Adults with intellectual disability in regional Australia: incidence of disability and provision of accommodation support to their ageing carers

Article

Eley, Diann, Boyes, Joanne, Young, Louise and Hegney, Desley. 2009. "Adults with intellectual disability in regional Australia: incidence of disability and provision of accommodation support to their ageing carers ." Australian Journal of Rural Health. 17 (3), pp. 161-166. https://doi.org/10.1111/j.1440-1584.2009.01062.x
Article Title

Adults with intellectual disability in regional Australia: incidence of disability and provision of accommodation support to their ageing carers

ERA Journal ID13436
Article CategoryArticle
AuthorsEley, Diann (Author), Boyes, Joanne (Author), Young, Louise (Author) and Hegney, Desley (Author)
Journal TitleAustralian Journal of Rural Health
Journal Citation17 (3), pp. 161-166
Number of Pages6
Year2009
PublisherJohn Wiley & Sons
Place of PublicationMelbourne, Australia
ISSN1038-5282
1440-1584
Digital Object Identifier (DOI)https://doi.org/10.1111/j.1440-1584.2009.01062.x
Web Address (URL)http://onlinelibrary.wiley.com/doi/10.1111/j.1440-1584.2009.01062.x/pdf
Abstract

Objective: This project aimed to identify a population of adults with intellectual disability and their carers in a defined regional area of Australia to determine their prevalence in this setting, their current accommodation situation and their future accommodation needs.
Design: Mixed method cross-sectional design employed a survey to collect data from both quantitative (Likert type) and qualitative (free response) questions.
Setting: Regional town and its contiguous shires in Queensland.
Participants: Adults (over 18 years) with an intellectual disability and their primary carers.
Main outcome measure: Identification of adults with intellectual disability and a description of their accommodation situation and perceived needs.
Results: Adults with intellectual disability (n = 156) were male (60%), mean age of 37.2 years (range 18–79). Carers (n = 146) were female (78%), mean age of 61.5 years (range 40–91). The majority of adults with intellectual disability (56%) are cared for at home (mean age = 35 years). Mean age of those who live away from home was 39.8 years. The levels of support required by those living at home and those living away from home were not different, nor were the age ranges of their carers.
Conclusions: Findings show that the majority of primary carers are over the age of 50 years and continue to provide medium–high levels of support within the family home. The advancing age of both carers and the people they support, combined with the location of that support, is a major issue in the provision of adequate services for this population.

Keywordsaccommodation need; adult with intellectual disability; ageing carer; regional Australia
ANZSRC Field of Research 2020420318. People with disability
420303. Family care
440301. Family and household studies
Public Notes

© 2009 The Authors. Journal Compilation © 2009 National Rural Health Alliance Inc.

Byline AffiliationsUniversity of Queensland
Student Services
Centre for Rural and Remote Area Health
Institution of OriginUniversity of Southern Queensland
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Nurses' confidence and experience in using information technology
Eley, Robert, Fallon, Tony, Soar, Jeffrey, Buikstra, Elizabeth and Hegney, Desley. 2008. "Nurses' confidence and experience in using information technology." Australian Journal of Advanced Nursing. 25 (3), pp. 23-35.
Gender and personal breastfeeding experience of rural GP registrars in Australia - a qualitative study of their effect on breastfeeding attitudes and knowledge
Brodribb, W. E., Jackson, C., Fallon, A. B. and Hegney, D.. 2007. "Gender and personal breastfeeding experience of rural GP registrars in Australia - a qualitative study of their effect on breastfeeding attitudes and knowledge." Rural and Remote Health. 7 (737), p. 737.
Individual resilience in rural people: a Queensland study, Australia
Hegney, D. G., Buikstra, E., Baker, P., Rogers-Clark, C., Pearce, S., Ross, H., King, C. and Watson-Luke, A.. 2007. "Individual resilience in rural people: a Queensland study, Australia." Rural and Remote Health. 7 (4), pp. 1-13.
Implementation of oral health recommendations into two residential aged care facilities in a regional Australian city
Fallon, Tony, Buikstra, Elizabeth, Cameron, Michelle, Hegney, Desley, Mackenzie, Debra, March, Judith, Moloney, Clint and Pitt, Jacinta. 2006. "Implementation of oral health recommendations into two residential aged care facilities in a regional Australian city." International Journal of Evidence-Based Healthcare. 4 (3), pp. 162-179. https://doi.org/10.1111/j.1479-6988.2006.00040.x
Perceptions of mental health service delivery among staff and Indigenous consumers: it's still about communication
Eley, Diann, Young, Louise, Hunter, Keith, Baker, Peter, Hunter, Ernest and Hannah, Dominique. 2007. "Perceptions of mental health service delivery among staff and Indigenous consumers: it's still about communication." Australasian Psychiatry. 15 (2), pp. 130-134. https://doi.org/10.1080/10398560601121017
Knowing your allies: medical education and interprofessional exposure
Young, Louise, Baker, Peter, Waller, Susan, Hodgson, Lynette and Moor, Michelle. 2007. "Knowing your allies: medical education and interprofessional exposure ." Journal of Interprofessional Care. 21 (2), pp. 155-163. https://doi.org/10.1080/13561820601176915
Nurses worth listening to
Hegney, Desley, Plank, Ashley, Buikstra, Elizabeth, Parker, Victoria and Eley, Robert. 2005. Nurses worth listening to. Tooowoomba, Australia. University of Southern Queensland.
Nurses and information technology
Hegney, Desley, Buikstra, Elizabeth, Eley, Robert, Fallon, Anthony Bruce, Gilmore, Victoria and Soar, Jeffrey. 2007. Nurses and information technology. Canberra, Australia. Commonwealth of Australia.
Barriers to use of information and computer technology by Australia's nurses: a national survey
Eley, Robert, Fallon, Anthony Bruce, Soar, Jeffrey, Buikstra, Elizabeth and Hegney, Desley. 2009. "Barriers to use of information and computer technology by Australia's nurses: a national survey." Journal of Clinical Nursing. 18 (8), pp. 1151-1158. https://doi.org/10.1111/j.1365-2702.2008.02336.x
The status of training and education in information and computer technology of Australia's nurses: a national survey
Eley, Robert, Fallon, Tony, Soar, Jeffrey, Buikstra, Elizabeth and Hegney, Desley. 2008. "The status of training and education in information and computer technology of Australia's nurses: a national survey." Journal of Clinical Nursing. 17 (20), pp. 2758-2767. https://doi.org/10.1111/j.1365-2702.2008.02285.x
Job satisfaction and nurses in rural Australia
Hegney, Desley and McCarthy, Alexandra. 2000. "Job satisfaction and nurses in rural Australia." Journal of Nursing Administration. 30 (7-8), pp. 347 - 350.
Gender roles and geographic locations as predictors of emotional distress in Australian women
Bramston, Paul, Rogers-Clark, Cathy, Hegney, Desley and Bishop, Janet. 2000. "Gender roles and geographic locations as predictors of emotional distress in Australian women." Australian Journal of Rural Health. 8 (3), pp. 154-160. https://doi.org/10.1046/j.1440-1584.2000.00272.x
The perceptions of rural nurses towards role change within the context of organisational change
McCarthy, Alexandra, Hegney, Desley and Pearson, Alan. 2000. "The perceptions of rural nurses towards role change within the context of organisational change." Australian Journal of Advanced Nursing. 17 (4), pp. 21-28.
Effects of size of health service on scope of rural nursing practice
Hegney, Desley, McCarthy, Alexandra and Pearson, Alan. 1999. "Effects of size of health service on scope of rural nursing practice." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 6 (4), pp. 21-26, 42. https://doi.org/10.1016/S1322-7696(08)60605-8
Evidence-based practice and rural nursing: a literature review
McCarthy, A. and Hegney, D.. 1998. "Evidence-based practice and rural nursing: a literature review." Australian Journal of Rural Health. 6 (2), pp. 96-99. https://doi.org/10.1111/j.1440-1584.1998.tb00291.x
Extended, expanded, multi-skilled or advanced practice? - rural nurses in Australia 1991-1994
Hegney, Desley. 1997. "Extended, expanded, multi-skilled or advanced practice? - rural nurses in Australia 1991-1994." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 4 (4), pp. 22-27. https://doi.org/10.1016/S1322-7696(08)60252-8
An overview of a study into the role and function of the rural nurse in Australia
Hegney, Desley, Pearson, Alan and McCarthy, Alexandra. 1997. An overview of a study into the role and function of the rural nurse in Australia. Adelaide, Australia. University of Adelaide.
The role and function of the rural nurse in Australia
Hegney, Desley, Pearson, Alan and McCarthy, Alexandra. 1997. The role and function of the rural nurse in Australia. Melbourne, Australia. Royal College of Nursing, Australia.
Remote and rural palliative care
McCarthy, Alexandra and Hegney, Desley. 1999. "Remote and rural palliative care." Aranda, Sanchia and O'Connor, Margaret (ed.) Palliative care nursing: a guide to practice. Melbourne, Australia. AUSMED Publications. pp. 83-101
Experiences of regional and rural people with cancer being treated with radiotherapy in a metropolitan centre
Martin-McDonald, Kristine, Rogers-Clark, Cath, Hegney, Desley, McCarthy, Alexandra and Pearce, Susanne. 2003. "Experiences of regional and rural people with cancer being treated with radiotherapy in a metropolitan centre." International Journal of Nursing Practice. 9 (3), pp. 176-182. https://doi.org/10.1046/j.1440-172X.2003.00421.x
Why nurses are attracted to rural and remote practice
Hegney, Desley, McCarthy, Alexandra, Rogers-Clark, Cath and Gorman, Don. 2002. "Why nurses are attracted to rural and remote practice." Australian Journal of Rural Health. 10 (3), pp. 178-186.
Why nurses are resigning from rural and remote Queensland health facilities
Hegney, Desley, McCarthy, Alexandra, Rogers-Clark, Cath and Gorman, Don. 2002. "Why nurses are resigning from rural and remote Queensland health facilities." Collegian: The Australian Journal of Nursing Practice, Scholarship and Research. 9 (2), pp. 33-39.
Retaining rural and remote area nurses: the Queensland Australia experience
Hegney, Desley, McCarthy, Alexandra, Rogers-Clark, Cath and Gorman, Don. 2002. "Retaining rural and remote area nurses: the Queensland Australia experience." Journal of Nursing Administration. 32 (3), pp. 128-135.
Mental health nursing standards and practice indicators for Australia: a review of current literature
Neville, Christine, Eley, Diann, Quinn, John, Weir, Jim, Hegney, Desley, Hangan, Catherine and Grasby, David. 2006. Mental health nursing standards and practice indicators for Australia: a review of current literature. Toowoomba, Australia. University of Southern Queensland.
Aged care in the future and baby boomers: shall the twain ever meet? - baby boomers and aged care
Fallon, Anthony Bruce, Price, Kay, Hegney, Desley, Abbey, Jennifer, Neville, Christine C., Oxlade, Deborah and Soar, Jeffrey. 2004. "Aged care in the future and baby boomers: shall the twain ever meet? - baby boomers and aged care." Conrick, Moya and Soar, Jeffrey (ed.) 1st Australian Aged and Community Care Informatics Conference (ACCIC'04). Brisbane, Australia 24 - 25 Aug 2004 Brunswick East, Australia.
Evaluation of the health careers in the Bush Health Careers Workshops 1994 - 2002
Hegney, Desley, Eley, Robert and Buikstra, Elizabeth. 2005. Evaluation of the health careers in the Bush Health Careers Workshops 1994 - 2002. Toowoomba, Australia. University of Southern Queensland.
An analysis of accommodation needs of adults with an intellectual disability in Toowoomba and surrounding areas
Eley, Diann, Hegney, Desley and Boyes, Joanne. 2006. An analysis of accommodation needs of adults with an intellectual disability in Toowoomba and surrounding areas. Toowoomba, Australia. University of Southern Queensland.
The Toowoomba adult trauma triage tool
Hegney, Desley, Wollaston, Anthony, Fahey, Paul, McKay, Michelle, Miller, Peter and Wollaston, James. 2003. The Toowoomba adult trauma triage tool. Toowoomba, Australia. University of Southern Queensland.
Against all odds: a retrospective study of women who succeeded at breastfeeding despite extraordinary difficulties
Hegney, Desley, Fallon, Tony, Crepinsek, Maree, O'Brien, Maxine and Doolan, Jackie. 2005. Against all odds: a retrospective study of women who succeeded at breastfeeding despite extraordinary difficulties. Toowoomba, Australia. University of Southern Queensland.
The administration and supply of controlled and restricted medication by nurses in rural and remote Queensland.
Hegney, Desley, McKeon, Christine, Plank, Ashley, Raith, Lisa and Watson, Jennifer. 2003. The administration and supply of controlled and restricted medication by nurses in rural and remote Queensland. Toowoomba, Australia. University of Southern Queensland.
Aged care nursing in Queensland - the nurses' view
Eley, Robert, Hegney, Desley, Buikstra, Elizabeth, Fallon, Anthony Bruce, Plank, Ashley and Parker, Victoria. 2007. "Aged care nursing in Queensland - the nurses' view ." Journal of Clinical Nursing. 16 (5), pp. 860-872. https://doi.org/10.1111/j.1365-2702.2006.01696.x
Key issues in rural health: perspectives of health service providers in Queensland
Eley, Robert, Fallon, Anthony Bruce, Gorman, Don, Fahey, Paul P., Rogers-Clark, Cath and Hegney, Desley. 2006. Key issues in rural health: perspectives of health service providers in Queensland. Toowoomba, Australia. University of Southern Queensland.
Workplace violence in Queensland, Australia: the results of a comparative study
Hegney, Desley, Eley, Robert, Plank, Ashley, Buikstra, Elizabeth and Parker, Victoria. 2006. "Workplace violence in Queensland, Australia: the results of a comparative study." International Journal of Nursing Practice. 12 (4), pp. 220-231. https://doi.org/10.1111/j.1440-172X.2006.00571.x
Tenure, mobility and retention of nurses in Queensland, Australia: 2001 and 2004
Eley, Robert, Hegney, Desley, Buikstra, Elizabeth, Plank, Ashley and Parker, Victoria. 2007. "Tenure, mobility and retention of nurses in Queensland, Australia: 2001 and 2004 ." Journal of Nursing Management. 15 (3), pp. 285-293.
A stock-take of existing aged care clinical placements for undergraduate nursing students in Australia
Neville, Christine C., Yuginovich, Trudy, Fallon, Anthony Bruce, Soar, Jeffrey, Boyes, Joanne and Grasby, David. 2006. A stock-take of existing aged care clinical placements for undergraduate nursing students in Australia. Toowoomba, Australia. University of Southern Queensland.
Gender and citizenship potential in adolescent students
Eley, Diann and Kirk, David. 2004. "Gender and citizenship potential in adolescent students." Katsikitis, Mary (ed.) 39th Australian Psychological Society Annual Conference 2004. Sydney, Australia 29 Sep - 03 Oct 2004 Melbourne, Australia.
Dealing with distance: rural and remote area nursing
Hegney, Desley. 2006. "Dealing with distance: rural and remote area nursing." Daly, John, Speedy, Sandra and Jackson, Debra (ed.) Contexts of nursing: an introduction. Marrickville, NSW. Elsevier. pp. 213-228
Tradition and technology: teaching rural medicine using an internet discussion board
Baker, P. G., Eley, D. S. and Lasserre, K. E.. 2005. "Tradition and technology: teaching rural medicine using an internet discussion board." Rural and Remote Health. 5 (4).
Does recruitment lead to retention? Rural Clinical School training experiences and subsequent intern choices
Eley, Diann and Baker, Peter. 2006. "Does recruitment lead to retention? Rural Clinical School training experiences and subsequent intern choices." Rural and Remote Health. 6 (1).
SEAM: improving the quality of palliative care in regional Toowoomba, Australia - lessons learned
Buikstra, Elizabeth, Pearce, Susanne, Hegney, Desley and Fallon, Tony. 2006. "SEAM: improving the quality of palliative care in regional Toowoomba, Australia - lessons learned ." Rural and Remote Health. 6 (1), pp. 1-10.
Tools and methodologies for investigating the mental health needs of indigenous patients: it's about communication
Eley, Diann, Hunter, Keith, Young, Louise, Baker, Peter, Hunter, Ernest and Hannah, Dominique. 2006. "Tools and methodologies for investigating the mental health needs of indigenous patients: it's about communication." Australasian Psychiatry. 14 (1), pp. 33-37.
Planning research in rural and remote areas
Baker, P. G., Hegney, D., Rogers-Clark, C., Fahey, P., Gorman, D. and Mitchell, G.. 2004. "Planning research in rural and remote areas." Rural and Remote Health. 4 (266), pp. 1-11.
The interface of acute and aged care: the role of the nurse in a provincial area
Hegney, Desley, McCarthy, Alexandra, De La Rue, Mary Beth, Gorman, Don, Martin-McDonald, Kris, Fahey, Paul and Pretty, Grace. 2003. "The interface of acute and aged care: the role of the nurse in a provincial area." Australasian Journal on Ageing. 22 (2), pp. 85-90. https://doi.org/10.1111/j.1741-6612.2003.tb00472.x
General practitioners' perceptions of after hours primary medical care services: a Toowoomba, Queensland, Australia study
Hegney, Desley, Fahey, Paul P. and Nanka, Annette. 2004. "General practitioners' perceptions of after hours primary medical care services: a Toowoomba, Queensland, Australia study." Rural and Remote Health. 4 (287).
Primary health care and general practice nurses: what is the nexus?
Patterson, Elizabeth, Price, Kay and Hegney, Desley. 2005. "Primary health care and general practice nurses: what is the nexus?" Australian Journal of Primary Health. 11 (1), pp. 47-54. https://doi.org/10.1071/PY05007
Risk reduction in general practice and the role of the receptionist
Patterson, Elizabeth, Forrester, Kim, Price, Kay and Hegney, Desley. 2005. "Risk reduction in general practice and the role of the receptionist." Journal of Law and Medicine. 12 (3), pp. 340-347.
The baby-friendly hospital initiative and breastfeeding duration: relating the evidence to the Australian context
Fallon, Anthony Bruce, Crepinsek, Maree, Hegney, Desley and O'Brien, Maxine. 2005. "The baby-friendly hospital initiative and breastfeeding duration: relating the evidence to the Australian context." Birth Issues. 14 (3), pp. 90-95.
Patient education and consumer medicine information: a study of provision by Queensland rural and remote area registered nurses
Hegney, Desley, Plank, Ashley, Watson, Jennifer, Raith, Lisa and McKeon, Christine. 2005. "Patient education and consumer medicine information: a study of provision by Queensland rural and remote area registered nurses." Journal of Clinical Nursing. 14 (7), pp. 855-862. https://doi.org/10.1111/j.1365-2702.2005.01203.x
Separation of conjoined twins: experiences of perioperative nurses and their recommendations
Martin-McDonald, K., McIntyre, P. and Hegney, D.. 2005. "Separation of conjoined twins: experiences of perioperative nurses and their recommendations." International Nursing Review. 52 (1), pp. 52-59. https://doi.org/10.1111/j.1466-7657.2004.00239.x
Attitudes of Australian nurses to information technology in the workplace: A national survey
Eley, Robert, Soar, Jeffrey, Buikstra, Elizabeth, Fallon, Tony and Hegney, Desley. 2009. "Attitudes of Australian nurses to information technology in the workplace: A national survey." CIN: Computers, Informatics, Nursing. 27 (2), pp. 114-121. https://doi.org/10.1097/NCN.0b013e318197557e