Educational considerations for health professionals to effectively work with clients with complex regional pain syndrome

Article

Johnston-Devin, Colleen, Oprescu, Florin, Wallis, Marianne and Gray, Marion. 2022. "Educational considerations for health professionals to effectively work with clients with complex regional pain syndrome." PLoS One. 17 (6). https://doi.org/10.1371/journal.pone.0269337
Article Title

Educational considerations for health professionals to effectively work with clients with complex regional pain syndrome

ERA Journal ID39745
Article CategoryArticle
AuthorsJohnston-Devin, Colleen, Oprescu, Florin, Wallis, Marianne and Gray, Marion
Journal TitlePLoS One
Journal Citation17 (6)
Article Numbere0269337
Number of Pages16
Year2022
PublisherPublic Library of Science (PLoS)
Place of PublicationUnited States
ISSN1932-6203
Digital Object Identifier (DOI)https://doi.org/10.1371/journal.pone.0269337
Web Address (URL)https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0269337
Abstract

Introduction
People living with complex regional pain syndrome (CRPS), a rare chronic pain disorder, must become experts in their own self-management. Listening to the voice of the patient is often advocated in the pain literature. However, the patient’s option is rarely asked for or considered by clinicians, even when they live with a condition that health professionals have rarely heard of.

Purpose
To explore what people living with complex regional pain syndrome (CRPS) think health professionals should know about their condition to provide appropriate care.

Design
A heuristic, hermeneutic phenomenological study was conducted asking people about their experiences living with CRPS. This paper reports on the findings of an additional question asked of all participants.

Participants
Seventeen people living with complex regional pain syndrome were interviewed.

Findings
Overwhelmingly, participants felt that health professionals do not know enough about CRPS, or chronic pain and believe their health outcomes are affected by this lack of knowledge. Sub-themes identified were don’t touch unless I say it is okay; be patient with the patient/ it is important to develop a relationship; educate yourself and educate the patient; choose your words carefully and refer to others as needed. An additional theme, it is very hard to describe CRPS was also identified.

Conclusions
Including patients as a member of the healthcare team is recommended to help people take control and self-manage their pain. For true patient centered care to be achieved, health professionals must accept and respect patients’ descriptions of pain and their pain experience. This may require additional health professional education at both undergraduate and post-graduate levels in pain and communication to increase their bedside manner and therapeutic communication to deliver care in partnership with the patient.

Keywordshealth professionals; complex regional pain syndrome
ANZSRC Field of Research 2020420602. Health equity
Byline AffiliationsCentral Queensland University
University of the Sunshine Coast
Southern Cross University
Academic Affairs Administration
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