Early learnings from a national trial of a consumer and clinician developed survivorship care intervention for men with prostate cancer on androgen deprivation therapy (PCEssentials Hormone Therapy Study)
Presentation
Green, A., Newton, R. U., Chambers, S., Smith, D. P., Tuffaha, H., Galvao, D. A., Heathcote, P., Patel, M. I., Christie, D., Egger, S. A., Sara, S., Heneka, N. and Dunn, J.. 2024. "Early learnings from a national trial of a consumer and clinician developed survivorship care intervention for men with prostate cancer on androgen deprivation therapy (PCEssentials Hormone Therapy Study)." Union for International Cancer Control (UICC) World Cancer Congress 2024. Geneva, Switzerland 17 - 19 Sep 2024 United States. John Wiley & Sons.
| Paper/Presentation Title | Early learnings from a national trial of a consumer and clinician developed survivorship care intervention for men with prostate cancer on androgen deprivation therapy (PCEssentials Hormone Therapy Study) |
|---|---|
| Presentation Type | Presentation |
| Authors | Green, A., Newton, R. U., Chambers, S., Smith, D. P., Tuffaha, H., Galvao, D. A., Heathcote, P., Patel, M. I., Christie, D., Egger, S. A., Sara, S., Heneka, N. and Dunn, J. |
| Journal or Proceedings Title | International Journal of Cancer |
| Journal Citation | 155 (S1), pp. 113-113 |
| Number of Pages | 1 |
| Year | 2024 |
| Publisher | John Wiley & Sons |
| Place of Publication | United States |
| ISSN | 0020-7136 |
| 1097-0215 | |
| Web Address (URL) of Conference Proceedings | https://onlinelibrary.wiley.com/doi/10.1002/ijc.35123 |
| Conference/Event | Union for International Cancer Control (UICC) World Cancer Congress 2024 |
| Event Details | Union for International Cancer Control (UICC) World Cancer Congress 2024 UICC’s World Cancer Congress 2024 Delivery In person Event Date 17 to end of 19 Sep 2024 Event Location Geneva, Switzerland Event Web Address (URL) |
| Abstract | Background: Androgen deprivation therapy (ADT) is commonly used to treat men with locally advanced or advanced prostate cancer. Men on ADT often experience several side effects and frequently report unmet supportive care needs. An essential part of quality cancer support is survivorship care. Unfortunately, survivorship care is often not optimally delivered, or easily accessible, and there is currently no survivorship care model for men on ADT. To address this gap Australia's peak community-based organisation for prostate cancer, Prostate Cancer Foundation of Australia (PCFA), led the development of a survivorship care intervention. Aim: A randomised trial of nurse-led survivorship care to: (1) Determine effectiveness of a survivorship care intervention (PCEssentials), relative to usual care, for improving health-related quality of life (HRQol); (2) Evaluate PCEssentials implementation strategies and outcomes, including cost-effectiveness, with respect to usual care. Methods: An effectiveness-implementation hybrid (Type 1) trial with participants randomised to one of two arms: (i) minimally enhanced usual care; and (ii) PCEssentials delivered over four telebased sessions, with a booster session 5 months after session one. Informed by the consumer initiated Prostate Cancer Survivorship Essentials Framework, PCEssentials was developed by a PCFA working group with consumer, clinician, and researcher representation. Eligible participants are Australian men with prostate cancer commencing ADT and expected to be on ADT for a minimum of 12 months. Participants are followed-up at 3-, 6-, and 12-months post-recruitment. Primary outcomes are HRQoL and self-efficacy. A concurrent process evaluation with participants and study stakeholders is being undertaken to determine effectiveness of delivery of PCEssentials. Results: To date, 92 patients have been enrolled to the study with data collection anticipated to conclude in December 2025. Twenty-six participants have completed the PCEssentials sessions. Preliminary evaluation suggests that the model of care is highly acceptable in terms of content and mode of delivery. Intervention participants report improved knowledge of ADT and related symptom management, gains in personal agency to proactively assess their survivorship care needs and seek assistance, and raised awareness of psychological wellbeing. Conclusion: Leadership from a community-based cancer organisation has enhanced consumer representation in this clinical trial, embedding the consumer voice in each research stage. Consumer involvement in the development of PCEssentials is key to ensuring that survivorship care is responsive to consumer identified needs and preferences. |
| Contains Sensitive Content | Does not contain sensitive content |
| ANZSRC Field of Research 2020 | 420399. Health services and systems not elsewhere classified |
| Public Notes | Files associated with this item cannot be displayed due to copyright restrictions. |
| Byline Affiliations | University of Southern Queensland |
| Edith Cowan University | |
| Australian Catholic University | |
| University of Sydney | |
| University of Queensland | |
| Brisbane Urology Clinic, Australia | |
| Genesiscare, Australia | |
| Prostate Cancer Foundation of Australia | |
| Centre for Health Research (Operations) |
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https://research.usq.edu.au/item/zyy8v/early-learnings-from-a-national-trial-of-a-consumer-and-clinician-developed-survivorship-care-intervention-for-men-with-prostate-cancer-on-androgen-deprivation-therapy-pcessentials-hormone-therapy
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