Speech-Language Pathologists in Pediatric Palliative Care: An International Study of Perceptions and Experiences
Article
Krikheli, Lillian, Erickson, Shane, Carey, Lindsay B., Carey-Sargeant, Christa L. and Mathisen, Bernice A.. 2021. "Speech-Language Pathologists in Pediatric Palliative Care: An International Study of Perceptions and Experiences." American Journal of Speech-Language Pathology. 30 (1), pp. 150-168. https://doi.org/10.1044/2020_AJSLP-20-00090
| Article Title | Speech-Language Pathologists in Pediatric Palliative Care: An International Study of Perceptions and Experiences |
|---|---|
| ERA Journal ID | 15660 |
| Article Category | Article |
| Authors | Krikheli, Lillian, Erickson, Shane, Carey, Lindsay B., Carey-Sargeant, Christa L. and Mathisen, Bernice A. |
| Journal Title | American Journal of Speech-Language Pathology |
| Journal Citation | 30 (1), pp. 150-168 |
| Number of Pages | 19 |
| Year | 2021 |
| Place of Publication | United States |
| ISSN | 1058-0360 |
| 1558-9110 | |
| Digital Object Identifier (DOI) | https://doi.org/10.1044/2020_AJSLP-20-00090 |
| Web Address (URL) | https://pubs.asha.org/doi/10.1044/2020_AJSLP-20-00090 |
| Abstract | Purpose: The purpose of this study is to gather qualitative data regarding the experiences and perceptions of speechlanguage pathologists (SLPs) practicing in pediatric palliative care (PPC) and investigate their approaches for working with patients, families, and the multidisciplinary team. Method: Ten participants from Australia, Canada, and the United States were recruited from a previous survey study. In-depth interviews were conducted via videoconferencing. Two coders used NVivo software to record and organize the data into themes. Interrater reliability of the coding was established with a third coder. The COnsolidated criteria for REporting Qualitative research 32-item checklist has been used for reporting the research. Results: Interrater coding reliability (using weighted kappa) was .81, indicating “almost perfect” agreement on the selection of themes from the code frame. Emerging themes included clinical interventions, unique SLP skills in PPC, multidisciplinary team relationships, workforce issues, education and training, governance, medicolegal considerations, bioethical issues, and holistic care. Additional subthemes are also noted. In the absence of research evidence and practice recommendations, SLPs rely on client perspectives and clinical experience to guide their professional practice in PPC. Conclusions: Qualitative survey analysis of the perceptions and experiences of SLP clinicians from three postindustrial countries identified nine major themes regarding PPC. Results expand on limited literature to date in the area of PPC. Future research using larger samples is needed to provide clinicians with best practice recommendations for working with patients, families, and the broader care team. |
| Keywords | Australia; Child; Humans; Palliative Care; Pathologists; Perception; Reproducibility of Results; Speech; Speech-Language Pathology |
| ANZSRC Field of Research 2020 | 420110. Speech pathology |
| Public Notes | Files associated with this item cannot be displayed due to copyright restrictions. |
| Byline Affiliations | La Trobe University |
| University of Melbourne | |
| Southern Cross University |
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