Ethical issues for qualitative research in on-line communities

Article

Brownlow, Charlotte and O'Dell, Lindsay. 2002. "Ethical issues for qualitative research in on-line communities." Disability and Society. 17 (6), pp. 685-694. https://doi.org/10.1080/0968759022000010452
Article Title

Ethical issues for qualitative research in on-line communities

ERA Journal ID35345
Article CategoryArticle
AuthorsBrownlow, Charlotte (Author) and O'Dell, Lindsay (Author)
Journal TitleDisability and Society
Journal Citation17 (6), pp. 685-694
Number of Pages10
Year2002
PublisherTaylor & Francis
Place of PublicationUnited Kingdom
ISSN0968-7599
1360-0508
Digital Object Identifier (DOI)https://doi.org/10.1080/0968759022000010452
Web Address (URL)http://www.tandfonline.com/toc/cdso20/17/6
Abstract

Recent years have witnessed a rapid growth in Internet technologies, which offer new possibilities for researching hard to reach groups. However, research guidelines,which could aid research in this new forum, have not yet been fully developed. The focus of the article will be ethical issues that may arise from using the Internet as a research tool if we are to protect and respect our participants. Questions surrounding gaining informed consent, privacy of participants and new power differentials, which may arise through interaction in an on-line forum, are raised. These are supplemented by reflections from work conducted by the authors using on-line discussion formus as method of research with people with autism.

Keywordsinternet; ethics; ethical issues
ANZSRC Field of Research 2020520199. Applied and developmental psychology not elsewhere classified
Public Notes

Accepted version deposited in accordance with the copyright policy of the publisher. Reprinted in 2014 book Researching Society Online, v. 2 Part 1, Sage, London (Record #27981).

Byline AffiliationsUniversity of Luton, United Kingdom
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A critical consideration of the use of therapeutic recordings in the training and professional development of psychologists
Lamont-Mills, Andrea, Christensen, Steven and Brownlow, Charlotte. 2014. "A critical consideration of the use of therapeutic recordings in the training and professional development of psychologists." Journal of Critical Psychology, Counselling, and Psychotherapy. 14 (4), pp. 276-285.
Deficit and asset identity constructions of single women without children living in Australia: an analysis of discourse
Addie, Elizabeth and Brownlow, Charlotte. 2014. "Deficit and asset identity constructions of single women without children living in Australia: an analysis of discourse." Feminism and Psychology. 24 (4), pp. 423-439. https://doi.org/10.1177/0959353514539463
Constructing a theory of mind: reflections by people with autism
O'Dell, Lindsay and Brownlow, Charlotte. 2004. "Constructing a theory of mind: reflections by people with autism." British Psychological Society Developmental Psychology Conference (2004). Leeds, United Kingdom 02 - 05 Sep 2004
SPSS explained
Hinton, Perry, Brownlow, Charlotte, McMurray, Isabella and Cozens, Bob. 2004. SPSS explained. London, United Kingdom. Routledge.
The citizen-worker: ambivalent meanings of 'real jobs', 'full citizenship' and 'adulthood' in the case of autistic people
Bertilsdotter Rosqvist, Hanna, O'Dell, Lindsay and Brownlow, Charlotte. 2014. "The citizen-worker: ambivalent meanings of 'real jobs', 'full citizenship' and 'adulthood' in the case of autistic people." Australian Community Psychologist. 26 (1), pp. 18-27.
Autism as a form of biological citizenship
Brownlow, Charlotte and O'Dell, Lindsay. 2013. "Autism as a form of biological citizenship." Davidson, Joyce and Orsini, Michael (ed.) Worlds of autism: across the spectrum of neurological difference. Minneapolis, MN. United States. University of Minnesota Press. pp. 97-114
Exploring the potential for social networking among people with autism: challenging dominant ideas of 'friendship'
Brownlow, Charlotte, Bertilsdotter Rosqvist, Hanna and O'Dell, Lindsay. 2015. "Exploring the potential for social networking among people with autism: challenging dominant ideas of 'friendship'." Scandinavian Journal of Disability Research. 17 (2), pp. 188-193. https://doi.org/10.1080/15017419.2013.859174
Becoming an autistic adult: exploring the transitions of young people with autism from education/care to working life
O'Dell, Lindsay, Brownlow, Charlotte and Bertilsdotter Rosqvist, Hanna. 2013. "Becoming an autistic adult: exploring the transitions of young people with autism from education/care to working life." Alexander, Michael, Baird, Marian and Pocock, Barbara (ed.) 5th International Community, Work and Family Conference (CWFC 2013): Changes and Challenges in a Globalising World. Sydney, Australia 17 - 19 Jul 2013 Sydney, Australia.
Commentary: challenging representations of autism – exploring possibilities for broadcasting the self on YouTube
Brownlow, Charlotte, O'Dell, Lindsay and Bertilsdotter Rosqvist, Hanna. 2013. "Commentary: challenging representations of autism – exploring possibilities for broadcasting the self on YouTube." Journal on Developmental Disabilities. 19 (1), pp. 90-95.
Making friends
Brownlow, Charlotte. 2012. "Making friends." Brace, Nicola and Byford, Jovan (ed.) Investigating psychology: key concepts, key studies, key approaches. Oxford, United Kingdom. Oxford University Press. pp. 233-271
The development of friendships and sociality: exploring the friendships of people with autism
Brownlow, Charlotte, O'Dell, Lindsay and Bertilsdotter Rosqvist, Hanna. 2012. "The development of friendships and sociality: exploring the friendships of people with autism." 47th Annual Australasian Society for Intellectual Development Conference (ASID 2012): Research to Practice. Wellington, New Zealand 07 - 09 Nov 2012 Keswick, SA. Australia.
Mapping the social geographies of autism: online and off-line narratives of neuro-shared and separate spaces
Bertilsdotter Rosqvist, Hanna, Brownlow, Charlotte and O'Dell, Lindsay. 2013. "Mapping the social geographies of autism: online and off-line narratives of neuro-shared and separate spaces." Disability and Society. 28 (3), pp. 367-379. https://doi.org/10.1080/09687599.2012.714257
Constructions of Aspergers syndrome identity in public spaces: explorations in online and offline interactions
Bertilsdotter Rosqvist, Hanna, Brownlow, Charlotte and O'Dell, Lindsay. 2011. "Constructions of Aspergers syndrome identity in public spaces: explorations in online and offline interactions ." Disability and Public Space Conference 2011. Oslo, Norway 28 - 29 Apr 2011 Oslo, Norway.
Understanding, and working with, autism: from deficit to neurodiversity
Brownlow, Charlotte. 2010. "Understanding, and working with, autism: from deficit to neurodiversity ." Making Research Count Workshop (2010). Kings College, United Kingdom 11 May 2010
Transitioning to adulthood: autism and biological citizenship
Brownlow, Charlotte and O'Dell, Lindsay. 2011. "Transitioning to adulthood: autism and biological citizenship." 7th Biennial Conference of the International Society of Critical Health Psychology. Adelaide, Australia 18 - 20 Apr 2011
Exploring the transitions of young people with autism from childhood to young adulthood
O'Dell, Lindsay and Brownlow, Charlotte. 2009. "Exploring the transitions of young people with autism from childhood to young adulthood." 7th European Congress of Community Psychology. Paris, france 29 - 30 Oct 2009
Constructing 'NT Syndrome': impairments of being non-autistic
Brownlow, Charlotte and O'Dell, Lindsay. 2008. "Constructing 'NT Syndrome': impairments of being non-autistic." 2nd International Conference on Community Psychology (2ICCP). Lisbon, Portugal 04 - 06 Jun 2008
Constructing an autistic identity: AS voices online
Brownlow, Charlotte and O'Dell, Lindsay. 2006. "Constructing an autistic identity: AS voices online." Intellectual and Developmental Disabilities: journal of policy, practice, and perspectives. 44 (5), pp. 315-321. https://doi.org/10.1352/0047-6765
Media reports of links between MMR and autism: a discourse analysis
O'Dell, Lindsay and Brownlow, Charlotte. 2005. "Media reports of links between MMR and autism: a discourse analysis." British Journal of Learning Disabilities. 33, pp. 194-199. https://doi.org/10.1111/j.1468-3156.2005.00304.x
Making friends
Brownlow, Charlotte. 2010. "Making friends." Brace, Nicola and Byford, Jovan (ed.) Discovering psychology. Milton Keynes, United Kingdom. Open University Press. pp. 233-269
Presenting the self: negotiating a label of autism
Brownlow, Charlotte. 2010. "Presenting the self: negotiating a label of autism." Journal of Intellectual and Developmental Disability. 35 (1), pp. 14-21. https://doi.org/10.3109/13668250903496336
Neurodiverse spaces: exploring the potential for social networking to reconstruct our ideas of 'friendship'
O'Dell, Lindsay, Brownlow, Charlotte and Bertilsdotter Rosqvist, Hanna. 2011. "Neurodiverse spaces: exploring the potential for social networking to reconstruct our ideas of 'friendship'." Critical Autism Seminar Day (2011). Sheffield, United Kingdom 18 Jan 2011
Challenging understandings of 'Theory of Mind': a brief report
Brownlow, Charlotte and O'Dell, Lindsay. 2009. "Challenging understandings of 'Theory of Mind': a brief report." Intellectual and Developmental Disabilities: journal of policy, practice, and perspectives. 47 (6), pp. 473-478. https://doi.org/10.1352/1934-9556-47.6.473
Re-presenting autism: the construction of 'NT Syndrome'
Brownlow, Charlotte. 2010. "Re-presenting autism: the construction of 'NT Syndrome'." Journal of Medical Humanities. 31 (3), pp. 243-255. https://doi.org/10.1007/s10912-010-9114-4
Representations of autism: implications for community healthcare practice
Brownlow, Charlotte and O'Dell, Lindsay. 2009. "Representations of autism: implications for community healthcare practice." Community Practitioner. 82 (7), pp. 18-21.