Rethinking respite in Australia: A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia

Article


Phillipson, Lyn, Johnson, Keryn, Fielding, Elaine, Cridland, Elizabeth, Hall, Danika, Neville, Christine and Hasan, Helen. 2021. "Rethinking respite in Australia: A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia." Health and Social Care in the Community. 29 (5), pp. 1566-1583. https://doi.org/10.1111/hsc.13223
Article Title

Rethinking respite in Australia: A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia

ERA Journal ID13537
Article CategoryArticle
AuthorsPhillipson, Lyn (Author), Johnson, Keryn (Author), Fielding, Elaine (Author), Cridland, Elizabeth (Author), Hall, Danika (Author), Neville, Christine (Author) and Hasan, Helen (Author)
Journal TitleHealth and Social Care in the Community
Journal Citation29 (5), pp. 1566-1583
Number of Pages18
Year2021
PublisherHindawi Publishing Corporation
Place of PublicationUnited Kingdom
ISSN0966-0410
1365-2524
Digital Object Identifier (DOI)https://doi.org/10.1111/hsc.13223
Web Address (URL)https://onlinelibrary.wiley.com/doi/abs/10.1111/hsc.13223
Abstract

‘Rethink Respite’ was a prospective, naturalistic cohort study conducted in the Illawarra‐Shoalhaven (NSW, Australia) to improve knowledge, attitudes and uptake of respite strategies in carers of people with dementia. A convenience sample of n = 70 carers were recruited in 2014–15 to establish a baseline for knowledge, attitudes and use of respite for a cohort of carers in the region. Carer perceived need for respite, burden and self‐efficacy were also assessed. A co‐designed multi‐component community‐based intervention was subsequently rolled at in the region from 2015 to 2016. The intervention supported: awareness raising media; carer education sessions; access to web and print respite information resources; and an option to participate in a tailored one‐on‐one in‐home coaching program. At program completion, a follow‐up survey was administered to the cohort, with n = 44/70 responding. All n = 44 respondents reported participation in and exposure to ‘Rethink Respite’ media, information and education during the intervention period. Eighteen of the 44 also self‐selected to receive the active tailored coaching support. At follow‐up, few positive results were reported on the assessed carer variables for the cohort over time. However, post hoc sub‐group analyses found those who also self‐selected to receive active support (provided through coaching) (n = 18), showed improvements to their respite knowledge, attitudes and self‐efficacy (p < .05). Intention to use respite, and levels of personal gain from caring in this sub‐group also increased (p < .05). In contrast, carers who only participated in the informational/educational aspects of the program (and did not self‐select to the respite coaching), experienced negative changes over time to their respite beliefs and ‘role captivity’. Overall, this pilot study suggests that passive respite information and educational strategies are insufficient, without more active supports (tailored respite coaching) to address observed carer decline over time. Future research should seek to replicate these results using a larger sample and an experimental design.

Keywordscarers; community care; dementia; long term care; respite; social marketing
ANZSRC Field of Research 2020420301. Aged health care
Byline AffiliationsUniversity of Wollongong
Queensland University of Technology
School of Nursing and Midwifery
Institution of OriginUniversity of Southern Queensland
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