Community knowledge of law at the end of life: Availability and accessibility of web-based resources
Article
Article Title | Community knowledge of law at the end of life: Availability and accessibility of web-based resources |
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ERA Journal ID | 13431 |
Article Category | Article |
Authors | White, Ben, Willmott, Lindy, Tilse, Cheryl, Wilson, Jill, Lawson, Deborah, Pearce, Angela, Dunn Jeffrey, Aitken, Joanne F., Feeney, Rachel and Jowett, Stephanie |
Journal Title | Australian Health Review |
Journal Citation | 42 (3), pp. 266-271 |
Number of Pages | 6 |
Year | 2018 |
Publisher | CSIRO Publishing |
Place of Publication | Australia |
ISSN | 0156-5788 |
1449-8944 | |
Digital Object Identifier (DOI) | https://doi.org/10.1071/AH16234 |
Web Address (URL) | https://www.publish.csiro.au/AH/AH16234 |
Abstract | Objective The aim of the present study was to identify online resources community members may access to inform themselves about their legal duties and rights in end-of-life decision making. Methods Resource mapping identified online resources that members of the public in New South Wales, Victoria and Queensland are likely to identify, and assessed the ease or difficulty in locating them. Resources were then critically analysed for accessibility of language and format using the Patient Education Materials Assessment Tool (PEMAT). Results Identified resources differed considerably based on whether search terms identified by community members or experts were used. Most resources focused on advance directives, enduring powers of attorney and substitute decision making. Relatively few provided information about legal duties (e.g. powers and responsibilities of substitute decision makers) or resolving conflict with health practitioners. Accessibility (understandability and actionability) of resource content varied. Conclusions Although numerous resources on end-of-life law are available online, community members may not be able to identify relevant resources or find resource content accessible. |
Keywords | end-of-life decision making; law |
ANZSRC Field of Research 2020 | 4899. Other law and legal studies |
420316. Palliative care | |
Public Notes | The accessible file is the accepted version of the paper. Please refer to the URL for the published version. |
Funder | Australian Research Council |
Byline Affiliations | Queensland University of Technology |
University of Queensland | |
Cancer Council of Victoria, Australia | |
Cancer Council New South Wales, Australia | |
Cancer Council Queensland, Australia |
https://research.usq.edu.au/item/xzxz8/community-knowledge-of-law-at-the-end-of-life-availability-and-accessibility-of-web-based-resources
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