Parental Experiences of Engaging With the National Disability Insurance Scheme for Their Children: A Systematic Literature Review
Article
Russo, Fiona, Brownlow, Charlotte and Machin, Tanya. 2021. "Parental Experiences of Engaging With the National Disability Insurance Scheme for Their Children: A Systematic Literature Review." Journal of Disability Policy Studies. 32 (2), pp. 67-75. https://doi.org/10.1177/1044207320943607
| Article Title | Parental Experiences of Engaging With the National Disability Insurance Scheme for Their Children: A Systematic Literature Review |
|---|---|
| ERA Journal ID | 200965 |
| Article Category | Article |
| Authors | Russo, Fiona (Author), Brownlow, Charlotte (Author) and Machin, Tanya (Author) |
| Journal Title | Journal of Disability Policy Studies |
| Journal Citation | 32 (2), pp. 67-75 |
| Number of Pages | 9 |
| Year | 2021 |
| Place of Publication | United States |
| ISSN | 1044-2073 |
| 1538-4802 | |
| Digital Object Identifier (DOI) | https://doi.org/10.1177/1044207320943607 |
| Web Address (URL) | https://journals.sagepub.com/doi/10.1177/1044207320943607 |
| Abstract | The Australian National Disability Insurance Scheme (NDIS) reached full national implementation in July 2019. It supports Australians with disabilities via individualised funding packages for disability-specific services and assistive technology. This systematic review of literature presents research describing the experiences of parents of children with disabilities in accessing and participating in the fledging NDIS and makes recommendations to assist the Agency in better supporting new participant families. |
| Keywords | NDIS, parental experiences, service provision, disability, individualised funding scheme |
| ANZSRC Field of Research 2020 | 529999. Other psychology not elsewhere classified |
| Byline Affiliations | University of Southern Queensland |
| Institution of Origin | University of Southern Queensland |
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Brownlow, Charlotte, O'Dell, Lindsay and Machin, Tanya. 2017. "Understanding the autistic individual: a practical guide to discourse analysis." O'Reilly, Michelle, Lester, Jessica Nina and Muskett, Tom (ed.) A practical guide to social interaction research in autism spectrum disorders. London, United Kingdom. Palgrave Macmillan. pp. 141-165Profiling Autism Symptomatology: An Exploration of the Q-ASC Parental Report Scale in Capturing Sex Differences in Autism
Ormond, Sarah, Brownlow, Charlotte, Garnett, Michelle, Rykiewicz, Agnieszka and Attwood, Tony. 2018. "Profiling Autism Symptomatology: An Exploration of the Q-ASC Parental Report Scale in Capturing Sex Differences in Autism." Journal of Autism and Developmental Disorders. 48 (2), pp. 389-403. https://doi.org/10.1007/s10803-017-3324-9Recommendations for male-friendly individual counseling with men: A qualitative systematic literature review for the period 1995–2016
Beel, Nathan, Jeffries, Carla, Brownlow, Charlotte, Winterbotham, Sonya and du Preez, Jan. 2018. "Recommendations for male-friendly individual counseling with men: A qualitative systematic literature review for the period 1995–2016." Psychology of Men and Masculinity. 19 (4), pp. 600-611. https://doi.org/10.1037/men0000137Different childhoods: non/normative development and transgressive trajectories
O'Dell, Lindsay, Brownlow, Charlotte and Bertilsdotter-Rosqvist, Hanna. 2018. Different childhoods: non/normative development and transgressive trajectories. London, United Kingdom. Routledge.Farmers tell us how to help improve their mental health help-seeking
Vayro, C., Brownlow, C., Ireland, M. and March, S.. 2017. "Farmers tell us how to help improve their mental health help-seeking." 9th Australian Rural and Remote Mental Health Symposium. Albury, Australia 11 - 13 Oct 2017 Nerang, Qld, Australia.Farmers are not seeking help: what does service provision have to do with it?
Vayro, C., Brownlow, C., Ireland, M. and March, S.. 2017. "Farmers are not seeking help: what does service provision have to do with it?" 14th World Rural Health Conference (Wonca 2017). Cairns, QLD 29 Apr - 02 May 2017Farmers aren't seeking help for mental health: their partners tell us why
Vayro, Caitlin, Brownlow, Charlotte, Ireland, Michael and March, Sonja. 2017. "Farmers aren't seeking help for mental health: their partners tell us why." Coleman, Leanne (ed.) 14th National Rural Health Conference. Cairns, Australia 26 - 29 Mar 2017 Canberra, Australia.Stories from Queensland farmers: 'why we don't seek help for mental health'
Vayro, Caitlin, Brownlow, Charlotte, Ireland, Michael and March, Sonja. 2016. "Stories from Queensland farmers: 'why we don't seek help for mental health'." 8th Rural and Remote Mental Health Symposium (2016). Kingscliff, Australia 03 - 04 Nov 2016Technologies to enhance communication for persons with autism spectrum disorder
Song, Helena and Brownlow, Charlotte. 2015. "Technologies to enhance communication for persons with autism spectrum disorder." Spector, J. Michael (ed.) The SAGE encyclopedia of educational technology. United States. SAGE Publications Ltd. pp. 738-739Ethical issues for qualitative research in on-line communities
Brownlow, Charlotte and O'Dell, Lindsay. 2014. "Ethical issues for qualitative research in on-line communities." David, Matthew and Millward, Peter (ed.) Researching society online. United Kingdom. SAGE Publications Ltd. pp. 247-257From ‘likes’ to unfriending: the need to belong and relational information on Facebook
Machin, Tanya M.. 2016. From ‘likes’ to unfriending: the need to belong and relational information on Facebook. PhD Thesis Doctor of Philosophy. University of Southern Queensland.Predictors of successful employment outcomes for adolescents with autism spectrum disorders: a systematic literature review
Pillay, Yosheen and Brownlow, Charlotte. 2017. "Predictors of successful employment outcomes for adolescents with autism spectrum disorders: a systematic literature review." Review Journal of Autism and Developmental Disorders. 4 (1), pp. 1-11. https://doi.org/10.1007/s40489-016-0092-yEthical practice in research about children
O'Dell, Lindsay and Brownlow, Charlotte. 2016. "Ethical practice in research about children." Prior, Jess and Van Herwegen, Jo (ed.) Practical research with children. United Kingdom. Routledge. pp. 285-300Normative development and the autistic child
O'Dell, Lindsay and Brownlow, Charlotte. 2015. "Normative development and the autistic child." O'Reilly, Michelle and Lester, Jessica Nina (ed.) The Palgrave handbook of child mental health: discourse and conversation studies. United Kingdom. Palgrave Macmillan. pp. 296-312Investigating Interoception and Body Awareness in Adults With and Without Autism Spectrum Disorder
Fiene, Lisa and Brownlow, Charlotte. 2015. "Investigating Interoception and Body Awareness in Adults With and Without Autism Spectrum Disorder." Autism Research. 8 (6), pp. 709-716. https://doi.org/10.1002/aur.1486The production of the 'normal child': exploring co-constructions of parents, children and therapists
Brownlow, Charlotte and Lamont-Mills, Andrea. 2015. "The production of the 'normal child': exploring co-constructions of parents, children and therapists." O'Reilly, Michelle and Lester, Jessica Nina (ed.) The Palgrave handbook of child mental health: discourse and conversation studies. United Kingdom. Palgrave Macmillan. pp. 233-251Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism
O'Dell, Lindsay, Brownlow, Charlotte, Bertilsdotter Rosqvist, Hanna, Orsini, Michael and Ortega, Francisco. 2015. "Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism." 16th Biennial Conference of the International Society for Theoretical Psychology Conference. Coventry, UK 26 - 30 Jun 2015To disclose or not to disclose: workforce experiences of employees with ASD
Brownlow, Charlotte and Werth, Shalene. 2015. "To disclose or not to disclose: workforce experiences of employees with ASD." 7th Australian Rural and Remote Mental Health Symposium. Creswick, Australia 26 - 28 Oct 2015Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism
O'Dell, Lindsay, Bertilsdotter Rosqvist, Hanna, Ortega, Francisco, Brownlow, Charlotte and Orsini, Michael. 2016. "Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism." Disability and Society. 31 (2), pp. 166-179. https://doi.org/10.1080/09687599.2016.1164026The experiences of students with mental health difficulties at an Australian regional university: overcoming barriers to successful educational and employment outcomes
Brownlow, Charlotte, du Preez, Jan, Ganguly, Rahul and Graham, Coralie. 2015. "The experiences of students with mental health difficulties at an Australian regional university: overcoming barriers to successful educational and employment outcomes." 7th Australian Rural and Remote Mental Health Symposium. Creswick, Australia 26 - 28 Oct 2015Resilience/thriving in post-secondary students with disabilities: an exploratory study
Ganguly, Rahul, Brownlow, Charlotte, Du Preez, Jan and Graham, Coralie. 2015. Resilience/thriving in post-secondary students with disabilities: an exploratory study. Perth, Australia. Curtin University.Resilience/thriving in post-secondary students with disabilities: an exploratory study
Ganguly, Rahul, Brownlow, Charlotte, Du Preez, Jan and Graham, Coralie. 2015. Resilience/thriving in post-secondary students with disabilities: an exploratory study. Perth, Australia. Curtin University.To 'like' or not to 'like': a thematic analysis of social cues on Facebook
Machin, T., Jeffries, C. and Brownlow, C.. 2015. "To 'like' or not to 'like': a thematic analysis of social cues on Facebook." 50th Australian Psychological Society Annual Conference (APS 2015): Celebrating the Past, Looking Toward the Future. Gold Coast, Australia 29 Sep - 02 Oct 2015 Australia.Threat and opportunity: the impact of social inclusion and feedback recipient likeability on feedback, self-esteem and belonging
Machin, T. M. and Jeffries, C. H.. 2013. "Threat and opportunity: the impact of social inclusion and feedback recipient likeability on feedback, self-esteem and belonging." 48th Australian Psychological Society Annual Conference (APS 2013): Psychology for a Healthy Nation. Cairns, Australia 08 - 12 Oct 2013 Australia.Motives for Facebook use in an Australian sample
Machin, Tanya M., Jeffries, Carla H. and Machin, M. Anthony. 2014. "Motives for Facebook use in an Australian sample." Society of Australasian Social Psychologists Conference (SASP 2014). Canberra, Australia 10 - 12 Apr 2014 Australia.Innovative mental health solutions for regional well-being and resilience
March, Sonja, Ireland, Michael, Brownlow, Charlotte, Goh, Hong Eng, Antonio, Amy, Tehan, Gerry and Keppell, Mike. 2014. "Innovative mental health solutions for regional well-being and resilience." Keppell, Mike and Reushle, Shirley (ed.) 2nd Digital Rural Futures Conference 2014. Toowoomba, Australia 25 - 27 Jun 2014 Toowoomba, Australia.An association for all: notions of the meaning of autistic self-advocacy politics within a parent-dominated autistic movement
Bertilsdotter Rosqvist, Hanna, Brownlow, Charlotte and O'Dell, Lindsay. 2015. "An association for all: notions of the meaning of autistic self-advocacy politics within a parent-dominated autistic movement ." Journal of Community and Applied Social Psychology. 25 (3), pp. 219-231. https://doi.org/10.1002/casp.2210SPSS explained, 2nd ed
Hinton, Perry R., McMurray, Isabella and Brownlow, Charlotte. 2014. SPSS explained, 2nd ed. London, United Kingdom. Routledge.A critical consideration of the use of therapeutic recordings in the training and professional development of psychologists
Lamont-Mills, Andrea, Christensen, Steven and Brownlow, Charlotte. 2014. "A critical consideration of the use of therapeutic recordings in the training and professional development of psychologists." Journal of Critical Psychology, Counselling, and Psychotherapy. 14 (4), pp. 276-285.Deficit and asset identity constructions of single women without children living in Australia: an analysis of discourse
Addie, Elizabeth and Brownlow, Charlotte. 2014. "Deficit and asset identity constructions of single women without children living in Australia: an analysis of discourse." Feminism and Psychology. 24 (4), pp. 423-439. https://doi.org/10.1177/0959353514539463Constructing a theory of mind: reflections by people with autism
O'Dell, Lindsay and Brownlow, Charlotte. 2004. "Constructing a theory of mind: reflections by people with autism." British Psychological Society Developmental Psychology Conference (2004). Leeds, United Kingdom 02 - 05 Sep 2004SPSS explained
Hinton, Perry, Brownlow, Charlotte, McMurray, Isabella and Cozens, Bob. 2004. SPSS explained. London, United Kingdom. Routledge.Ethical issues for qualitative research in on-line communities
Brownlow, Charlotte and O'Dell, Lindsay. 2002. "Ethical issues for qualitative research in on-line communities." Disability and Society. 17 (6), pp. 685-694. https://doi.org/10.1080/0968759022000010452The citizen-worker: ambivalent meanings of 'real jobs', 'full citizenship' and 'adulthood' in the case of autistic people
Bertilsdotter Rosqvist, Hanna, O'Dell, Lindsay and Brownlow, Charlotte. 2014. "The citizen-worker: ambivalent meanings of 'real jobs', 'full citizenship' and 'adulthood' in the case of autistic people." Australian Community Psychologist. 26 (1), pp. 18-27.Autism as a form of biological citizenship
Brownlow, Charlotte and O'Dell, Lindsay. 2013. "Autism as a form of biological citizenship." Davidson, Joyce and Orsini, Michael (ed.) Worlds of autism: across the spectrum of neurological difference. Minneapolis, MN. United States. University of Minnesota Press. pp. 97-114Exploring the potential for social networking among people with autism: challenging dominant ideas of 'friendship'
Brownlow, Charlotte, Bertilsdotter Rosqvist, Hanna and O'Dell, Lindsay. 2015. "Exploring the potential for social networking among people with autism: challenging dominant ideas of 'friendship'." Scandinavian Journal of Disability Research. 17 (2), pp. 188-193. https://doi.org/10.1080/15017419.2013.859174Becoming an autistic adult: exploring the transitions of young people with autism from education/care to working life
O'Dell, Lindsay, Brownlow, Charlotte and Bertilsdotter Rosqvist, Hanna. 2013. "Becoming an autistic adult: exploring the transitions of young people with autism from education/care to working life." Alexander, Michael, Baird, Marian and Pocock, Barbara (ed.) 5th International Community, Work and Family Conference (CWFC 2013): Changes and Challenges in a Globalising World. Sydney, Australia 17 - 19 Jul 2013 Sydney, Australia.Commentary: challenging representations of autism – exploring possibilities for broadcasting the self on YouTube
Brownlow, Charlotte, O'Dell, Lindsay and Bertilsdotter Rosqvist, Hanna. 2013. "Commentary: challenging representations of autism – exploring possibilities for broadcasting the self on YouTube." Journal on Developmental Disabilities. 19 (1), pp. 90-95.Making friends
Brownlow, Charlotte. 2012. "Making friends." Brace, Nicola and Byford, Jovan (ed.) Investigating psychology: key concepts, key studies, key approaches. Oxford, United Kingdom. Oxford University Press. pp. 233-271The development of friendships and sociality: exploring the friendships of people with autism
Brownlow, Charlotte, O'Dell, Lindsay and Bertilsdotter Rosqvist, Hanna. 2012. "The development of friendships and sociality: exploring the friendships of people with autism." 47th Annual Australasian Society for Intellectual Development Conference (ASID 2012): Research to Practice. Wellington, New Zealand 07 - 09 Nov 2012 Keswick, SA. Australia.Mapping the social geographies of autism: online and off-line narratives of neuro-shared and separate spaces
Bertilsdotter Rosqvist, Hanna, Brownlow, Charlotte and O'Dell, Lindsay. 2013. "Mapping the social geographies of autism: online and off-line narratives of neuro-shared and separate spaces." Disability and Society. 28 (3), pp. 367-379. https://doi.org/10.1080/09687599.2012.714257Constructions of Aspergers syndrome identity in public spaces: explorations in online and offline interactions
Bertilsdotter Rosqvist, Hanna, Brownlow, Charlotte and O'Dell, Lindsay. 2011. "Constructions of Aspergers syndrome identity in public spaces: explorations in online and offline interactions ." Disability and Public Space Conference 2011. Oslo, Norway 28 - 29 Apr 2011 Oslo, Norway.Understanding, and working with, autism: from deficit to neurodiversity
Brownlow, Charlotte. 2010. "Understanding, and working with, autism: from deficit to neurodiversity ." Making Research Count Workshop (2010). Kings College, United Kingdom 11 May 2010Transitioning to adulthood: autism and biological citizenship
Brownlow, Charlotte and O'Dell, Lindsay. 2011. "Transitioning to adulthood: autism and biological citizenship." 7th Biennial Conference of the International Society of Critical Health Psychology. Adelaide, Australia 18 - 20 Apr 2011Exploring the transitions of young people with autism from childhood to young adulthood
O'Dell, Lindsay and Brownlow, Charlotte. 2009. "Exploring the transitions of young people with autism from childhood to young adulthood." 7th European Congress of Community Psychology. Paris, france 29 - 30 Oct 2009Constructing 'NT Syndrome': impairments of being non-autistic
Brownlow, Charlotte and O'Dell, Lindsay. 2008. "Constructing 'NT Syndrome': impairments of being non-autistic." 2nd International Conference on Community Psychology (2ICCP). Lisbon, Portugal 04 - 06 Jun 2008Constructing an autistic identity: AS voices online
Brownlow, Charlotte and O'Dell, Lindsay. 2006. "Constructing an autistic identity: AS voices online." Intellectual and Developmental Disabilities: journal of policy, practice, and perspectives. 44 (5), pp. 315-321. https://doi.org/10.1352/0047-6765Media reports of links between MMR and autism: a discourse analysis
O'Dell, Lindsay and Brownlow, Charlotte. 2005. "Media reports of links between MMR and autism: a discourse analysis." British Journal of Learning Disabilities. 33, pp. 194-199. https://doi.org/10.1111/j.1468-3156.2005.00304.xMaking friends
Brownlow, Charlotte. 2010. "Making friends." Brace, Nicola and Byford, Jovan (ed.) Discovering psychology. Milton Keynes, United Kingdom. Open University Press. pp. 233-269Presenting the self: negotiating a label of autism
Brownlow, Charlotte. 2010. "Presenting the self: negotiating a label of autism." Journal of Intellectual and Developmental Disability. 35 (1), pp. 14-21. https://doi.org/10.3109/13668250903496336Neurodiverse spaces: exploring the potential for social networking to reconstruct our ideas of 'friendship'
O'Dell, Lindsay, Brownlow, Charlotte and Bertilsdotter Rosqvist, Hanna. 2011. "Neurodiverse spaces: exploring the potential for social networking to reconstruct our ideas of 'friendship'." Critical Autism Seminar Day (2011). Sheffield, United Kingdom 18 Jan 2011Challenging understandings of 'Theory of Mind': a brief report
Brownlow, Charlotte and O'Dell, Lindsay. 2009. "Challenging understandings of 'Theory of Mind': a brief report." Intellectual and Developmental Disabilities: journal of policy, practice, and perspectives. 47 (6), pp. 473-478. https://doi.org/10.1352/1934-9556-47.6.473Re-presenting autism: the construction of 'NT Syndrome'
Brownlow, Charlotte. 2010. "Re-presenting autism: the construction of 'NT Syndrome'." Journal of Medical Humanities. 31 (3), pp. 243-255. https://doi.org/10.1007/s10912-010-9114-4Representations of autism: implications for community healthcare practice
Brownlow, Charlotte and O'Dell, Lindsay. 2009. "Representations of autism: implications for community healthcare practice." Community Practitioner. 82 (7), pp. 18-21.This item comprises data from the following sources: Scopus