People with disabilities working in the disability sector in Timor Leste: a study of 'lived experience' using PhotoVoice

Article

Shamrock, Jane, Smith, Natalie, Gray, Marion, Cameron, Melainie and Oprescu, Florin. 2017. "People with disabilities working in the disability sector in Timor Leste: a study of 'lived experience' using PhotoVoice." Third World Quarterly. 38 (1), pp. 117-133. https://doi.org/10.1080/01436597.2016.1199258
Article Title

People with disabilities working in the disability sector in Timor Leste: a study of 'lived experience' using PhotoVoice

ERA Journal ID7764
Article CategoryArticle
AuthorsShamrock, Jane (Author), Smith, Natalie (Author), Gray, Marion (Author), Cameron, Melainie (Author) and Oprescu, Florin (Author)
Journal TitleThird World Quarterly
Journal Citation38 (1), pp. 117-133
Number of Pages17
Year2017
Place of PublicationUnited Kingdom
ISSN0143-6597
1360-2241
Digital Object Identifier (DOI)https://doi.org/10.1080/01436597.2016.1199258
Abstract

Perspectives on disability originating from non-Western cultures are beginning to appear in disability literature, however discussions may become lost in rhetoric unless grounded in experiences of people with disabilities themselves. The purpose of this study was to investigate
the lived experience of physical disability in Timor Leste with the assistance of a group of Timorese participants with disabilities who were employed in the disability sector. These participants recounted experiences of disability from their own lives together with their observations of people with disabilities living in remote parts of Timor Leste who often lived with stigma or deprivation. The participants thus described their own lived experiences against a backdrop of a non-Western culture. A picture emerged of a stigmatising culture where acceptance of disability is uncommon yet where significant attempts
are being made to change attitudes to disability within the culture of Timor Leste.

KeywordsPhotoVoice; Timor Leste; disability; development practice; lived experience
ANZSRC Field of Research 2020420199. Allied health and rehabilitation science not elsewhere classified
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Byline AffiliationsUniversity of the Sunshine Coast
Leprosy Mission, Timor-Leste
Institution of OriginUniversity of Southern Queensland
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Cameron, Melainie. 2004. "Arthritides." Kolt, Gregory S. and Andersen, Mark B. (ed.) Psychology in the Physical and Manual Therapies. Edinburgh, United Kingdom. Elsevier. pp. 269-291
Cardiorespiratory fitness testing in Setswana-speaking community-dwelling adults in Potchefstroom, South Africa
Onagbiye, Sunday O., Moss, Sarah J. and Cameron, M.. 2016. "Cardiorespiratory fitness testing in Setswana-speaking community-dwelling adults in Potchefstroom, South Africa." African Journal for Physical Activity and Health Sciences. 22 (2:1), pp. 394-406.
Clinical exercise physiology in the Australian health care system
Selig, Steve, Cameron, Melainie and Rawlings, Kirsty. 2020. "Clinical exercise physiology in the Australian health care system." Willis, Eileen, Reynolds, Louise and Rudge, Trudy (ed.) Understanding the Australian Health Care System. Chatswood, NSW. Elsevier. pp. 295-310
Clinical exercise physiology in the Australian health care system
Selig, Steve, Cameron, Melainie and Fraser, Steve. 2016. "Clinical exercise physiology in the Australian health care system." Willis, Eileen, Reynolds, Louise and Keleher, Helen (ed.) Understanding the Australian Health Care System. Chatswood, NSW. Elsevier. pp. 329-344
Validity and reliability of the Setswana translation of the Short Form-8 health-related quality of life health survey in adults
Onagbiye, Sunday O., Moss, Sarah J. and Cameron, Melainie. 2018. "Validity and reliability of the Setswana translation of the Short Form-8 health-related quality of life health survey in adults." Health SA Gesondheid: Journal of Interdisciplinary Health Sciences. 23, pp. 1-6. https://doi.org/10.4102/hsag.v23i0.1092
Geschichte, ausbildung und praxis der osteopathie in Australien und den USA Ein vergleich [History, education and practice of osteopathy in Australia and in the USA: A comparison]
Cameron, Melainie. 1998. "Geschichte, ausbildung und praxis der osteopathie in Australien und den USA Ein vergleich [History, education and practice of osteopathy in Australia and in the USA: A comparison]." Manuelle Medizin: chirotherapie - manuelle therapie - osteopathische medizin. 36, pp. 282-289. https://doi.org/10.1007/s003370050090
Managing noncommunicable diseases in an African community: effects, compliance, and barriers to participation in a 4-week exercise intervention
Onagbiye, Sunday O., Moss, Sarah J. and Cameron, Melainie. 2016. "Managing noncommunicable diseases in an African community: effects, compliance, and barriers to participation in a 4-week exercise intervention." International Quarterly of Community Health Education. 36 (3), pp. 165-176. https://doi.org/10.1177/0272684X16647357
Referencing and quotation accuracy in four manual therapy journals
Gosling, Cameron McR, Cameron, Melainie and Gibbons, Peter F.. 2004. "Referencing and quotation accuracy in four manual therapy journals." Manual Therapy. 9, pp. 36-40. https://doi.org/10.1016/S1356-689X(03)00056-0
Medicinal use of potato-derived products: a systematic review
Vlachojannis, J. E., Cameron, M. and Chrubasik, S.. 2010. "Medicinal use of potato-derived products: a systematic review." Phytotherapy Research. 24 (2), pp. 159-162. https://doi.org/10.1002/ptr.2829
A systematic review on the Sambuci fructus effect and efficacy profiles
Vlachojannis, J. E., Cameron, M. and Chrubasik, S.. 2010. "A systematic review on the Sambuci fructus effect and efficacy profiles." Phytotherapy Research. 24 (1), pp. 1-8. https://doi.org/10.1002/ptr.2729
Drug interactions with St. John's wort products [Letters to the Editor]
Vlachojannis, Julia, Cameron, Melainie and Chrubasik, Sigrun. 2011. "Drug interactions with St. John's wort products [Letters to the Editor]." Pharmacological Research. 63, pp. 254-256. https://doi.org/10.1016/j.phrs.2010.11.011
Topical herbal therapies for treating osteo-arthritis [Cochrane review - in their own words]
Cameron, Melainie. 2013. "Topical herbal therapies for treating osteo-arthritis [Cochrane review - in their own words]." Journal of Evidence-Based Medicine. 6 (3), pp. 200-200. https://doi.org/10.1111/jebm.12058
Breast size, bra fit and thoracic pain in young women: a correlational study
Wood, Katherine, Cameron, Melainie and Fitzgerald, Kylie. 2008. "Breast size, bra fit and thoracic pain in young women: a correlational study." Chiropractic & Osteopathy. 16. https://doi.org/10.1186/1746-1340-16-1
Evaluation of hydrotherapy, using passive tests and power tests, for recovery across a cyclic week of competitive rugby union
Higgins, Trevor R., Climstein, Mike and Cameron, Melainie. 2013. "Evaluation of hydrotherapy, using passive tests and power tests, for recovery across a cyclic week of competitive rugby union." Journal of Strength and Conditioning Research. 27 (4), pp. 954-965. https://doi.org/10.1519/JSC.0b013e318260ed9b
Community and home-based exercise for the prevention and treatment of hypertension
Cameron, Melainie, Moss, Sarah Johanna, Makamu-Betek, Sweetness J. and Onagbiye, Sunday O.. 2020. "Community and home-based exercise for the prevention and treatment of hypertension." Cochrane Database of Systematic Reviews. 2020 (10), pp. 1-11. https://doi.org/10.1002/14651858.CD013752
Superficial heat or cold for low back pain
French, Simon D., Cameron, Melainie, Walker, Bruce F., Reggars, John W. and Esterman, Adrian J.. 2006. "Superficial heat or cold for low back pain." Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD004750.pub2
When research goes pear-shaped: report and reflections on a failed study of exercise and manual therapies for rheumatoid arthritis
Cameron, Melainie. 2007. "When research goes pear-shaped: report and reflections on a failed study of exercise and manual therapies for rheumatoid arthritis." Complementary Health Practice Review. 12 (1), pp. 63-77. https://doi.org/10.1177/1533210107302439
Acute response to hydrotherapy after a simulated game of rugby
Higgins, Trevor R., Cameron, Melainie L. and Climstein, Mike. 2013. "Acute response to hydrotherapy after a simulated game of rugby." Journal of Strength and Conditioning Research. 27 (10), pp. 2851-2860. https://doi.org/10.1519/JSC.0b013e31828151b6
Topical herbal therapies for treating osteoarthritis (review)
Cameron, Melainie and Chrubasik, Sigrun. 2013. "Topical herbal therapies for treating osteoarthritis (review)." Cochrane Database of Systematic Reviews. 2013 (5). https://doi.org/10.1002/14651858.CD010538
Oral herbal therapies for treating osteoarthritis (review)
Cameron, Melainie and Chrubasik, Sigrun. 2014. "Oral herbal therapies for treating osteoarthritis (review)." Cochrane Database of Systematic Reviews. 2014 (5). https://doi.org/10.1002/14651858.CD002947.pub2
Herbal therapy for treating rheumatoid arthritis (review)
Cameron, Melainie, Gagnier, Joel J. and Chrubasik, Sigrun. 2011. "Herbal therapy for treating rheumatoid arthritis (review)." Cochrane Database of Systematic Reviews. 2011 (2). https://doi.org/10.1002/14651858.CD002948.pub2
Comment on: 'Do biokineticists transgress on physiotherapists’ scope of profession? Evidence-based analysis of two physical rehabilitation disciplines in South Africa'
Grace, Jeanne M., Hopkins, Neil and Cameron, Melanie. 2019. "Comment on: 'Do biokineticists transgress on physiotherapists’ scope of profession? Evidence-based analysis of two physical rehabilitation disciplines in South Africa'." African Journal for Physical Activity and Health Sciences. 25 (3), pp. 444-449.
Quality of life, physical activity and cardiorespiratory fitness in black African women: B-Healthy project
Oviedo, G. R., Tamulevicius, N., Onagbiye, S. O., Phidza, M., Sedumedi, C., Cameron, M. and Moss, S. J.. 2020. "Quality of life, physical activity and cardiorespiratory fitness in black African women: B-Healthy project." Quality of Life Research. 29 (4), pp. 987-997. https://doi.org/10.1007/s11136-019-02368-6
The ‘Checklist of Leisure, Interest and Participation’: Exploring the general population current leisure interests in the 21st century
Levick, Jessica, Broome, Kieran and Oprescu, Florin. 2019. "The ‘Checklist of Leisure, Interest and Participation’: Exploring the general population current leisure interests in the 21st century." 53rd Japanese Occupational Therapy Congress & Expo. Fukuoka, Japan 06 - 06 Sep 2019 Japan.
A contemporary leisure activity inventory: Exploring the general population current leisure interests in the 21st century
Levick, Jessica, Broome, Kieran and Oprescu, Florin. 2019. "A contemporary leisure activity inventory: Exploring the general population current leisure interests in the 21st century ." Occupational Therapy Australia 28th National Conference and Exhibition . Gold Coast, Australia 10 - 12 Jul 2019 Australia.
Instructor perceptions of using a mobile phone-based, free classroom response system in first-year statistics undergraduate courses: implications for teaching practice
Dunn, Peter K., Richardson, Alice, McDonald, Christine, Oprescu, Florin and Fairweather, Helen. 2011. "Instructor perceptions of using a mobile phone-based, free classroom response system in first-year statistics undergraduate courses: implications for teaching practice." Hannah, John and Thomas, Mike (ed.) 8th Southern Hemisphere Conference on the Teaching and Learning of Undergraduate Mathematics and Statistics: Volcanic Delta 2011. Rotorua, New Zealand 27 Nov - 02 Dec 2011
CRiSP: an instrument for assessing student perceptions of classroom response systems
Richardson, Alice M., Dunn, Peter K., McDonald, Christine and Oprescu, Florin. 2015. "CRiSP: an instrument for assessing student perceptions of classroom response systems." Journal of Science Education and Technology. 24 (4), pp. 432-447. https://doi.org/10.1007/s10956-014-9528-2
It hurts to move. The catch-22 of physical activity for people with chronic pain
Cameron, Lainie and White, Janelle. 2015. "It hurts to move. The catch-22 of physical activity for people with chronic pain." Andersen, Mark B. and Hanrahan, Stephanie J. (ed.) Doing exercise psychology. United States. Human Kinetics Publishers. pp. 189-200
Mobile-phone-based classroom response systems: students' perceptions of engagement and learning in a large undergraduate course
Dunn, Peter K., Richardson, Alice, Oprescu, Florin and McDonald, Christine. 2013. "Mobile-phone-based classroom response systems: students' perceptions of engagement and learning in a large undergraduate course." International Journal of Mathematical Education in Science and Technology. 44 (8), pp. 1160-1174. https://doi.org/10.1080/0020739X.2012.756548
Instructor perceptions of using a mobile-phone-based, free classroom response system in first-year statistics undergraduate courses
Dunn, Peter K., Richardson, Alice, McDonald, Christine and Oprescu, Florin. 2012. "Instructor perceptions of using a mobile-phone-based, free classroom response system in first-year statistics undergraduate courses." International Journal of Mathematical Education in Science and Technology. 43 (8), pp. 1041-1056. https://doi.org/10.1080/0020739X.2012.678896
The effectiveness of manual therapy for neck pain: a systematic review of the literature
Macaulay, J., Cameron, Melainie and Vaughan, B.. 2013. "The effectiveness of manual therapy for neck pain: a systematic review of the literature." Physical Therapy Reviews. 12 (3), pp. 261-267. https://doi.org/10.1179/108331907X223038
Best Available Evidence in Cochrane Reviews on Herbal Medicine?
Davidson, Elyad, Vlachojannis, Julia, Cameron, Melainie and Chrubasik, Sigrun. 2013. "Best Available Evidence in Cochrane Reviews on Herbal Medicine?" Evidence-Based Complementary and Alternative Medicine. 2013, pp. 1-7. https://doi.org/10.1155/2013/163412
Evaluation of passive recovery, cold water immersion, and contrast baths for recovery, as measured by game performances markers, between two simulated games of rugby union
Higgins, Trevor, Cameron, Melainie and Climstein, Michael. 2012. "Evaluation of passive recovery, cold water immersion, and contrast baths for recovery, as measured by game performances markers, between two simulated games of rugby union." Journal of Strength and Conditioning Research. https://doi.org/10.1519/JSC.0b013e31825c32b9
The journal 'chiropractic & osteopathy' changes its title to 'chiropractic & manual therapies'. a new name, a new era
Walker, Bruce F., French, Simon D., Cameron, Melainie, Perle, Stephen M., Lebouef-Yde, C. and Rubenstein, Sidney M.. 2011. "The journal 'chiropractic & osteopathy' changes its title to 'chiropractic & manual therapies'. a new name, a new era." Chiropractic and Manual Therapies. 19, pp. 1-2. https://doi.org/10.1186/2045-709X-19-1
Letter to the Editor: Herbal Medicinal Treatment Options for Headache and Migraine
Vlachojannis, Julia, Cameron, Melainie and Chrubasik, Sigrun. 2011. "Letter to the Editor: Herbal Medicinal Treatment Options for Headache and Migraine." Headache. 51 (8), pp. 1350-1351. https://doi.org/10.1111/j.1526-4610.2011.01981.x
Chiropractic & Osteopathy
Cameron, Melainie, French, S. and Minter, W.. 2009. "Chiropractic & Osteopathy." Grimmer-Somers, Karen, Kumar, Saravana, Worley, Anthea and Young, Alexandra (ed.) Practical Tips in Finding the Evidence: An Allied Health Primer. Manila, Philippines. University of Santo Tomas Publishing House. pp. 56-84
Evidence of Effectiveness of Herbal Medicinal Products in the Treatment of Arthritis Part 2: Rheumatoid Arthritis
Cameron, Melainie, Gagnier, Joel J., Little, Christine, Parsons Tessa J., Blumle, Anette and Chrubasik, Sigrun. 2009. "Evidence of Effectiveness of Herbal Medicinal Products in the Treatment of Arthritis Part 2: Rheumatoid Arthritis." Phytotherapy Research. 23 (12), pp. 1647-1662. https://doi.org/10.1002/ptr.3006
Evidence of Effectiveness of Herbal Medicinal Products in the Treatment of Arthritis Part 1: Osteoarthritis
Cameron, Melainie, Gagnier, J., Christine V., L., Parsons, T., J., Blumle, A. and Chrubasik, S.. 2009. "Evidence of Effectiveness of Herbal Medicinal Products in the Treatment of Arthritis Part 1: Osteoarthritis." Phytotherapy Research. 23 (11), pp. 1497-1515. https://doi.org/10.1002/ptr.3007
A systematic review on the effectiveness of willow bark for musculoskeletal pain
Vlachojannis, J., Cameron, M. and Chrubasik, S.. 2009. "A systematic review on the effectiveness of willow bark for musculoskeletal pain." Phytotherapy Research. 23 (7), pp. 897-900. https://doi.org/10.1002/ptr.2747
A pilot program of physical activity promotion among clients receiving home and community care
Cameron, Melainie, Chahine, Natalie, Selig, Steve and Newton, Pam. 2008. "A pilot program of physical activity promotion among clients receiving home and community care." Australian Health Review. 32 (3), pp. 439-450. https://doi.org/10.1071/AH080439