You don't know what you don't know: ethics and participant consent issues for eResearch users
Paper
Ostini, Jenny, Gacenga, Francis, Pocock, Celmara and Whiteside, Eliza. 2014. "You don't know what you don't know: ethics and participant consent issues for eResearch users." eResearch Australasia 2014 Conference: Towards Unified Global Research. Melbourne, Australia 27 - 31 Oct 2014 Sydney, Australia.
| Paper/Presentation Title | You don't know what you don't know: ethics and participant consent issues for eResearch users |
|---|---|
| Presentation Type | Paper |
| Authors | Ostini, Jenny (Author), Gacenga, Francis (Author), Pocock, Celmara (Author) and Whiteside, Eliza (Author) |
| Journal or Proceedings Title | eResearch Australasia 2014 Conference |
| Number of Pages | 4 |
| Year | 2014 |
| Place of Publication | Sydney, Australia |
| Web Address (URL) of Paper | http://eresearchau.files.wordpress.com/2014/07/eresau2014_submission_74.pdf |
| Conference/Event | eResearch Australasia 2014 Conference: Towards Unified Global Research |
| Event Details | eResearch Australasia 2014 Conference: Towards Unified Global Research Event Date 27 to end of 31 Oct 2014 Event Location Melbourne, Australia |
| Abstract | This paper shares the experiences of researchers and research support teams to enable eResearch that is ethically sound, particularly with regard to the consent of research participants. A key goal of eResearch is to use compute and data intensive infrastructure and collaborative approaches supported by advanced ICTs (HPC, Cloud Storage, Collaborative tools and High Speed networks) to enable data sharing and re-use. This paper shares the practical challenges and solutions from the perspectives of researchers and research support teams at the University of Southern Queensland (USQ) and poses questions and suggestions on ethics dilemmas such as ensuring that research participants have consented to share the data collected on them with other researchers. A collaborative and consultative approach involving teams in the USQ Office of Research, the USQ Human Research Ethics Committee (HREC) Chair, the ICT Service Division and Library Services division resulted in successful outcomes for researchers. |
| Keywords | ethics; eResearch; participant consent; research support; USQ |
| ANZSRC Field of Research 2020 | 390405. Educational technology and computing |
| 470102. Communication technology and digital media studies | |
| 500107. Professional ethics | |
| Public Notes | This publication is copyright. It may be reproduced in whole or in part for the purposes of study, research, or review, but is subject to the inclusion of an acknowledgment of the source. |
| Byline Affiliations | Australian Digital Futures Institute |
| Office of Research | |
| School of Humanities and Communication | |
| School of Health, Nursing and Midwifery | |
| Institution of Origin | University of Southern Queensland |
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Reardon-Smith, Kate, Mushtaq, Shahbaz, Farley, Helen S., Cliffe, Neil, Stone, Roger C., Ostini, Jenny, Doyle, Joanne, Martin, Neil, Loch, Adam, Maraseni, Tek, Marcussen, Torben and Lindesay, Janette. 2015. "Virtual discussions to support climate risk decision making on farms." Journal of Economic and Social Policy. 17 (2).Putting virtual worlds to work to support improved climate risk decision-making on real world farms
Reardon-Smith, Kate, Mushtaq, Shahbaz, Stone, Roger, Cliffe, Neil, Farley, Helen, Ostini, Jenny, Doyle, Joanne, Martin, Neil and Loch, Adam. 2015. "Putting virtual worlds to work to support improved climate risk decision-making on real world farms." 2nd International Conference on Global Food Security. Cornell University, Ithaca, United States 11 - 14 Oct 2015Domestic violence and the welfare state
Hopkins, Susan and Ostini, Jenny. 2015. "Domestic violence and the welfare state." Overland.Virtual world technologies to enhance climate risk management on Australian sugar cane farms
Reardon-Smith, Kate, Mushtaq, Shahbaz, Stone, Roger, Cliffe, Neil, Farley, Helen, Ostini, Jenny, Doyle, Joanne, Martin, Neil, Maraseni, Tek, Marcussen, Torben, Loch, Adam and Lindesay, Janette. 2014. "Virtual world technologies to enhance climate risk management on Australian sugar cane farms." Climate Adaptation (NCCARF 2014): Future Challenges. Gold Coast, Australia 30 Sep - 02 Oct 2014 Gold Coast, Australia.Exploring digital literacy: moving from buzzwords towards a social construction of competency
Ostini, Jenny. 2014. "Exploring digital literacy: moving from buzzwords towards a social construction of competency." Keppell, Mike and Reushle, Shirley (ed.) 2nd Digital Rural Futures Conference 2014. Toowoomba, Australia 25 - 27 Jun 2014 Toowoomba, Australia.Fieldwork in a digital age: questions of privacy and copyright
Ostini, Jenny. 2014. "Fieldwork in a digital age: questions of privacy and copyright." Field Research Method Lab at LSE.IT service management: a cross-national study of ITIL adoption
Marrone, Mauricio, Gacenga, Francis, Cater-Steel, Aileen and Kolbe, Lutz. 2014. "IT service management: a cross-national study of ITIL adoption." Communications of the Association for Information Systems. 34 (1), pp. 865-892. https://doi.org/10.17705/1cais.03449Stress, lifestyle, and quality of life in midlife and older Australian women: results from the stress and the health of women study
Seib, Charrlotte, Whiteside, Eliza, Lee, Kathryn, Humphreys, Janice, Dao Tran, Tiet Hanh, Chopin, Lisa and Anderson, Debra. 2014. "Stress, lifestyle, and quality of life in midlife and older Australian women: results from the stress and the health of women study." Women's Health Issues. 24 (1), pp. e43-e52. https://doi.org/10.1016/j.whi.2013.11.004Aborigines, Islanders and Hula Girls in Great Barrier Reef Tourism
Pocock, Celmara. 2014. "Aborigines, Islanders and Hula Girls in Great Barrier Reef Tourism." The Journal of Pacific History. 49 (2), pp. 170-192. https://doi.org/10.1080/00223344.2014.897201The HPC next door: enabling research outcomes using QCIF HPC facilities
Gacenga, Francis, Bell, Jason, Samalca, Irvin K. and Brieva, Daniel. 2014. "The HPC next door: enabling research outcomes using QCIF HPC facilities." eResearch Australasia 2014 Conference: Towards Unified Global Research. Melbourne, Australia 27 - 31 Oct 2014Pleasant encounters of the VM kind: leveraging on NeCTAR VMs to achieve research outcomes
Gacenga, Francis, Kelly, Nick and Rayment, Erin. 2014. "Pleasant encounters of the VM kind: leveraging on NeCTAR VMs to achieve research outcomes." eResearch Australasia 2014 Conference: Towards Unified Global Research. Melbourne, Australia 27 - 31 Oct 2014 Sydney, Australia.Tourism as theatre: performing and consuming indigeneity in an Australian wildlife sanctuary
Picard, David, Pocock, Celmara and Trigger, David. 2014. "Tourism as theatre: performing and consuming indigeneity in an Australian wildlife sanctuary." Journal of Tourism and Cultural Change. 12 (3), pp. 206-223. https://doi.org/10.1080/14766825.2014.933967A longitudinal study of the impact of chronic psychological stress on health-related quality of life and clinical biomarkers: protocol for the Australian Healthy Aging of Women Study
Seib, Charrlotte, Whiteside, Eliza J., Humphreys, Janice, Lee, Kathryn, Thomas, Patrick, Chopin, Lisa, Crisp, Gabrielle, O'Keeffe, Angela, Kimlin, Michael, Stacey, Andrew and Anderson, Debra. 2014. "A longitudinal study of the impact of chronic psychological stress on health-related quality of life and clinical biomarkers: protocol for the Australian Healthy Aging of Women Study." BMC Public Health. 14 (1), pp. 1-8. https://doi.org/10.1186/1471-2458-14-9Human rights media coverage in Chinese east Asia
Fan, David P. and Ostini, Jennifer. 1999. "Human rights media coverage in Chinese east Asia." Annals of the American Academy of Political and Social Science. https://doi.org/10.1177/000271629956600108Tactile landscape: visitors at the Great Barrier Reef
Pocock, Celmara. 2010. "Tactile landscape: visitors at the Great Barrier Reef." Sensorial Investigations.How do we 'get at' people's everyday practices of digital technology?
Ostini, Jenny. 2014. "How do we 'get at' people's everyday practices of digital technology?" Social Science Research Questions and Methodological Challenges in the 21st Century. Sheffield, United Kingdom 15 Oct 2014Multi-species sequence comparison reveals conservation of ghrelin gene-derived splice variants encoding a truncated ghrelin peptide
Seim, Inge, Jeffrey, Penny L., Thomas, Patrick B., Walpole, Carina M., Maugham, Michelle, Fung, Jenny N. T., Yap, Pei-Yi, O'Keeffe, Angela, Lai, John, Whiteside, Eliza J., Herington, Adrian C. and Chopin, Lisa K.. 2016. "Multi-species sequence comparison reveals conservation of ghrelin gene-derived splice variants encoding a truncated ghrelin peptide." Endocrine. 52 (3), pp. 609-617. https://doi.org/10.1007/s12020-015-0848-7The development of virtual world tools to enhance learning and real world decision making in the Australian sugar farming industry
Reardon-Smith, Kathryn, Farley, Helen, Cliffe, Neil, Mushtaq, Shahbaz, Stone, Roger, Doyle, Joanne, Martin, Neil, Ostini, Jenny, Maraseni, Tek, Marcussen, Torben, Loch, Adam and Lindesay, Janette. 2014. "The development of virtual world tools to enhance learning and real world decision making in the Australian sugar farming industry." International Journal of Advanced Corporate Learning. 7 (3), pp. 17-23. https://doi.org/10.3991/ijac.v7i3.4002Mercury Rising, an evaluation: building capacity for mental health self-help groups in Queensland
Ostini, Jenny and Bush, Robert. 2010. Mercury Rising, an evaluation: building capacity for mental health self-help groups in Queensland. Brisbane, Australia. University of Queensland. https://doi.org/10.13140/2.1.1137.2805Cloning of a novel insulin-regulated ghrelin transcript in prostate cancer
Seim, Inge, Lubik, Amy A., Lehman, Melanie L., Tomlinson, Nadine, Whiteside, Eliza J., Herington, Adrian C., Nelson, Colleen C. and Chopin, Lisa K.. 2013. "Cloning of a novel insulin-regulated ghrelin transcript in prostate cancer." Journal of Molecular Endocrinology. 50 (2), pp. 179-191. https://doi.org/10.1530/JME-12-0150Identification of a long non-coding RNA gene, growth hormone secretagogue receptor opposite strand, which stimulates cell migration in non-small cell lung cancer cell lines
Whiteside, Eliza J., Seim, Inge, Pauli, Jana P., O'Keefe, Angela J., Thomas, Patrick B., Carter, Shea L., Walpole, Carina M., Fung, Jenny N. T., Josh, Peter, Herington, Adrian C. and Chopin, Lisa K.. 2013. "Identification of a long non-coding RNA gene, growth hormone secretagogue receptor opposite strand, which stimulates cell migration in non-small cell lung cancer cell lines." International Journal of Oncology. 43 (2), pp. 566-574. https://doi.org/10.3892/ijo.2013.1969Discourses of morality: the news media, human rights and foreign policy in twentieth-century United States
Ostini, Jennifer Anne. 2000. Discourses of morality: the news media, human rights and foreign policy in twentieth-century United States. PhD Thesis Doctor of Philosophy. University of Minnesota, USA.Localised data sources for community health indicators: Ipswich Local Governance Area
Ostini, Jenny, Ostini, Remo and Bush, Robert. 2010. Localised data sources for community health indicators: Ipswich Local Governance Area. Healthy Communities Reseach Centre, The University of Queensland. https://doi.org/10.13140/2.1.4938.3686Assessment of the indigenous national heritage values for Wurrwurrwuy stone picture site
Collett, David and Pocock, Celmara. 2012. Assessment of the indigenous national heritage values for Wurrwurrwuy stone picture site. Canberra, Australia. Commonwealth Government of Australia.Ask first: a guide to respecting indigenous heritage places and values: issues and gaps analysis
Collett, David and Pocock, Celmara. 2012. Ask first: a guide to respecting indigenous heritage places and values: issues and gaps analysis. Canberra, Australia. Commonwealth Government of Australia.Heritage value of rock art on the Cape York Peninsular: assessment of criterion iii for Cape York World Heritage nomination [Confidential]
Collett, David and Pocock, Celmara. 2012. Heritage value of rock art on the Cape York Peninsular: assessment of criterion iii for Cape York World Heritage nomination [Confidential].Success factors in cultural heritage tourism enterprise management
Carlsen, Jack, Hughes, Michael, Frost, Warwick, Pocock, Celmara and Peel, Vicki. 2008. Success factors in cultural heritage tourism enterprise management. Gold Coast, Australia. Sustainable Tourism CRC.Beyond the four theories of the press: A new model of national media systems
Ostini, Jennifer and Fung, Anthony Y.H.. 2002. "Beyond the four theories of the press: A new model of national media systems." Mass Communication and Society. 5 (1), pp. 41-56. https://doi.org/10.1207/S15327825MCS0501_4Fit & fuelled kids: program evaluation report 2010
Ostini, Jenny and Ostini, Remo. 2011. Fit & fuelled kids: program evaluation report 2010. Brisbane, Australia. University of Queensland. https://doi.org/10.13140/2.1.3463.8085Reading indigeneity without race: colour, representation and uncertainty in photographic evidence
Pocock, Celmara. 2013. "Reading indigeneity without race: colour, representation and uncertainty in photographic evidence." Hillerdal, Charlotta, Karlstrom, Anna and Ojala, Carl-Gosta (ed.) Archaeologies of 'Us' and 'Them' 2013: Debating the Ethics and Politics of Ethnicity and Indigeneity in Archaeology and Heritage Discourse. Uppsala, Sweden 24 - 26 Oct 2013 Uppsala, Sweden.Imagining paradise, discovering science: tourism and science at the Great Barrier Reef
Pocock, Celmara. 2013. "Imagining paradise, discovering science: tourism and science at the Great Barrier Reef." Australasian and Pacific Travel in the Middlebrow Imagination 1925-1950: Transported Imagination (2013). Cairns, Australia 28 - 29 Nov 2013Reaching for the reef: exploring place through touch
Pocock, Celmara. 2008. "Reaching for the reef: exploring place through touch." Vanclay, Frank, Higgins, Matthew and Blackshaw, Adam (ed.) Making sense of place: exploring concepts and expressions of place through different senses and lenses. Canberra, Australia. National Museum of Australia Press. pp. 76-85Assessing stories before sites: identifying the tangible from the intangible
Pocock, Celmara, Collett, David and Baulch, Linda. 2013. "Assessing stories before sites: identifying the tangible from the intangible." Lira, Sergio, Amoeda, Rogerio and Pinheeiro, Cristina (ed.) 3rd International Conference on Intangible Heritage 2013: Sharing Cultures. Aveiro, Portugal 24 - 26 Jul 2013 Barcelos, Portugal.Digital Lives: Everyday Digital Literacies
Ostini, Jenny and Commonwealth Scientific and Industrial Research Organisation (CSIRO), Australia. 2014. Digital Lives: Everyday Digital Literacies. Toowoomba. https://doi.org/10.4227/113/5936480255168Identifying social values in archival sources: change, continuity and invention in tourist experiences of the Great Barrier Reef
Pocock, Celmara. 2002. "Identifying social values in archival sources: change, continuity and invention in tourist experiences of the Great Barrier Reef." Gomes, F. V., Taveira Pinto, F. and das Neves, L. (ed.) 6th International Symposium: a multi-disciplinary Symposium on Coastal Zone Research, Management and Planning (Littoral 2002): The Changing Coast. Porto, Portugal 22 - 26 Sep 2002 Porto, Portugal.Great Barrier Reef Marine Park, Australia: national parks, changes in perception, and hyper-reality
Pocock, Celmara. 2013. "Great Barrier Reef Marine Park, Australia: national parks, changes in perception, and hyper-reality." Delehanty, Randolph (ed.) Crown jewels: five great national parks around the world and the challenges they face. Washington, DC. United States. American Alliance of Museums Press. pp. 119-135Custom, conflict and the construction of heritage: European huts on the Tasmanian central plateau
Collett, David, Pocock, Celmara and Knowles, Joan. 2012. "Custom, conflict and the construction of heritage: European huts on the Tasmanian central plateau." Australian Anthropological Society Conference (AAS 2012): Culture and Contest in a Material World. Brisbane, Australia 26 - 28 Sep 2012 Canberra, Australia.Real to reel reef: space, place and film at the Great Barrier Reef
Pocock, Celmara. 2004. "Real to reel reef: space, place and film at the Great Barrier Reef." Ferrero-Regis, Tiziana and Moran, Albert (ed.) Placing the moving image. Brisbane, Australia. Griffith University. pp. 53-68From segregation to assimilation: a thematic study of policies and practices Australia (1800 to 1970)
Pocock, Celmara. 2008. From segregation to assimilation: a thematic study of policies and practices Australia (1800 to 1970). Brisbane, Australia. Department of Environment, Water, Heritage and the Arts.'Blue lagoons and coconut palms': The creation of a tropical idyll in Australia
Pocock, Celmara and Pocock C.. 2005. "'Blue lagoons and coconut palms': The creation of a tropical idyll in Australia." Australian Journal of Anthropology. 16 (3), pp. 335-349. https://doi.org/10.1111/j.1835-9310.2005.tb00315.xIntroduction: Current directions in Australian anthropologies of the environment
Mulcock, Jane, Pocock, Celmara, Toussaint, Yann, Mulcock J., Pocock C. and Toussaint Y.. 2005. "Introduction: Current directions in Australian anthropologies of the environment." Australian Journal of Anthropology. 16 (3), pp. 281-293. https://doi.org/10.1111/j.1835-9310.2005.tb00311.xVisiting the Great Barrier Reef
Pocock, Celmara. 2010. "Visiting the Great Barrier Reef." Queensland Historical Atlas. Nov 2010, pp. 1-3.A playground for science: Great Barrier Reef
Pocock, Celmara. 2010. "A playground for science: Great Barrier Reef." Queensland Historical Atlas. Oct 2010.Survival: how the landscape impacts on people
Pocock, Celmara. 2010. "Survival: how the landscape impacts on people." Queensland Historical Atlas. Dec 2010, pp. 1-5.Distinctiveness: islands
Pocock, Celmara. 2010. "Distinctiveness: islands." Queensland Historical Atlas. Nov 2010, pp. 1-3.Entwined histories: photography and tourism at the Great Barrier Reef
Pocock, Celmara. 2009. "Entwined histories: photography and tourism at the Great Barrier Reef." Robinson, Mike and Picard, David (ed.) The framed world: tourism, tourists and photography. Farnham, Surrey. United Kingdom. Ashgate Publishing Limited. pp. 185-197Authenticity in cultural heritage management and tourism
Pocock, Celmara. 2006. "Authenticity in cultural heritage management and tourism." Historic Environment. 19 (2), pp. 3-8.Living memory and the interpretation of heritage: developing a multimedia interactive to record and store personal stories for use in heritage interpretation and research
Pocock, Celmara, Stell, Marion, Frost, Lucy, Crozier, Julia and Ancher, Simon. 2010. Living memory and the interpretation of heritage: developing a multimedia interactive to record and store personal stories for use in heritage interpretation and research. Brisbane, Australia. Sustainable Tourism CRC.Towards a cultural heritage tourism research strategy: developing synergies in Australian research
Pocock, Celmara. 2008. Towards a cultural heritage tourism research strategy: developing synergies in Australian research. Brisbane, Australia. Sustainable Tourism CRC.Tourists riding turtles
Pocock, Celmara and Pocock C.. 2006. "Tourists riding turtles." Australian Zoologist. 33 (4), pp. 425-435. https://doi.org/10.7882/AZ.2006.015Sense matters: Aesthetic values of the Great Barrier Reef
Pocock, Celmara and Pocock C.. 2002. "Sense matters: Aesthetic values of the Great Barrier Reef." International Journal of Heritage Studies. 8 (4), pp. 365-381. https://doi.org/10.1080/1352725022000037191What is success in cultural heritage tourism?
Pocock, Celmara. 2012. "What is success in cultural heritage tourism?" Shuter, Claire (ed.) Visitor Research Forum 2012: Interpreting our Heritage and Understanding our Visitors. Brisbane, Australia 18 Jan 2012 Brisbane, Australia.A proposal and evaluation of a design method in design science research
Gacenga, Francis, Cater-Steel, Aileen, Toleman, Mark and Tan, Wui-Gee. 2012. "A proposal and evaluation of a design method in design science research." Electronic Journal of Business Research Methods. 10 (2), pp. 89-100.Sense matters: aesthetic values of the Great Barrier Reef
Pocock, Celmara. 2012. "Sense matters: aesthetic values of the Great Barrier Reef." Dudley, Sandra H. (ed.) Museum objects: experiencing the properties of things. London, United Kingdom. Routledge. pp. 241-253A performance measurement framework for IT service management
Gacenga, Francis Njoroge. 2013. A performance measurement framework for IT service management. PhD Thesis Doctor of Philosophy. University of Southern Queensland.Extending the IT service quality measurement framework through a systematic literature review
Lepmets, Marion, Cater-Steel, Aileen, Gacenga, Francis and Ras, Eric. 2012. "Extending the IT service quality measurement framework through a systematic literature review." Journal of Service Science Research. 4 (1), pp. 7-47. https://doi.org/10.1007/s12927-012-0001-6