You don't know what you don't know: ethics and participant consent issues for eResearch users
Paper
Paper/Presentation Title | You don't know what you don't know: ethics and participant consent issues for eResearch users |
---|---|
Presentation Type | Paper |
Authors | Ostini, Jenny (Author), Gacenga, Francis (Author), Pocock, Celmara (Author) and Whiteside, Eliza (Author) |
Journal or Proceedings Title | eResearch Australasia 2014 Conference |
Number of Pages | 4 |
Year | 2014 |
Place of Publication | Sydney, Australia |
Web Address (URL) of Paper | http://eresearchau.files.wordpress.com/2014/07/eresau2014_submission_74.pdf |
Conference/Event | eResearch Australasia 2014 Conference: Towards Unified Global Research |
Event Details | eResearch Australasia 2014 Conference: Towards Unified Global Research Event Date 27 to end of 31 Oct 2014 Event Location Melbourne, Australia |
Abstract | This paper shares the experiences of researchers and research support teams to enable eResearch that is ethically sound, particularly with regard to the consent of research participants. A key goal of eResearch is to use compute and data intensive infrastructure and collaborative approaches supported by advanced ICTs (HPC, Cloud Storage, Collaborative tools and High Speed networks) to enable data sharing and re-use. This paper shares the practical challenges and solutions from the perspectives of researchers and research support teams at the University of Southern Queensland (USQ) and poses questions and suggestions on ethics dilemmas such as ensuring that research participants have consented to share the data collected on them with other researchers. A collaborative and consultative approach involving teams in the USQ Office of Research, the USQ Human Research Ethics Committee (HREC) Chair, the ICT Service Division and Library Services division resulted in successful outcomes for researchers. |
Keywords | ethics; eResearch; participant consent; research support; USQ |
ANZSRC Field of Research 2020 | 390405. Educational technology and computing |
470102. Communication technology and digital media studies | |
500107. Professional ethics | |
Public Notes | This publication is copyright. It may be reproduced in whole or in part for the purposes of study, research, or review, but is subject to the inclusion of an acknowledgment of the source. |
Byline Affiliations | Australian Digital Futures Institute |
Office of Research | |
School of Humanities and Communication | |
School of Health, Nursing and Midwifery | |
Institution of Origin | University of Southern Queensland |
https://research.usq.edu.au/item/q2v87/you-don-t-know-what-you-don-t-know-ethics-and-participant-consent-issues-for-eresearch-users
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