How should we design study invitation materials for cancer survivorship research? Findings from a consumer consultation study
Poster
Paper/Presentation Title | How should we design study invitation materials for cancer survivorship research? Findings from a consumer consultation study |
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Presentation Type | Poster |
Authors | BourdaniotisI, Xanthia E., Ayre, Susannah K., Johnston, Elizabeth (Lizzy) A., Zajdlewicz, Leah, Beesley, Vanessa L., Pole,Jason D., Hansen, Aaron, Gasper, Harry, Cossio, Danica, Lock, Gemma and Goodwin, Belinda C. |
Journal or Proceedings Title | Asia Pacific Journal of Clinical Oncology |
Journal Citation | 20 (S3), pp. 201-202 |
Number of Pages | 2 |
Year | 2024 |
Publisher | John Wiley & Sons |
Place of Publication | United Kingdom |
ISSN | 1743-7555 |
1743-7563 | |
Web Address (URL) of Paper | https://onlinelibrary.wiley.com/doi/10.1111/ajco.14117 |
Web Address (URL) of Conference Proceedings | https://onlinelibrary.wiley.com/toc/17437563/2024/20/S3 |
Conference/Event | 51st COSA Annual Scientific Meeting |
Event Details | 51st COSA Annual Scientific Meeting Delivery In person Event Date 13 to end of 15 Nov 2024 Event Location Gold Coast, Australia Event Venue Gold Coast Convention and Exhibition Centre |
Abstract | Aims: Consumer involvement in the design of study materials can ensure their relevance and sensitivity to the target population, leading to higher enrolment rates. This study aimed to co-design and test study invitation materials that are relevant and acceptable to cancer survivors and their caregivers for a population-based survey aiming to capture their supportive care needs and experiences. Methods: Fifty-two community members, including survivors and caregivers, participated across 15 group workshops and 20 individual interviews. Sample size was determined through concurrent data collection and analysis. During workshops, participants provided feedback regarding the design, wording and layout of a standard invitation letter typically used in registry-based study recruitment. Principles for designing study invitation materials were then identified through content analysis of workshop transcripts. Using these principles, the research team revised the invitation materials. The acceptability of the revised materials was tested through the interviews. Results: Based on consumer feedback, study invitation materials (an invitation letter and a flyer) were created. In the interviews, these invitation materials were found to be acceptable to community members. Eleven principles for designing invitation materials were identified from the consumer consultations: (i) communicate empathy and sensitivity; (ii) consider appropriate timing for participation request; (iii) convey credibility and legitimacy; (iv) facilitate reciprocal benefit; (v) include a ‘human element’; (vi) increase accessibility and ease of participation; (vii) optimise readability; (viii) promote inclusivity; (ix) provide reassurance around privacy; (x) encourage participation through a call to action; and (xi) support informed decisions. Conclusions: Through active and repeated consultation with community members, this study developed study invitation materials that were acceptable and relevant to community members. The principles identified in this study can be used by other researchers to develop invitation materials that are sensitive to the needs and preferences of community members to optimise participation in cancer research. |
Contains Sensitive Content | Does not contain sensitive content |
Public Notes | Files associated with this item cannot be displayed due to copyright restrictions. |
Byline Affiliations | Cancer Council Queensland, Australia |
Queensland University of Technology | |
QIMR Berghofer Medical Research Institute, Australia | |
University of Queensland | |
University of Toronto, Canada | |
Princess Alexandra Hospital, Australia | |
Centre for Health Research | |
Coastal Cancer Care, Australia | |
Cancer Alliance Queensland, Australia | |
University of Melbourne |
https://research.usq.edu.au/item/zqz65/how-should-we-design-study-invitation-materials-for-cancer-survivorship-research-findings-from-a-consumer-consultation-study
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