Hosie, A., Phillips, J., Lam, L., Kochovska, S., Brassil, M., Noble, B., Kurrle, S., Cumming, A., Caplan, G., Chye, R., Lee, B., Ely, E., Lawlor, P., Bush, S., Davis, J.M., Lovell, M., Brown, L., Fazekas, B., Cheah, S., ..., Agar, M.. 2019. "Phase II cluster randomised waitlist controlled trial of a multicomponent non-pharmacological intervention to prevent delirium for inpatients with advanced cancer (ACTRN12617001070325p)." MASCC/ISOO Annual Meeting 2019. San Francisco, United States 21 - 23 Jun 2019 Germany. Springer.
A Qualitative Study of Patient, Family, Staff and Volunteer Perspectives During a Phase 2 Trial of a Multicomponent Non-Pharmacological Delirium Prevention Intervention for Inpatients with Advanced Cancer
Green, A., Hosie, A., Edwards, L., Hunt, J., Wilcock, J., Phillipson, C., Phillips, J. and Agar, M.. 2019. "A Qualitative Study of Patient, Family, Staff and Volunteer Perspectives During a Phase 2 Trial of a Multicomponent Non-Pharmacological Delirium Prevention Intervention for Inpatients with Advanced Cancer." American Delirium Society 2019 Annual Meeting (ADS 2019). Boston, United States 16 - 18 Jun 2019
Qualitative study of patient, family, staff and volunteer perspectives during a phase II trial of a multicomponent non-pharmacological delirium prevention intervention in advanced cancer
Hosie, A., Green, A., Edwards, L., Hunt, J., Wilcock, J., Raymond, B., Phillipson, C., Agar, M. and Phillips, J.. 2019. "Qualitative study of patient, family, staff and volunteer perspectives during a phase II trial of a multicomponent non-pharmacological delirium prevention intervention in advanced cancer." MASCC/ISOO Annual Meeting 2019. San Francisco, United States 21 - 23 Jun 2019 Germany. Springer.
A qualitative study of patient, family, staff and volunteer perspectives of a multicomponent non-pharmacological delirium prevention intervention for inpatients with advanced cancer during the PRESERVE pilot study
Green, A., Hosie, A., Edwards, L., Phillipson, C., Hunt, J., Wilcock, J., Raymond, B., Phillips, J. and Agar, M.. 2019. "A qualitative study of patient, family, staff and volunteer perspectives of a multicomponent non-pharmacological delirium prevention intervention for inpatients with advanced cancer during the PRESERVE pilot study." Oceanic Palliative Care Conference 2019 (19OPCC). Perth, Australia 10 - 13 Sep 2019
Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise and Lam, Lawrence. 2018. "Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: A Preliminary Validation Study." Pain Management Nursing. 19 (6), pp. 619-626. https://doi.org/10.1016/j.pmn.2018.07.008
Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report
Heneka, N., Shaw, T., Azzi, C. and Phillips, J. L.. 2018. "Clinicians’ perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report." Supportive Care in Cancer. 26 (10), pp. 3315-3318. https://doi.org/10.1007/s00520-018-4231-0
Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Exploring Factors Contributing to Medication Errors with Opioids in Australian Specialist Palliative Care Inpatient Services: A Multi-Incident Analysis." Journal of Palliative Medicine. 21 (6), pp. 825-835. https://doi.org/10.1089/jpm.2017.0578
Opioid errors in inpatient palliative care services: a retrospective review
Heneka, Nicole, Shaw, Tim, Rowett, Debra, Lapkin, Samuel and Phillips, Jane L.. 2018. "Opioid errors in inpatient palliative care services: a retrospective review." BMJ Supportive and Palliative Care. 8 (2), pp. 175-179. https://doi.org/10.1136/bmjspcare-2017-001417
Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service
Phillips, Jane L., Lobb, Elizabeth, Mohacsi, Paula, Heneka, Nicole and Currow, David. 2018. "Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 25 (1), pp. 39-43. https://doi.org/10.1016/j.colegn.2017.03.004
Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2017. "Can A Complex Online Intervention Improve Cancer Nurses’ Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study." Pain Management Nursing. 18 (2), pp. 75-89. https://doi.org/10.1016/j.pmn.2017.01.003
Re-imagining the service landscape for Aboriginal children with a disability
Henry, V., Green, A., Abbott, P., Delaney, P., Delaney, J., Davidson, P. and DiGiacomo, M.. 2017. "Re-imagining the service landscape for Aboriginal children with a disability." 6th Annual National Health and Medical Research Council (NHMRC) Symposium on Research Translation 2017. Brisbane, Australia 14 - 15 Nov 2017
Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review
Heneka, Nicole, Shaw, Tim, Rowett, Debra and Phillips, Jane L.. 2016. "Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review." Palliative Medicine. 30 (6), pp. 520-532. https://doi.org/10.1177/0269216315615002
The role of trait emotional intelligence in academic performance during the university transition: an integrative model of mediation via social support, coping, and adjustment
Perera, Harsha N. and DiGiacomo, Michelle. 2015. "The role of trait emotional intelligence in academic performance during the university transition: an integrative model of mediation via social support, coping, and adjustment." Personality and Individual Differences. 83, pp. 208-213. https://doi.org/10.1016/j.paid.2015.04.001
Mothers and grandmothers navigating caregiving in Aboriginal childhood disability
DiGiacomo, Michelle, Green, A., Abbott, P., Delaney, J., Patradoon-Ho, P., Delaney, P. and Davidson, P.. 2016. "Mothers and grandmothers navigating caregiving in Aboriginal childhood disability ." International Council on Women’s Health Issues (ICOWHI) 21st Biennial Congress. Baltimore, United States 06 - 09 Nov 2016
"Just see what her needs are…get a picture of her world": the need for a gender-based approach to care of women with chronic conditions
DiGiacomo, Michelle, Green, Anna and Davidson, Patricia. 2016. ""Just see what her needs are…get a picture of her world": the need for a gender-based approach to care of women with chronic conditions." International Council on Women’s Health Issues (ICOWHI) 21st Biennial Congress. Baltimore, United States 06 - 09 Nov 2016
Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review
Heneka, Nicole, Phillips, Jane L., Rowett, D. and Shaw, Tim. 2015. "Identifying Opioid Medication Error Types, Incidence and Patient Impact in Adult Oncology and Palliative Care Settings: A Systematic Review." 42nd COSA Annual Scientific Meeting. Hobart, Australia 17 - 19 Nov 2015 United Kingdom. John Wiley & Sons.
Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review
Green, A., DiGiacomo, M., Luckett, T., Abbott, P., Davidson, P., Delaney, J. and Delaney, P.. 2015. "Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review." 2015 Primary Health Care Research Conference. Adelaide, Australia 29 - 31 Jul 2015
Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective
Phillips, Jane L., Lovell, Melanie, Luckett, Tim, Agar, Meera, Green, Anna and Davidson, Patricia. 2015. "Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 22 (1), pp. 33-41. https://doi.org/10.1016/j.colegn.2013.11.002
Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "Multi-Centre Pre-Post Test Trial of a Complex QStream (c) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices." Asia Pacific Journal of Clinical Oncology. 10, pp. 206-206.
A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study
Phillips, Jane, Heneka, Nicole, Lam, Lawrence and Shaw, Tim. 2014. "A Complex QStream (R) Pain Assessment Intervention on Cancer Nurses' Pain Screening and Assessment Practices: Results from a Quasi-Experimental Study." Asia Pacific Journal of Clinical Oncology. 10, pp. 136-136.
Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study
Phillips, Jane L., Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2014. "Impact of a novel online learning module on specialist palliative care nurses’ pain assessment competencies and patients’ reports of pain: Results from a quasiexperimental pilot study." Palliative Medicine. 28 (6), pp. 521-529. https://doi.org/10.1177/0269216314527780
The relationship of trait emotional intelligence with academic performance: a meta-analytic review
Perera, Harsha N. and DiGiacomo, Michelle. 2013. "The relationship of trait emotional intelligence with academic performance: a meta-analytic review." Learning and Individual Differences: journal of psychology and education. 28, pp. 20-33. https://doi.org/10.1016/j.lindif.2013.08.002
Pain management can be achieved with commitment and support
Lovell, M., Birch, M., Luckett, T., Davidson, P., Green, A., Marie, N., Stubbs, J., Phillips, J. and Agar, M.. 2014. "Pain management can be achieved with commitment and support." Palliative Care NSW State Conference. Sydney, Australia 22 - 24 Oct 2014
A systems approach to improving cancer pain management
Lovell, M., Luckett, T., Phillips, J., Agar, M., Boyle, F., Stubbs, J., Birch, M., Green, A., Marie, N. and Davidson, P.. 2014. "A systems approach to improving cancer pain management." 2014 Innovations in Cancer Treatment and Care Conference. Sydney, Australia Oct 2014
Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Exploring opiate errors in the specialist cancer and palliative care setting: perceptions of key stakeholders." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia. John Wiley & Sons.
Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit
Phillips, Jane, Heneka, Nicole and Shaw, Tim. 2013. "Mapping cancer pain screening, assessment and reassessment practices within one Australian health district: results from a baseline chart audit." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia. John Wiley & Sons.
Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study
Phillips, Jane, Heneka, Nicole, Hickman, Louise, Lam, Lawrence and Shaw, Tim. 2013. "Impact of a Qstream Online Learning Module on Palliative Care Nurses’ Pain Assessment Competencies and Patients’ Reports of Pain: Results from a Quasi-Experimental Pilot Study." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013 Australia. John Wiley & Sons.
What will it take to improve cancer pain outcomes?: Developing a dissemination and implementation strategy to promote a person-centred clinical pathway for cancer pain
Lovell, M., Phillips, J., Agar, M., Luckett, T., Boyle, F., Green, A., Stubbs, J. and Davidson, P.. 2013. "What will it take to improve cancer pain outcomes?: Developing a dissemination and implementation strategy to promote a person-centred clinical pathway for cancer pain." Cancer Nurses Society of Australia’s 16th Winter Congress. Brisbane, Australia 25 - 27 Jul 2013
Implementation forum for cancer pain assessment and management guidelines
Lovell, M., Boyle, F., Agar, M., Luckett, T., Phillips, J., Clayton, J., Green, A., Birch, M. and Davidson, P.. 2013. "Implementation forum for cancer pain assessment and management guidelines." COSA Annual Scientific Meeting 2013. Adelaide, Australia 12 - 14 Nov 2013
Stop Pain Project: A dual health professional and patient pathway to manage pain in individuals with cancer
Phillips, Jane, Luckett, T., Davidson, P., Lovell, M. and Green, A.. 2012. "Stop Pain Project: A dual health professional and patient pathway to manage pain in individuals with cancer." Cancer Nurses Society of Australia's 15th Winter Congress. Hobart, Australia 26 - 28 Jul 2012
STOP Pain Project: a collaborative, interdisciplinary project to improve the person-centredness of assessment and management of cancer pain
Clayton, J., Davidson, P., Phillips, J., Luckett, T., Green, A., Agar, M., Broadbent, A. and Lovell, M.. 2012. "STOP Pain Project: a collaborative, interdisciplinary project to improve the person-centredness of assessment and management of cancer pain." 2012 Joint Meeting of International Psycho-Oncology Society (IPOS) 14th World Congress and COSA's 39th Annual Scientific Meeting. Brisbane, Australia 13 - 15 Nov 2012