Older parents caring for adults with intellectual disability

Paper


Winterbotham, Sonya, Knight, Bob G. and du Preez, Jan. 2019. "Older parents caring for adults with intellectual disability." Innovations and Advances in Ageing Well: Joint Conference of the NZ Psychologists of Older People and the Australian Psychological Society’s Psychology & Ageing Interest Group in partnership with the Auckland University of Technology Centre for Active Ageing (2019). Auckland, New Zealand 28 - 29 Jun 2019 Aukland, New Zealand.
Paper/Presentation Title

Older parents caring for adults with intellectual disability

Presentation TypePaper
AuthorsWinterbotham, Sonya (Author), Knight, Bob G. (Author) and du Preez, Jan (Author)
Journal or Proceedings TitleConference Abstracts: Innovations and Advances in Ageing Well
Number of Pages1
Year2019
Place of PublicationAukland, New Zealand
Web Address (URL) of Paperhttp://nzpops.co.nz/wp-content/uploads/2019/02/NZPOPS-PAIG-Conference-2019-Abstracts-Final.pdf
Conference/EventInnovations and Advances in Ageing Well: Joint Conference of the NZ Psychologists of Older People and the Australian Psychological Society’s Psychology & Ageing Interest Group in partnership with the Auckland University of Technology Centre for Active Ageing (2019)
Event Details
Innovations and Advances in Ageing Well: Joint Conference of the NZ Psychologists of Older People and the Australian Psychological Society’s Psychology & Ageing Interest Group in partnership with the Auckland University of Technology Centre for Active Ageing (2019)
Event Date
28 to end of 29 Jun 2019
Event Location
Auckland, New Zealand
Abstract

Background: Older parents of adults with intellectual disability (ID) face a lifetime of care. Despite the physical and psychological strains of caring many are reluctant to ‘retire’ and plan for their child’s external residential placement.

Method: Using a case study approach, parents and siblings of adults with ID from three families were interviewed in relation to their understandings of past and current care and also future planning.

Results: Parents who viewed the carer role as a parental obligation were at risk of isolating themselves from siblings of ID child thereby leaving siblings ill-prepared in an emergency situation. Though all families had considered residential planning, no plans had been established. Explicit barriers included complexity of disability, negative transitioning experiences in the past, and unpredictable changes within the family system. Enablers included personal growth of the adult with ID, and encouragement from professional supports such as psychologists. Discourses of ID may also be a factor, with descriptions of the adult as ‘child-like’ potentially preventing transition into adulthood, such as leaving home.

Clinical Implications: Psychologists could play a pivotal role in assisting families who are faced with such non-normative development of the family system, and so encourage future planning for care. Psychologists could also support parents in negotiating complex support systems such as the NDIS

ANZSRC Field of Research 2020520599. Social and personality psychology not elsewhere classified
Public Notes

No evidence of copyright restrictions preventing deposit of conference abstracts.

Byline AffiliationsSchool of Psychology and Counselling
Institution of OriginUniversity of Southern Queensland
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du Preez, Jan. 2010. "Generalised self-efficacy in relation to the life transitions of adult learners in a university setting: towards a narrative constructivist model of self-regulation." Mrowinski, Vicky, Kyrios, Michael and Voudouris, Nicholas (ed.) 27th International Congress of Applied Psychology (ICAP 2010). Melbourne, Australia 11 - 16 Jul 2010 Melbourne, Australia.
Locating the researcher in the research: personal narrative and reflective practice
du Preez, Jan. 2008. "Locating the researcher in the research: personal narrative and reflective practice." Reflective Practice. 9 (4), pp. 509-519. https://doi.org/10.1080/14623940802431499