Living with CRPS: patients in partnership
Poster
Johnston, Colleen M., Oprescu, Florin I., Gray, Marion and Wallis, Marianne. 2017. "Living with CRPS: patients in partnership." 2017 IASP Special Interest Group in Complex Regional Pain
Syndrome. Cork, Ireland 31 Aug - 01 Sep 2017 Queensland, Australia.
| Paper/Presentation Title | Living with CRPS: patients in partnership |
|---|---|
| Presentation Type | Poster |
| Authors | Johnston, Colleen M. (Author), Oprescu, Florin I. (Author), Gray, Marion (Author) and Wallis, Marianne (Author) |
| Year | 2017 |
| Place of Publication | Queensland, Australia |
| Web Address (URL) of Paper | https://journals.lww.com/painrpts/Fulltext/2018/01000/Abstracts_from_Proceedings_Cork_CRPS_2017__IASP.3.aspx |
| Conference/Event | 2017 IASP Special Interest Group in Complex Regional Pain Syndrome |
| Event Details | 2017 IASP Special Interest Group in Complex Regional Pain
Syndrome Event Date 31 Aug 2017 to end of 01 Sep 2017 Event Location Cork, Ireland |
| Abstract | Introduction: The aim is to describe the partnerships and resources accessed by individuals before and after diagnosis with CRPS. Methods: Individuals around the world who have been formally diagnosed with CRPS were interviewed face to face and on Skype. Interviews and analysis will conclude in July. Results: While waiting for formal diagnosis and treatment, people with CRPS turn to the internet for information. Websites and support groups are relatively easy to find and the individuals form partnerships with peers through online environments. These sites, however, offer varying levels of correct and appropriate information, posts often catastrophize the condition, question treatment options, and do not demonstrate that full recovery or remission is possible. Multidisciplinary health care teams offer much to the patient but occasionally the health practitioner does not understand the lived experience of the patient and does not partner with the patient on the health journey. As one participant said: '...the hardest thing is that my life is not my own. You make the decisions as to what my life is going to be and I’ve got to do whatever I can to convince you to help me because I’m stuffed without you.' Conclusion: Better CRPS treatment can result from better understanding the lived experience of patients. Offering valuable insight into the condition, patients can be a valuable member of the healthcare team treating this condition. Such a partnership may result in better health outcomes and improved quality of life through client empowerment. |
| Keywords | Nursing; CRPS |
| ANZSRC Field of Research 2020 | 420599. Nursing not elsewhere classified |
| Byline Affiliations | University of the Sunshine Coast |
| Institution of Origin | University of Southern Queensland |
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