Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story

Article

King, Julie, Edwards, Niki, Correa-Velez, Ignacio, Darracott, Rosalyn and Fordyce, Maureen. 2016. "Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story." Advances in Mental Health and Intellectual Disabilities. 10 (4), pp. 222-232. https://doi.org/10.1108/AMHID-02-2016-0004
Article Title

Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story

ERA Journal ID210054
Article CategoryArticle
AuthorsKing, Julie (Author), Edwards, Niki (Author), Correa-Velez, Ignacio (Author), Darracott, Rosalyn (Author) and Fordyce, Maureen (Author)
Journal TitleAdvances in Mental Health and Intellectual Disabilities
Journal Citation10 (4), pp. 222-232
Number of Pages11
Year2016
Place of PublicationUnited Kingdom
ISSN2044-1282
2044-1290
Digital Object Identifier (DOI)https://doi.org/10.1108/AMHID-02-2016-0004
Web Address (URL)https://www.emerald.com/insight/content/doi/10.1108/AMHID-02-2016-0004/full/html
Abstract

Purpose: The purpose of this paper is to explore the experiences of a refugee family navigating complex disability and restrictive practice service systems. Living with disability, or caring for someone with disability can compound the disadvantage and marginalisation already experienced by refugees. The nexus between disability and refugee status, particularly intellectual disability and restrictive practices, has received little scholarly attention and almost nothing is known of people’s experiences in this situation.

Design/methodology/approach: Thematic analysis of a case study is used to illustrate the experiences of a refugee family in this situation. The case study presented was part of a larger ethnographic study exploring the experiences of people of refugee background living with disability.

Findings: There were numerous barriers to accessing appropriate services. The family experienced high levels of stress simultaneously navigating the resettlement process and the disability service system. They were poorly informed and disempowered regarding the care of their loved one and the use of restrictive practices. Experiences in the country of origin, employment responsibilities, and unfamiliarity with the service system were key factors in this family’s difficulty in safeguarding the rights of their family member with disability.

Originality/value: This case study examines the complexity experienced when disability intersects with refugee background. Areas for additional research and significant gaps in service provision are identified. The case study clearly demonstrates the importance of understanding people’s pre- and post-settlement experiences to inform policy and service provision.

KeywordsBarriers; Family; Intellectual disability; Refugees; Restrictive practices; Trauma
ANZSRC Field of Research 2020420313. Mental health services
420318. People with disability
470208. Culture, representation and identity
Public Notes

Files associated with this item cannot be displayed due to copyright restrictions.

Byline AffiliationsQueensland University of Technology
AMPARO Advocacy, Australia
Institution of OriginUniversity of Southern Queensland
Permalink -

https://research.usq.edu.au/item/q70w9/restrictive-practices-on-refugees-in-australia-with-intellectual-disability-and-challenging-behaviours-a-family-s-story

Log in to edit
  • 56
    total views
  • 2
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Maternal healthcare for women with physical disabilities in Northern Vietnam: perspectives of healthcare providers.
Nguyen, Thi Vinh, Edwards, Niki and King, Julie. 2023. "Maternal healthcare for women with physical disabilities in Northern Vietnam: perspectives of healthcare providers." Disability and Health Journal. 16 (2). https://doi.org/10.1016/j.dhjo.2023.101439
‘There is power in the cry of a woman’: the approach of African women with disabilities to leadership
King, Julie, Edwards, Nicole and Watling, Hanna. 2023. "‘There is power in the cry of a woman’: the approach of African women with disabilities to leadership." Journal of Gender Studies. 32 (7), pp. 719-730. https://doi.org/10.1080/09589236.2022.2085676
How to be Yourself: Student Perspectives on Learning Use of Self
Newcomb, Michelle, Burton, Judith and Edwards, Niki. 2022. "How to be Yourself: Student Perspectives on Learning Use of Self." Clinical Social Work Journal. 50, pp. 337-346. https://doi.org/10.1007/s10615-020-00766-9
Leadership for change: pathways to activism for African women with disability
King, Julie, Edwards, Nicole and Watling, Hanna. 2023. "Leadership for change: pathways to activism for African women with disability." Disability and Society. 38 (7), pp. 1164-1185. https://doi.org/10.1080/09687599.2021.1994373
Jane
Edwards, Niki. 2008. "Jane." Advances in Mental Health and Learning Disabilities. 2 (2), pp. 49-54. https://doi.org/10.1108/17530180200800018
Disadvantage and disability: Experiences of people from refugee backgrounds with disability living in Australia
King, Julie, Edwards, Niki, Correa-Velez, Ignacio, Hair, Sara and Fordyce, Maureen. 2016. "Disadvantage and disability: Experiences of people from refugee backgrounds with disability living in Australia." Disability and the Global South (DGS). 3 (1), pp. 843-864.
Service user or service provider? How social work and human services students integrate dual identities
Newcomb, Michelle, Burton, Judith and Edwards, Niki. 2017. "Service user or service provider? How social work and human services students integrate dual identities." Social Work Education. 36 (6), pp. 678-689. https://doi.org/10.1080/02615479.2017.1327574
Childhood Adversity and Self-Care Education for Undergraduate Social Work and Human Services Students
Newcomb, Michelle, Burton, Judith and Edwards, Niki. 2017. "Childhood Adversity and Self-Care Education for Undergraduate Social Work and Human Services Students." Journal of Teaching in Social Work. 37 (4), pp. 337-352. https://doi.org/10.1080/08841233.2017.1345821
Qualitative exploration of psychotropic medication to manage challenging behaviour in adults with intellectual disability: views of family members
Edwards, Nicole, King, Julie, Watling, Hanna and Hair, Sara. 2017. "Qualitative exploration of psychotropic medication to manage challenging behaviour in adults with intellectual disability: views of family members." Advances in Mental Health and Intellectual Disabilities. 11 (5 - 6), pp. 207-218. https://doi.org/10.1108/AMHID-06-2017-0027
Pretending to be authentic: challenges for students when reflective writing about their childhood for assessment
Newcomb, Michelle, Burton, Judith and Edwards, Niki. 2018. "Pretending to be authentic: challenges for students when reflective writing about their childhood for assessment." Reflective Practice. 19 (3), pp. 333-344. https://doi.org/10.1080/14623943.2018.1479684
Addressing transport safety and accessibility for people with a disability in developing countries: a formative evaluation of the Journey Access Tool in Cambodia
King, Julie A., King, Mark J., Edwards, Niki, Hair, Sara A., Cheang, Sarim, Pearson, Anita and Coelho, Sophie. 2018. "Addressing transport safety and accessibility for people with a disability in developing countries: a formative evaluation of the Journey Access Tool in Cambodia." Global Health Action. 11 (1), pp. 1-11. https://doi.org/10.1080/16549716.2018.1538658
Human-trafficking prevention is not 'sexy': Impact of the rescue industry on Thailand NGO programs and the need for a human rights approach
Jones, Stephanie, King, Julie and Edwards, Niki. 2018. "Human-trafficking prevention is not 'sexy': Impact of the rescue industry on Thailand NGO programs and the need for a human rights approach." Journal of Human Trafficking. 4 (3), pp. 231-255. https://doi.org/10.1080/23322705.2017.1355161
Media participation by people with disability and the relevance of Australian community broadcasting in the digital era
Stewart, Kim, Spurgeon, Christina and Edwards, Niki. 2019. "Media participation by people with disability and the relevance of Australian community broadcasting in the digital era." 3CMedia. 9, pp. 44-63.
Maternal Healthcare Experiences of and Challenges for Women with Physical Disabilities in Low and Middle‑Income Countries: A Review of Qualitative Evidence
Nguyen, Thi Vinh, King, Julie, Edwards, Niki, Pham, Cong Tuan and Dunne, Michael. 2019. "Maternal Healthcare Experiences of and Challenges for Women with Physical Disabilities in Low and Middle‑Income Countries: A Review of Qualitative Evidence." Sexuality and Disability: a journal devoted to the psychological and medical aspects of sexuality in rehabilitation and community settings. 37 (2), pp. 175-201. https://doi.org/10.1007/s11195-019-09564-9
Older transgender women in Thailand: views of service providers
Hair, Sara Amy, King, Julie, Edwards, Niki and Hayes, Sharon. 2019. "Older transgender women in Thailand: views of service providers." Journal of Gay and Lesbian Social Services: issues in practice, policy and research. 31 (1), pp. 65-88. https://doi.org/10.1080/10538720.2019.1548328
Barriers to disability-inclusive disaster management in the Solomon Islands: Perspectives of people with disability
King, Julie, Edwards, Nicole, Watling, Hanna and Hair, Sara. 2019. "Barriers to disability-inclusive disaster management in the Solomon Islands: Perspectives of people with disability." International Journal of Disaster Risk Reduction. 34, pp. 459-466. https://doi.org/10.1016/j.ijdrr.2018.12.017
Student Constructions of Resilience: Understanding the Role of Childhood Adversity
Newcomb, Michelle, Burton, Judith and Edwards, Niki. 2019. "Student Constructions of Resilience: Understanding the Role of Childhood Adversity." Australian Social Work. 72 (2), pp. 166-178. https://doi.org/10.1080/0312407X.2018.1550521
Articulation of a Best Practice Model of Guardianship Advocacy Services: For Older People and People with Cognitive Disability at Risk of Abuse or Neglect
Edwards, Niki, King, Julie, Hair, Sara and Walton, Kate. 2019. Articulation of a Best Practice Model of Guardianship Advocacy Services: For Older People and People with Cognitive Disability at Risk of Abuse or Neglect. Brisbane, Australia. Queensland University of Technology.
Teaching disability using problem-based learning in the international context: utility for social work
Edwards, Nicole, King, Julie, Pfeffer, Sabine, Lovric, Esha and Watling, Hanna. 2021. "Teaching disability using problem-based learning in the international context: utility for social work." European Journal of Social Work: the forum for the social work professional. 26 (1), pp. 3-15. https://doi.org/10.1080/13691457.2021.1954890
'Under great anxiety': Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens
Nguyen, Thi Vinh, King, Julie, Edwards, Niki and Dunne, Michael P.. 2021. "'Under great anxiety': Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens." Social Science and Medicine. 284, pp. 1-9. https://doi.org/10.1016/j.socscimed.2021.114231
Whose decision? Caesarean section and women with physical disabilities in Northern Vietnam: A qualitative study
Nguyen, Thi Vinh, King, Julie, Edwards, Niki and Dunne, Michael P.. 2022. "Whose decision? Caesarean section and women with physical disabilities in Northern Vietnam: A qualitative study." Midwifery. 104, pp. 1-6. https://doi.org/10.1016/j.midw.2021.103175
'Nothing suitable for us': experiences of women with physical disabilities in accessing maternal healthcare services in Northern Vietnam
Nguyen, Thi Vinh, King, Julie, Edwards, Niki and Dunne, Michael P.. 2022. "'Nothing suitable for us': experiences of women with physical disabilities in accessing maternal healthcare services in Northern Vietnam." Disability and Rehabilitation. 44 (4), pp. 573-581. https://doi.org/10.1080/09638288.2020.1773548
Exploring Women’s Experiences of Gender-Based Violence and Other Threats to Safety on Public Transport in Bangladesh
King, Julie, King, Mark, Edwards, Nicole, Carroll, Julie-Anne, Watling, Hanna, Anam, Mujibul, Bull, Melissa and Oviedo-Trespalacios, Oscar. 2021. "Exploring Women’s Experiences of Gender-Based Violence and Other Threats to Safety on Public Transport in Bangladesh." International Journal For Crime, Justice and Social Democracy. 10 (4), pp. 158-173. https://doi.org/10.5204/ijcjsd.2086
Chemical restraint of adults with intellectual disability and challenging behaviour in Queensland, Australia: Views of statutory decision makers
Edwards, Niki, King, Julie, Williams, Karen and Hair, Sara. 2020. "Chemical restraint of adults with intellectual disability and challenging behaviour in Queensland, Australia: Views of statutory decision makers." Journal of Intellectual Disabilities. 24 (2), pp. 194-211. https://doi.org/10.1177/1744629518782064
Factors affecting antihypertensive medications adherence among hypertensive patients in Saudi Arabia
Alsolami, Fatmah, Correa-Velez, Ignacio and Hou, Xiang-Yu. 2015. "Factors affecting antihypertensive medications adherence among hypertensive patients in Saudi Arabia." American Journal of Medicine and Medical Sciences. 5 (4), pp. 181-189. https://doi.org/10.5923/j.ajmms.20150504.07
Factors affecting antihypertensive treatment adherence: a Saudi Arabian perspective
Alsolami, Fatmah, Hou, Xiang-Yu and Correa-Velez, Ignacio. 2012. "Factors affecting antihypertensive treatment adherence: a Saudi Arabian perspective." Clinical Medicine and Diagnostics. 2 (4), pp. 27-32. https://doi.org/10.5923/j.cmd.20120204.02
Australian educational technologies trends 2018
Zagami, Jason, Redmond, Petrea, Joy, Travis, Flintoff, Kim, Speranza, Anthony, Shires, Rachael, Harris, Neil, Sleeman, Tracy, Canning, Celia, Vernon, Kim, Sercombe, Peter, Madsen, Steve, Finch, Robyn, Jones, Michael, Hogan, Amanda, Urban, Sue, Moreton, Bronwyn, Harrison, Yvonne, Hunt, Cathy, ..., Campbell, Chris. 2018. Australian educational technologies trends 2018. Brisbane, Australia. Australian Council for Computers in Education.
Supporting People With an Intellectual Disability and Mental Health Problems: A Scoping Review of What They Say About Service Provision
Venville, Annie, Sawyer, Anne-Maree, Long, Maureen, Edwards, Niki and Hair, Sara. 2015. "Supporting People With an Intellectual Disability and Mental Health Problems: A Scoping Review of What They Say About Service Provision." Journal of Mental Health Research in Intellectual Disabilities. 8 (3 - 4), pp. 186-212. https://doi.org/10.1080/19315864.2015.1069912
How Jung’s Concept of the Wounded Healer Can Guide Learning and Teaching in Social Work and Human Services
Newcomb, Michelle, Burton, Judith, Edwards, Niki and Hazelwood, Zoe. 2015. "How Jung’s Concept of the Wounded Healer Can Guide Learning and Teaching in Social Work and Human Services." Advances in Social Work and Welfare Education. 17 (2), pp. 55-69. https://doi.org/10.3316/INFORMIT.609973077524166
A multi-level ecological model of psychotropic prescribing to adults with intellectual disability
Edwards, Niki, Bain, Chris, Mutch, Allyson, Dean, Julie and Lennox, Nicholas. 2014. "A multi-level ecological model of psychotropic prescribing to adults with intellectual disability." Advances in Mental Health and Intellectual Disabilities. 8 (1), pp. 24-31. https://doi.org/10.1108/AMHID-01-2013-0001
Psychotropics and challenging behaviour in people with intellectual disability
Edwards, Niki S., Alexander, William and Mutch, Allyson. 2014. "Psychotropics and challenging behaviour in people with intellectual disability." Medical Journal of Australia. 200 (8), pp. 456-456. https://doi.org/10.5694/mja13.11258
Specialist Versus Generic Models of Psychiatry Training and Service Provision for People with Intellectual Disabilities
Jess, Gillian, Torr, Jennifer, Cooper, Sally-Ann, Lennox, Nicholas, Edwards, Nicole, Galea, Jennifer and O'Brien, Gregory. 2008. "Specialist Versus Generic Models of Psychiatry Training and Service Provision for People with Intellectual Disabilities." Journal of Applied Research in Intellectual Disabilities. 21 (2), pp. 183-193. https://doi.org/10.1111/j.1468-3148.2007.00394.x
Queensland psychiatrists' attitudes and perceptions of adults with intellectual disability
Edwards, N., Lennox, N. and White, P.. 2007. "Queensland psychiatrists' attitudes and perceptions of adults with intellectual disability." Journal of Intellectual Disability Research. 51 (1), pp. 75-81. https://doi.org/10.1111/j.1365-2788.2006.00870.x
Stress and burnout amongst professional carers of people with intellectual disability: another health inequity
White, Paul, Edwards, Niki and Townsend-White, C.. 2006. "Stress and burnout amongst professional carers of people with intellectual disability: another health inequity." Current Opinion in Psychiatry. 19 (5), pp. 502-507. https://doi.org/10.1097/01.yco.0000238478.04400.e0
Prevalence of Intellectual Disability and Comorbid Mental Illness in an Australian Community Sample
White, Paul, Chant, David, Edwards, Niki, Townsend Claire and Waghorn, G.. 2005. "Prevalence of Intellectual Disability and Comorbid Mental Illness in an Australian Community Sample." Australian and New Zealand Journal of Psychiatry. 39 (5), pp. 395-400. https://doi.org/10.1111/j.1440-1614.2005.01587.x
The health needs of people with intellectual disability
Lennox, Nicholas G., Beange, Helen and Edwards, Niki S.. 2000. "The health needs of people with intellectual disability." Medical Journal of Australia. 173 (6), pp. 328-330. https://doi.org/10.5694/j.1326-5377.2000.tb125668.x