Patients describe their lived experiences of battling to live with complex regional pain syndrome
Article
Johnston-Devin, Colleen, Oprescu, Florin, Gray, Marion and Wallis, Marianne. 2021. "Patients describe their lived experiences of battling to live with complex regional pain syndrome." Journal of Pain. 22 (9), pp. 1111-1128. https://doi.org/10.1016/j.jpain.2021.03.151
| Article Title | Patients describe their lived experiences of battling to live with complex regional pain syndrome |
|---|---|
| ERA Journal ID | 16468 |
| Article Category | Article |
| Authors | Johnston-Devin, Colleen (Author), Oprescu, Florin (Author), Gray, Marion (Author) and Wallis, Marianne (Author) |
| Journal Title | Journal of Pain |
| Journal Citation | 22 (9), pp. 1111-1128 |
| Number of Pages | 18 |
| Year | 2021 |
| Place of Publication | Scotland |
| ISSN | 1526-5900 |
| 1528-8447 | |
| Digital Object Identifier (DOI) | https://doi.org/10.1016/j.jpain.2021.03.151 |
| Web Address (URL) | https://www.sciencedirect.com/science/article/pii/S1526590021002029?via%3Dihub |
| Abstract | Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: 'dealing with the unknown enemy', 'building an armoury against amoving target', 'battles within the war', 'developing battle plans with allies' and 'warrior or prisoner of war'. Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals. |
| Keywords | complex regional pain syndrome, CRPS, phenomenology, qualitative research, lived experience, chronic pain |
| ANZSRC Field of Research 2020 | 420199. Allied health and rehabilitation science not elsewhere classified |
| Byline Affiliations | University of the Sunshine Coast |
| School of Health and Wellbeing | |
| Institution of Origin | University of Southern Queensland |
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